NTR

1
NTR

• Blood/Marrow Transplant Registry

2
Intro

• Malaysian Bone Marrow Transplant Recipient
  Registry was created on 16 February 1998
• Paediatrics Department UH Paediatrics Insitute
  HKL Dept of Medicine UH (Haematology division)
  Subang Jaya Medical Centre Hospital Kuala Lumpur
  (Haematology Division) Hospital UKM

3
Intro

• Merged existing databases
• Decided to record and maintain transplant data
  online
• 32 fields
• 578 records to date

4
NTR Update

• Take opportunity to overhaul database
  add/delete/modify fields
• Combined the common and BMT data forms into
  one for reporting at day 30 post-transplantation
  
• Main Reporting Form Fields
• Update (ad hoc events) Form Fields

5
NTR requirements

• Entirely online submission of data via Web based
  entry
• Use of drop down boxes, check boxes, radio
  buttons etc to speed up entry
• SDPs must be able to access data submitted for
  editing
• SDPs must be able to access real-time aggregate
  data for the HSC Transplant registry

6
NTR requirements

• Totals (by centre, diagnosis, type of transplant,
  transplant source, sex, ethnic group, age ranges)
  and cross-tabs
• Totals by year of transplant (real time graphs)
• Real-time or periodic (e.g. quarterly) KM
  survival analyses (total, by disease, DFS/RFS)

7
NTR fast track

• Getting started ASAP
• Commence new registry ASAP utilizing new database
  structure
• Begin entering new data online ASAP
• Update existing data before merging into new data
  (need to liaise with individual SDPs)