cyberNephrology

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cyberNephrology Internet Resources
Presented at
Mexican Congress of Transplantation

• Michele L. Hales
• University of Alberta
• Edmonton, AB CANADA

Guadalajara, Mexico
October 15, 2002
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Host Count Graph 1991 2002 (From July 2002)
Source http//www.isc.org/
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Internet Users Worldwide
May 2002 Nua Internet Surveys
2002 2000 World Total 580.78
million 377.65 million Africa 6.31
million 3.11 million Asia/Pacific 167.86
million 89.68 million Europe 185.83
million 105.89 million Middle East 5.12
million 2.40 million Canada USA 182.67
million 161.31 million Latin America 32.99
million 15.26 million
Source http//www.nua.ie
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Daily E-mail Output

• Globally-
• 31 billion e-mails sent daily in 2002
• gt60 billion e-mails estimated to be sent every
  day by 2006

Source Sep. 26, 2002 IDC Research
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Statistics Specific to Mexico

• The number of Internet users in Latin America
  will reach 29.6 million by the end of 2003
• Mexico accounts for 21 percent of these users

source Global Reach  http//www.glreach.com/globs
tats/index.php3
according to IDC (www.idc.com)
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A Brief History of cyberNephrology

• Created in summer of 1997
• Mission is to
• - bring cutting-edge electronic communication
  technology to nephrology professionals and
  patients worldwide, and to provide the
  technological support to all of the NKF's
  educational programs.

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cyberNephrologys Key Resources

• Nephrol (and all the offshoot groups)
• Schriers Atlas of Diseases of the Kidney (to be
  distributed free to developing countries)
• RenalTech
• cyberNéphrologie site

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NEPHROL

• Created in October 1994
• 1st year membership was 355
• Began as a moderated group
• Legal problems/risk minimal
• Birth to various offshoot groups

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NEPH E-mail Discussion Groups
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Patient E-mail Discussion Groups

• NEPHKIDS for parents with children with renal
  disease
• KIDNEYDISEASE for adult children with renal
  disease
• IGAN IgA nephropathy

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NEPHROL Statistics

• Membership Total 1474
• Average Total Posts per Week 38
• (Approx. 5.4 posts per day)
• Recent Top 5 Topics

• IgA Pregnancy.
• High Ca PO4 product, low PTH.
• Secondary hyperparathyroidism.
• Dialysis frequency of HIV testing.
• Transplantation after colorectal carcinoma

as of Oct. 11, 2002
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NEPHROL in General
An Internet discussion group like NEPHROL is at
its best when debating important questions in the
field of nephrology, the answers to which cannot
be found in existing journals or books, and
discussing uniquely challenging patients, with
the ability to instantly consult 1500 nephrology
professionals.
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Subscription To Our Groups

• To subscribe to NEPHROL or any of the other
  groups send e-mail to
• majordomo_at_ualberta.ca
• with the message
• subscribe nephrol subscribe nephdevel etc.

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Schriers
http//www.kidneyatlas.org
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Renal-Tech Donation Project

• Established by Zina Munoz to provide for computer
  education and linkage in developing countries
• Cooperative program with the ISN
• Donate computer hardware and software
• Provide computer/Internet training to renal units
  in developing countries as well as to families of
  children with renal disease in the US

http//www.renal-tech.org
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Pilot Program in Nepal - June, 1998

• In June of 1998, the Renal-Tech Project initiated
  its first on-site pilot program.
• Eight computers, six laptops and two desktop
  units were donated to three hospitals in the
  greater Kathmandu area
• The computers were donated by Toshiba Corporation
  of Japan, Compaq Corporation, and Lucky
  Computers.
• Members on the team participated in various
  functions
• - medical lectures
• - lectures on internets use in medical
  settings
• - training and demonstration of equipment

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Renal-Tech Donations To Date

• Nepal (June 1998
• June 2002)
• Nigeria
• Cuba (Spring 1999)
• Argentina
• Kosovo (December 1999, May 2000 September
  2002)

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Renal-Techs Main Goal

• To expand communication between Renal-Tech and
  the recipients so that there remains a sharing of
  knowledge and information to benefit the
  worldwide community of renal patients.

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Addressing Language Differences
http//www.nephrologie.org
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Additional Programs of Interest

• Educational/Teaching Resources - ISN Video
  Legacy CD-ROM - Banff Allograft Pathology
  Conference WWW site content placed on
  CD-ROM - Educational Slides on Renal
  Parenchymal Diseases and Hypertension
• K/DOQI Clinical Practice Guidelines
• USRDS
• HDCN

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ISN Video Legacy Project

• This project is headed by Drs. Stewart Cameron
  and Kim Solez
• Twenty- three interviews with nephrologists of
  exceptional merit, have  been recorded to date
• The first CD-ROM came out in 1997
• 5000 copies were made and distributed in North
  America and Europe
• A new CD is currently in the works and should be
  available later this year
• The Commission attempts to include both
  Bibliography and CV in the CDs

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Banff Conference on Allograft Pathology

• CD-ROMS Produced
• Third Banff Conference (1995)
• Fourth Banff Conference (1997)
• Fifth Banff Conference (1999)
• Seventh Banff Conference (2003, in the works)
• Features
• More than 400 full colour images
• Many of the presentations are accompanied by a
  full-text abstract
• Full text search capabilities
• Links to World Wide Web
• Conference video segments
• Easy to use interface

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www.kidney.org
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www.usrds.org
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www.hdcn.com
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Renal Education
Keeping Physicians Updated

• Through the Internet, physicians can quickly
  consult experts anywhere in the world about local
  problems.
• Part of the Renal-Tech mandate is to provide
  continued support for physicians and support
  personnel about dialysis, transplant issues and
  general nephrology or computer queries
• CD-ROMs can be easily created and sent to
  developing countries

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Food for Thought

• 78 of physicians regularly use the Internet
• ? of these physicians web daily ? of 24 since
  1997
• Primary use of the Internet by physicians
• - claims processing (83)
• - medical research information (74)
• - CME for physicians (64)
• - legal regulatory updates/compliance
  information (53)
• - patient scheduling (60)
• - coding (58)
• 2001 65 of physicians gt60 years using Internet
  ? of 50 since 2000

Source 2002 AMA Study on Physicians Use of the
WWW
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AMA Study Web Site Development
Source 2002 AMA Study on Physicians Use of the
WWW
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cyberNephrologys Future Goals

• Link all world countries together through a
  global nephrology e-mail system
• Create an educational program that can either be
  transported to developing countries through the
  Internet or CD-ROM
• Grow the Renal-Tech project
• Create more on-line resource textbooks
• Create viable projects that utilize IP based
  Videoconferencing to link participating
  institutions for the purpose of developing and
  exchanging knowledge in health, education and
  teaching

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• If we cannot ensure that this global revolution
  creates a world-wide information society in which
  everyone has a stake and can play a part, then it
  will not have been a revolution at all.
• -- Nelson Mandela

FOR MORE INFO...
Michele.Hales_at_UAlberta.CA