CINCH: Clinical Investigation of Neurological Channelopathies

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CINCH Clinical Investigation of Neurological
Channelopathies

• Nine centers in CINCH
• One of ten consortium Rare Diseases Network
• Data Technology Coordination Center (DTCC)

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NIH CINCH sites

• Rabi Tawil, M.D., Site PI, Univ. of Rochester
• Anthony Amato, M.D., Site PI, Brigham and Womens
  Hospital
• Robert Baloh, M.D., Site PI, UCLA
• Richard Barohn, M.D., Site PI, Univ. of Kansas
  Medical Center
• Stephen Cannon, M.D., Ph.D., Site PI, UT
  Southwestern at Dallas
• Marinos Dalakas, M.D., Site PI, NINDS
• Louis Ptacek, M.D., Site PI, UCSF
• Michael Hanna, M.D., Site PI, National Hospital,
  Queen Square
• Angelika Hahn, M.D., Site PI, London, Ontario

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CINCH International Conferences on
Channelopathies

• Periodic paralysis - 2005
• Episodic ataxia - 2006
• Non-dystrophic myotonias - 2007