CNI Grant 02-227 Use of Clubhouse Model to Improve Quality of Life of Persons with TBI in Charlottesville and Surrounding Area November 1, 2001

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CNI Grant 02-227Use of Clubhouse Model to
Improve Quality of Life of Persons with TBI in
Charlottesville and Surrounding AreaNovember 1,
2001 October 31, 2004

• Leigh Wion, CTRS, CBIS
• The High Street Clubhouse
• Charlottesville, VA
• CNI Community Colloquium
• November 5, 2004

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Presentation Outline

• Initial goals and achievement of those initial
  goals
• Identification of outcomes
• Lessons learned
• Good ones
• Not so good ones
• Questions

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Initial Project Goals

1. Expand clubhouse program to include persons with
   brain injury living in the Charlottesville and
   surrounding communities who are not currently
   receiving any services from The John Jane Brain
   Injury Center
2. Transition Clubhouse program from pilot program
   to permanent program by the 3rd month of the year
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3. Provide opportunity for members to develop basic
   job skills including time management, compliance
   with clubhouse standards, personal hygiene and
   neat appearance, appropriate social skills, and
   productivity
4. Independent social functioning

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Initial Project Goals (cont.)

1. Evaluate the efficacy of the Clubhouse Program in
   improving quality of life, client satisfaction,
   and community integration
2. Staff training on International Clubhouse
   Standards at Fountain House
3. In-house staff training through quarterly
   consultations with Mill House Program Director or
   designee.

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Goal 1 Expand program

• Brochures to area community agencies
• On-site informational presentations
• Develop website for the clubhouse currently a
  link on the Virginia NeuroCare site.

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Goal 2 - Transition from Pilot Program to
Permanent Program

• Second unit coordinator hired in February 2002
• Open 5 days/week in April 2002
• Third unit coordinator hired in September 2003
• Steady but slow increase in Average Daily
  Membership

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Average Daily Members by Year
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Goal 3 Opportunity to develop basic job
skills, etc.

• Outcome is the development of Transitional
  Employment (TE)
• Currently continue with an established
  relationship with one small business in
  Charlottesville

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Goal 4 Independent Social Functioning

• Member identification of community resources,
  volunteer jobs, and recreational activities.
• Implemented weekly clubhouse newsletter that
  members identified volunteer opportunities and
  upcoming community events.
• Added a leisure satisfaction measurement tool to
  gather data. See goal 5

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Goal 5 Evaluate efficacy

• Use of Quality of Life Inventory, Satisfaction
  with Life Scale, and Community Integration
  Questionnaire.
• Surveys administered to members in January and
  July.
• Anticipated a 10 improvement in the first six
  months and 20 after one year
• Added the Leisure Satisfaction Measure in January
  2004

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Data Comparison Life Situation Survey
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Data Comparison Satisfaction with Life Scale
SURVEY AUG '02 JAN '03 AUG '03 JAN '04 AUG '04
1 140 120      
2 25 N/A 125    
3 85 N/A 45    
4 105 N/A 45 110 90
5 55 70 95 90 60
6 150 130 120 155 115
7 110 175 175   50
8 175 100 95 175 25
9 50 70      
10 75 135 65    
11 50 N/A      
12 100 50      
13 N/A 50 90 35 45
14 50 80      
15 N/A 55      
16 N/A 115 105    
17         120
18     125 125 130
19     95 40 100
20       60  
21          
22         85
23          
24         145
25         105
           
AVERAGE 90 95.83 96.00 65.00 64.17
MEDIAN 85.00 90.00 95.00 90.00 105.00
ST.DEV 45.23 39.76 35.10 55.89 32.84
HIGH 175 175 175 175 145
LOW 25.00 50.00 45.00 35.00 25.00
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Data Comparison Community Integration
Questionnaire
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Data Comparison Leisure Satisfaction Measure
Total Leisure Score - 5.0 max. Total Leisure Score - 5.0 max. Total Leisure Score - 5.0 max.
Jan '04 July '04
Survey Number Survey Number
4 2.88 3.30
5 2.54 3.21
6 4.63 4.42
8 3.38 3.21
7 2.29 2.00
13 3.63 3.71
18 3.50 3.54
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Goal 6 ICCD Colleague Training at Fountain
House

• Visits to Blue Ridge Clubhouse and The Mill House
  prior to opening. One day training at The Mill
  House.
• Long discussions with ICCD Training Coordinator
  about the acceptance of brain injury clubhouses
• Referred to Gateway House in South Carolina for
  Colleague Training
• Attendance at International Clubhouse Seminar in
  Minneapolis in October 2003
• International Alliance of Brain Injury Clubhouses

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Goal 7 In House Staff Training

• Initial consultation with Program Manager at The
  Mill House
• Year 1 Dr. Harvey Jacobs
• Year 2 Cindi Johnson, Side by Side Clubhouse,
  Harvey Jacobs
• Year 3 Janet Hill, CNI Program Review
• International Alliance of Brain Injury Clubhouses
  list serve and data comparison

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Project Outcomes

• Young, developing clubhouse program with
  established work units
• Ongoing relationships and recently new
  relationships with potential referral sources
• Advocacy activities with local legislators
• Participant in activities of the International
  Alliance of Brain Injury Clubhouses
• Good data collection - limited numbers to
  demonstrate statistical significance

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Lessons Learned

• At the recommendation of the CNI Advisory Board,
  The John Jane Brain Injury Center Clubhouse
  became The High Street Clubhouse on October 1,
  2002.
• Delay in hiring third staff position until year 3
  impacted attainment of goal of volunteer work
  experiences/TE placements
• Meeting the significant case management needs of
  some members

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Lessons Learned - continued

• Shift of focus at the end of year 3 with a move
  to a new location and resignation of 3rd staff
  member
• Fundraising
• Lack of sufficient transportation for outlying
  members and lack of access to dedicated
  transportation for clubhouse business
• Member recruitment

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Questions???