GOVERNMENT RELATIONS

1
GOVERNMENT RELATIONS

• ESMO CANCER PATIENTS ADVOCACY FORUM
• BRUSSELS 26-27 NOVEMBER 2007
• P. BLAES, DIRECTOR, ESMO BRUSSELS OFFICE,
  POLITICAL AFFAIRS

2
STRUCTURE OF THE SESSION

• BRIEF PRESENTATION
• ITALIAN PRESENTATION
• OPEN DISCUSSION
• CONCLUSIONS

3
WHY TO ADDRESS THIS TOPIC

• BRUSSELS AS THE EUROPEAN POLITICAL CENTER
• LEGALLY CPO NEED TO ADDRESS THE NATIONAL LEVEL
• COMPETENCES
• SUBSIDIARITY PRINCIPLE
• GOVERNMENT MEANS
• LEGISLATOR
• POLICY MAKERS Government
• LEVEL NATIONAL, REGIONAL AND LOCAL LEVELS

4
MISSION OF THE CPO

• TO FIGHT EFFICIENTLY AGAINST CANCER EXAMPLES
• TO PROMOTE SCREENING AND PREVENTION
• TO IMPROVE CANCER TREATMENT AND CANCER CARE
• TO IMPROVE CANCER PATIENT JOURNEY
• TO PUT CANCER ON THE POLITICAL AGENDA
• ..

5
ACTIVITIES OF THE CPO

• EDUCATION AND INFORMATION OF CANCER COMMUNITY
• PATIENTS, FAMILY, HEALTH PROFESSIONALS
• ADVOCACY AND LOBBY
• PATIENTS AND RELATIVES SUPPORT
• ADVOCACY AND LOBBY
• RESEARCH SUPPORT
• ADVOCACY AND LOBBY
• ......

6
WHOM TO ADDRESS?

• THE APPROPRIATE LEVEL OF AUTHORITY
• EUROPEAN
• NATIONAL
• REGIONAL
• LOCAL
• THE APPROPRIATE BODY
• STAKEHOLDERS research community, pharma
  industry, professionnal societies

7
WHAT CAN BE ASKED?

• LARGE RANGE OF POSSIBLE REQUESTS AND POSSIBLE
  PRIORITIES
• ADOPTION OF A (NATIONAL) CANCER CONTROL PLAN
• Etats Généraux des Patients / Patients Forum
  (French League against Cancer)
• BETTER LEGAL PROTECTION OF PATIENTS (
  communication with health professionals)
• Adoption of a patient law ( implementation and
  evaluation/assessment)
• Right to consent
• Right to information
• Right to second opinion
• Right to privacy
• Access to medical file
• ..
• BETTER SOCIAL PROTECTION
• Employment
• Reimbursement of treatment
• Rehabilitation
• BETTER FINANCIAL PROTECTION

8
CONCLUSIONS

• TO ADDRESS THE APPROPRIATE BODIES (
  Stakeholders, Government)
• TO ADDRESS THE GOVERNMENTS WHEN AND IF NECESSARY
• Good analysis
• Make a list of priorities ( realistic)
• Define actions
• NO EXCLUSIVITY