Better Funding For Services For People With A Learning Disabilities - Learning Disability Coalition

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Better Funding For Services For People With A
Learning Disabilities - Learning Disability
Coalition

• What The Initiative Seeks To Do
• Persuade the government that more funding is
  necessary and can be found for learning
  disabilities.

• The Story So Far
• December 2008 research shows numbers needing
  care up by 3-5

• How We Know The Initiative Is A Success
• Department of Health accepts figures e.g.
  population going up
• Department of Health Acknowledge legitimacy of
  campaign

• Next Steps
• Campaign based on research and cost benefit of
  early interventions and interventions for people
  with moderate learning disabilities.

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Kissing It Better Independent website (Personal
Initiative) www.kissingitbetter.co.uk

• What The Initiative Seeks To Do
• Highlight how simple ideas can make the world of
  difference

• The Story So Far
• The website was recently launched
• Feedback has been made, the site has been well
  accepted

• How We Know The Initiative Is A Success
• Feedback has been made
• Personal contact
• People are willing to share their stories with
  us

• Next Steps
• Sustainability - funding
• Promotion through media
• Spreading the word

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The Orders of St John Care Trust

• What The Initiative Seeks To Do
• To ensure person centred care reflects the whole
  person and not just their physical care needs
• Create a social interactive tool

• The Story So Far
• Staff trained to enable clients to complete life
  histories
• Discussions/meetings with clients/families/friend
  s

• How We Know The Initiative Is A Success
• Much better interaction between staff resident
  and family
• Respect for the person and their past lives
  knowledge that enables staff to understand
  clients with dementia and other social care needs

• Next Steps
• To continue with programme across all
  specialities
• To introduce memory books so the person is
  remembered after death

4
Dignity Matrix (My Home Life) Help the aged/Age
concern

• What The Initiative Seeks To Do
• Tool to measure whether organisations
  (primarily aimed at care homes) using dignity
  initiatives are meeting them
• From the users prospective

• The Story So Far
• Tool launched winter 2008/2009 (through my home
  life project available on web site)
• Four country participation

• How We Know The Initiative Is A Success
• Evaluation is integral to the process, timing of
  this will be notified

• Next Steps
• To be advised (information is not currently
  available)

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Registration of Health Social Care

• What The Initiative Seeks To Do
• Central to the new registration system is a
  specific regulation on respecting and involving
  service users
• This includes the need for the registered
  personnel provider as far as reasonably
  practicable to make suitable arrangements to
  ensure the dignity, privacy and independence of
  service users

• The Story So Far
• Scope of regulation consulted by Department of
  Health
• Guidance on compliance criteria for registration
  drafted and currently consulted on
• Feedback and involvement of public and people
  who use services in progress
• Proposals for working with LINks in future
  planned

• How We Know The Initiative Is A Success
• Compliance with registration criteria
• Many examples of high quality demonstrating users
  are treated with dignity and respect and human
  rights are protected
• Feedback from service user

• Next Steps
• Completion of consultation process
• Registration of health care providers April 2010
• Registration of social care providers 2019

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Promoting Dignity In Dementia Care Training
Course Anchor Trust

• What The Initiative Seeks To Do
• Deliver training to staff from day care, home
  care and small residential care settings about
  person centred care and promoting dignity in
  dementia care

• The Story So Far
• Researching
• Development of course

• How We Know The Initiative Is A Success
• This is a pilot (September 2009)
• It builds upon and compliments the range of
  other 30 courses delivered within the portfolio
  available from dementia

• Next Steps
• Deliver training

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Standards and Values(Methodist homes MHA Care
Group)

• What The Initiative Seeks To Do
• Evidence that we do what we say we do
• Commitment to the people we support and staff
• Support and share good practice
• Quality and service improvement

• The Story So Far
• Set up around 4 years ago
• Developed with lots of people who had something
  important to tell us
• A separate team spend 2 days in the home and
  provide a report and keep supporting them
• Helps us do things better but also helps the
  people who inspect us from outside see what we do

• Next Steps
• Review it each year
• Raise the pass mark each year
• Link with dementia champions
• Feel everyone should see dignity as part of what
  they are about
• All staff should deliver the values of the
  organisation

• How We Know The Initiative Is A Success
• The staff find the reports really helpful
• Just had our first audit where we scored good on
  everything (100)
• Staff are proud and confident about what they do
• The people we support talk to us about their
  experiences good and not so good

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Behind Closed Doors - British Geriatrics Society

• What The Initiative Seeks To Do
• Share best practice for toileting with
  dignity with professionals and individuals

• The Story So Far
• Set of standards developed and distributed to
  named hospital staff for care of older people

• How We Know The Initiative Is A Success
• Through word of mouth, the original print run of
  5,000 leaflets and has since been reprinted FOUR
  times
• Difficult to assess and impact

• Next Steps
• Share standards more widely with the care home
  sector
• Expand the standards to include personal
  hygiene and bed control (enabling people to eat
  sitting out rather than in bed

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The Role Of Local Councillors Extending The Scope
For Dignity

• What The Initiative Seeks To Do
• To champion dignity as elected members
• To challenge how we deliver services
• Dignity central to commissioning
• Workforce/staff development notebooks outside
  social services e.g. leisure, libraries, parks,
  no-traditional organisations

• The Story So Far
• Collecting data on service use/non-use
• Two senior councillors lead on wellbeing
  (including dignity)
• Produced a dignity code published and launched
• Carers champion in place
• Free swimming for U18s and over 60s (real
  example of initiative being implemented

• How We Know The Initiative Is A Success
• Measuring the outcomes through data collection
  (against targets) engaging listening to service
  users)
• Ongoing process
• Positive results

• Next Steps
• Initiative needs to broaden across local
  strategic partnerships e.g. housing, community
  safety
• Needs to be raised to level of safeguarding
  adults just as important
• Broaden across other councils sharing best
  practice driven by Local Government Association
  

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Amanda Waring Films Training Packs On Dignity
www.amandawaring.com

• What The Initiative Seeks To Do
• Through the films what do you see etcand the
  interactive training pack on dignity be able to
  support the emotional and spiritual aspects of
  the dignity and person centred care initiatives
• As a speaker at conferences Amanda aims to
  engage and inspire others to get involved and
  KEEP involved

• The Story So Far
• Amanda is the keynotes speaker at over 12
  conferences this year and her films on end of
  life care will be ready in September 2009
• Her films and the What Do You See training pack
  are being used by major organisations, hospitals,
  care homes and domiciliary organisations

• How We Know The Initiative Is A Success
• The films have sold in their thousands around
  the world and the feedback is constantly positive
• What do you see training pack is being used in
  care homes and by dignity champions
• Amanda is speaking regularly in End of Life
  issues and the media ask her to contribute to
  T.V, radio etc regularly too

• Next Steps
• To continue promoting the films on pack
  effective Dignity Training Aids
• To make a new film on intergenerational healing
  and to continue the campaigning around dignity
  and end of life care

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Life Story Network

• What The Initiative Seeks To Do
• Share good practice around life story networks
• Creating clearer understanding of the value of
  like work and networks on delivery of
  personalised care
• Develop sustainability for the work through
  research, commissioning and everyday delivery of
  care

• The Story So Far
• Builds on experience of individual carer,
  supported by local overview and Scrutiny
  Committee
• Held event in North on November 2008 invitation
  out to share good practice overwhelming support
  more than 100 attendees identified lots of
  exiting good practice
• Established small steering group convened
  (Chaired Ruth Eley) to develop and support
  network
• Short report on outcome of event and examples of
  good practice
• Ongoing discussions with Department of Health
  regarding hosting the network of the dignity
  webpage
• Seeking funding to appoint a part-time network
  coordinator nationally

• How We Know The Initiative Is A Success
• Positive feedback from patients/carers/service
  users also empowering for carers
• High degree of interest from key stakeholders
• South-west Yorkshire Mental Health Trust
  recognised for work and value of work in this
  area.
• Oldham adopted system and embedded practice
• Buy-in from Social Care in Excellence, Admiral
  Nursing
• Positive impact for transition of care/across
  pathways more seamless transfer of personal
  information makes it easier

• Next Steps
• Publish report
• Appoint coordinator
• Develop a webpage possibly as part of
  Department of Health website
• Prepare/plan for national launch event later in
  2009

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Putting People First Without Putting Carers
Second The Princess Royal Trust for Carers

• What The Initiative Seeks To Do
• Ensures that we take a WHOLE FAMILY APPROACH
• Five PRACTICAL examples of schemes that work (to
  ensure personalisation for user doesnt adversely
  affect family)

• The Story So Far
• Published document. Phil Hope launched
  (February 2009)
• Disseminating (ongoing)

• How We Know The Initiative Is A Success
• Outcome-focused
• Evaluating now
• Starting to see relationship between adult and
  children services to give a whole family approach

• Next Steps
• Working with other organisations
• Evaluation has a difference been made?

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Best Practice Bank Mentoring Mentoring and
Befriending Foundation

• What The Initiative Seeks To Do
• Providing an information hub for best practice,
  all sectors

• The Story So Far
• Collated a range of case studies and other
  materials, such as research studies, publications
  etc that are available on-line
• Contributed to government consultations

• How We Know The Initiative Is A Success
• Influenced national policy
• Increased number of visits to the website
• Up take of national training programme courses

• Next Steps
• Developing best practice bank across all sectors
• Developing additional training courses in key
  areas
• Promoting approved provider standards

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Access With Respect Multi-agency Safeguarding
Vulnerable adults

• What The Initiative Seeks To Do
• Facilitating IMMEDIATE access for authorised
  personnel in to peoples homes to deliver
  multi-agency care

• The Story So Far
• Using a Key safe for authorised entry by way
  of a code system allowing multiple access for
  multiple services
• Also linked to Telecare buttons response

• How We Know The Initiative Is A Success
• 1.6 million homes now access this service

• Next Steps
• Looking at ways to promote Dignity in Care via
  training systems and packs for our service
  providers

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Health Wellbeing In Care Homes Campaign

• What The Initiative Seeks To Do
• Promote Health Wellbeing and Dignity by sharing
  good practice, developing information materials
  and involving relatives as partners

• The Story So Far
• 3 conferences
• 2 newsletters
• 1 publication
• On-going networking and promotional work

• How We Know The Initiative Is A Success
• Increased awareness amongst staff, relatives and
  managers and residents
• Reduction in complaints
• Increased attendance at conferences
• Increased requests for publications

• Next Steps
• More conferences
• More publications newsletters
• More activities to promote multi-disciplinary
  involvement
• Embedding in core Policy

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Anchor Trust Dignity In Care Champions

• What The Initiative Seeks To Do
• All staff who have completed a day developing
  Dementia care practice course have the
  opportunity to be registered as Dignity champions
  taking forward the change in culture and practice
  in the home in which they work. Nominated to lead
  and influence

• The Story So Far
• 449 champions registered to date
• Regional networks of dignity champions meet on a
  regular basis to share practice information

• How We Know The Initiative Is A Success
• Supporting meetings
• Evaluating
• Difference being made to peoples lives life
  history work, working with friends and families,
  creating enabling environments

• Next Steps
• Continue to train, support and make a difference
• Create wider networks to continue to promote
  dignity in care

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With Respect Dignity In Homecare Resource Guide
And Training Programme

• What The Initiative Seeks To Do
• Provide homecare organisations with an
  off-the-shelf training programme to provide
  dignity training in-house for their staff
• Provide a resource guide to give information
  about dignity in care

• The Story So Far
• Awaiting publication of materials on CD which
  will be sent to all home care organisations in
  England
• A similar resource guide and training programme
  has been produced for residential care

How We Know The Initiative Is A Success
Next Steps
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Care with Dignity Steering Group Shrewsbury and
Telford NHS Trust

• What The Initiative Seeks To Do
• Embed dignity in the culture of Hospital Trust (2
  Hospitals)

• The Story So Far
• Steering groups
• 4 work streams
• Governance
• Development
• Partnership
• Scholarship research

• How We Know The Initiative Is A Success
• Success
• Implementation

• Next Steps
• Outcome measures
• Job Description
• Review/Appraisals

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RCN Dignity Campaign

• What The Initiative Seeks To Do
• Surveyed opinions of nursing teams
• Raise awareness
• Utilising learning resources
• Influencing for positive change
• Share good practice. Through networks

• The Story So Far
• In the first year
• Events and workshops locally/nationally
• Identifying issues, making changes, feeding back
• Creating networks
• Inclusive of everyone
• Linked with equality diversity and human rights
• Linking with other work/campaigns

• Next Steps
• Embedding good practice into everything we do
• Continue to raise awareness and challenge poor
  attitudes and behaviours
• Champion good practices
• Work in partnership with other organisations
• Continue to drive up standards

• How We Know The Initiative Is A Success
• Huge interest
• Positive stories and case studies
• Evaluation report due summer 2009
• Has put dignity onto agenda as a priority
• Has created dignity champions

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Review of Standards and GuidancePre registered
Care and Health Around End Of Life, Dementia,
Chronic

• What The Initiative Seeks To Do
• Produced standards and guidance to underpin
  practice to inform the people in our care
  services, public and professionals

• The Story So Far
• Framework
• Review stakeholder engagement
• Pre consultation desk research
• Focus group across UK NMC pre-registered
• Consultations
• Dissemination
• Evaluation

How We Know The Initiative Is A Success
Next Steps