HANOI INDEPENDENT LIVING CENTER

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HANOI INDEPENDENT LIVING CENTER
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• Hanoi
• Independent Living Center of People with
  Disabilities
• 42 Kim Ma Thuong st.,
• Hanoi, Vietnam
• ttsongdoclaphn_at_gmail.com

http/www.ttsongdoclaphn.vn
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Public assistance system in Vietnam

• Viet Nam does not have Public Personal Assistance
  System for people with severe disabilities living
  in community, just 156 institutions nationwide.
• Population of Persons with severe disabilities
  574,000 (0.7 national population aged over 5 and
  4.7 PWD population).

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Public Assistance System in Vietnam

• At the institutions, one assistant may take care
  of
• 3-4 children with disabilities aged under 6, or
• 4-5 children with disabilities aged from 6 to 16,
  or
• 8-10 adults with severe disabilities who still
  can serve themselves, or
• 3-4 adults with severe disabilities who can not
  serve themselves .
• (According to Decree 68/2008/NÐ-CP issued 30
  May 2008)

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Assistant Service System at Hanoi ILC

• Presently Hanoi ILC is the only one organization
  of this kind to provide Personal Assistant (PA)
  service to PWD living in community
• One PWD may be provided with one or more PAs per
  day , according to the users needs and the
  availability of the PAs, identified by 3 PA
  Coordinators from the Center

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Basis

• International Policy and Legislative Frameworks
• UN Convention on the Rights of Persons with
  Disabilities
• UN Standard Rules on the Equalization of
  Opportunities for Persons with Disabilities
• Millennium Development Goals
• Regional Commitments/Frameworks for action
• BIWAKO 5
• BIWAKO Millennium Framework for Action

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Basis

• National legislations
• Ordinance for People with Disabilities 1998
• Vietnam Disability Law 2011
• Building Code for Accessibility in Building
  Environment for People with Disabilities 2002

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Strategy

• Doing advocacy by working in cooperation with the
  Media, especially with different television
  channels
• Cooperation with GOs, NGOs, the Youth Union
  universities and DPOs
• Lobbying the Government for support to IL model
  and IL centers
• Advertising for the ILCs services by networking
  and website
• Capacity building and empowerment to PWDs

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Hanoi ILC activities

• 1. Peer counseling
• 2. Program of training on IL skills (income
  planning, moving, cooking, outing, accessibility,
  organizing events...)
• 3. Capacity building for PWDs (teamwork, basic
  leadership, advocacy)
• 4. Training and providing personal assistants
  (types of disability, communication,
  accessibility, specific assistance, time
  management, conflicts management)

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Hanoi ILC activities

• 5. Dissemination of IL philosophy and ILC in
  three other main cities in Vietnam Haiphong,
  Danang, Cantho by working with local disabled
  people, DPOs and, through them, with local
  governments. IL seminars and Peer Councelling
  courses have been organized in those three
  cities.
• 6. Other supports (for instance providing
  information on Vietnamese welfare system, how to
  get the house modified for accessibility,
  transportation with lift van to PWD)

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What has been done?

• IL Seminar in Hanoi
• with the
• attendance
• of DPOs, MOLISA,
• other ministries,
• Government
• agencies and
• local authorities

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IL Seminar in Hai Phong
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Peer counseling trainings

• Purposes
• Rebuild self-confidence
• Build or rebuild social relations
• Help with integration into community

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What has been done?

• Helped and supported outdoor activities to the
  participants of the PC trainings (shopping and
  going to the parks and on picnic)
• Elementary and advanced IL Skills Trainings to
  PWD (communication skills, moving in the house,
  cooking, traveling in wheelchair, planning, group
  activities, team work, advocacy)

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Going on Picnic
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IL Program
Learning experiences
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Learning how to travel
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What has been done?

• Working with the media to be on TV talks with
  supportive speech of Government officers
• Information about Hanoi ILC on most of the TV
  channels
• Using the lift van as a travel service for
  severely disabled persons
• Articles about Hanoi ILC in different newspapers
  and magazines

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Personal Assistant (PA) Service

• Provide assistance to people with severe
  disabilities in everyday life so that they can
  take their rights to full and equal participation
  in the social activities and demonstrate their
  abilities
• Create a model of assistive service to meet the
  needs of PWDs, in the hope that the Government
  will support and provide budget for that in the
  future
• Build cordial and cooperative relation between
  PWDs and non-disabled persons
• Making ILC a proof of ability of PWDs to manage
  and provide the service system for their peers in
  community.

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PA trainings

• How to carry PWD How to put
  clothes on to PWD

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PA learning assistive skills
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Companions to PWD
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• Outing with PWDs

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Offering certificates
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Encouraging the best PAs
Happy birthday!
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PAs and PWDs always together
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IL and ILC ModelIL Dissemination Program

• IL seminars have been organized in Hai Phong, Da
  Nang, Can Tho
• An IL Group has been formed in each city and
  this group has raised the awareness and promoted
  the action of the local government
• The Group is supposed to be the core for the
  leaders and prepare to establish an ILC in their
  cities in the future.

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ILC development

• In each of the IL groups in the three cities is
  supposed to set up a service model of a person
  and a PA
• Peer-councelling trainings and activities have
  been done
• Elementary IL skill trainings
• Elementary PA trainings

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Outcomes

• PWD have become confident and can demonstrate
  their abilities, even in the cities where we just
  have IL groups
• With help of the PA service, PWDs can go to
  school to work
• PWDs have done advocacy by writing articles in
  newspapers with help from PA
• A newsletter has been created

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Outcomes

• Personal assistant has become a job for young
  people, promoting the social assistance for PWD
• IL has been recognized by the Government as a
  good model run by PWD to provide assistive
  services to PWD, and with the impact of Hanoi
  ILC, IL has been introduced into the Disability
  Law 2011
• Number of service users 57 65
• Number of PA 60 - 85

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Strength

• Support from MOLISA and NCCD in all the
  establishment process
• Administrative assistance from DP Hanoi
• Good and well-trained staff
• Good coordination
• PAs are mostly students and university graduates
  ? good awareness on the rights of PWD and good
  attitude to the job and the service users

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Changes in life of the PWDs

• Some case-studies
• Mr. Van Ð?c Hòa used to live with his 83-year-old
  mother, who took care of him. He could hardly
  find chances to be taken out. His life has
  changed since he had PAs. He could go on a picnic
  without having a relative with him. Hes now the
  editor of Hanoi ILC members newsletter named
  Independent Living. After his mother passed-away,
  he started using 20-hour service.

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• With their PAs, the brothers Tu?n and
• Tú have taken part
• in social activities, developed their
• work of
• collaborator with newspapers and
• become active and dynamic in their daily life

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• The PA teaches the PWD and takes him to school

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Changes in policies of the Government

• The Disability Law was approved by the National
  Assembly, in which was stated the right to
  independent living of PWD
• The Government has recognized that ILC is one of
  the organization to provide assistance to PWD

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Raising awareness and cooperation

• Worked with MOLISA and trying to organize
  seminars and workshops with attendance of
  Government officers and local governments
• Worked with DPOs to spread out the IL philosophy
  and find promising leaders for IL movement and
  ILC in the future

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Raising awareness and cooperation

• Social Work Department of the universities
  started working with Hanoi ILC and PA job has
  been recommended to become a part of social
  workers job
• Cooperation with INGOs has been strengthened and
  they have brought some contribution to the IL
  activities

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Expectations for the sustainability

• PAs will be more and more professional
• More PWDs will have PAs, benefits by the service
  and their lives will change they can take their
  rights to education and employment, and can live
  independently
• The PA service of the Center will be supported
  and budgeted partly by the Government
• The PA job will be recognized by the society as
  an authentic job
• More ILC will be established in Vietnam to help
  PWD live independently and integrate into the
  society

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• Thank you