NATIVE AMERICAN CAREGIVER SUPPORT PROGRAM

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NATIVE AMERICAN CAREGIVER SUPPORTPROGRAM
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OLDER AMERICANS ACTTITLE VI, PART C
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What you will know when you leave ---- Who is
eligible- Five required services
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Sec. 631. Program

• The Assistant Secretary shall make grants to
  tribal organizations with applications approved
  under Parts A and B to enable them to provide
  multifaceted systems of support services for
  caregivers.

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Title III, Part E NationalFamily Caregiver
Support Program

• DEFINITIONS

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CHILD an individual not older than 18or who is
an individual with a disability.FAMILY
CAREGIVER an adult familymember, or other
individual who is an informal provider of in-home
and community care to an older individual or to
an individual with Alzheimers disease.
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RELATIVE CAREGIVER Caregiver is age 55 years or
older of an adult child, aged 19 59, with a
disability (this does not include natural or
adoptive parents).
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• GRANDPARENT OR OLDER INDIVIDUAL WHO IS A RELATIVE
  CAREGIVER a grandparent or stepgrandparent or a
  relative by blood, marriage or adoption, who is
  55 or older and -

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• Lives with the child
• Is the primary caregiver because the biological
  or adoptive parents are unable or unwilling to be
  the primary caregiver and
• Has a legal relationship, such as legal custody
  or guardianship, or is raising the child
  informally.

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• The Five Required Services of the program are

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SUPPORT SERVICES The services provided shall
include -

• Information to caregivers about available
  services
• Assistance to caregivers in gaining access to the
  services

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SUPPORT SERVICES The services provided shall
include -

• Individual counseling, organization of support
  groups, and caregiver training to caregivers to
  assist the caregivers in the areas of health,
  nutrition, and financial literacy, and in making
  decisions and solving problems relating to their
  caregiving roles

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SUPPORT SERIVCES The services provided shall
include -

• Respite care to enable caregivers to be
  temporarily relieved from their caregiving
  responsibilities and
• Supplemental services, on a limited basis, to
  complement the care provided by caregivers.

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POPULATION SERVED

• Services shall be provided to family caregivers
  and grandparents and older individuals who are
  informal, unpaid relative caregivers already
  caring for the elder or grandchildren, and

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POPULATION SERVED

• Priority shall be given to caregivers who are
  older individuals with greatest social need, and
  older individuals with greatest economic need
  (with particular attention to low-income older
  individuals)

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POPULATION SERVED

• For respite care and supplemental services, the
  older individual must be frail, as defined in
  Sec. 102(26)(A)(i) of the Older Americans Act.

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FRAIL (Sec. 102(26)(A)(i)

• The elder is functionally impaired because she/he
  is unable to perform at least two ADLs without
  substantial human assistance or, due to cognitive
  or other mental impairment, requires substantial
  supervision because she/he behaves in a manner
  that poses a serious health or safety hazard to
  the individual or to another individual.

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Examples of Training

• Short term transferring, bathing, wound care,
  CPR
• Mid term range of motion exercises, ambulation
• Long term information needed on Alzheimers,
  congestive heart failure, diabetes, kidney
  disease, nutrition
• End of Life issues durable power of attorney
  living wills (AARP)

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Training cont.

• Care for the Caregiver training
• Relaxation techniques
• Meditation
• Use of music
• Stress relief classes
• How to manage ones time

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Training cont.

• Develop or steal a course that meets the needs
  of the caregivers (AARP)
• Use videos, classes, books, clinic staff
• Dont reinvent what is already there
  coordinate.
• Build a caregiver library with DVDs, books, tapes
  and newsletters

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Support Groups

• Support groups are a great way to provide
  emotional support and practical support for
  caregivers.
• Listening to the needs of caregivers during a
  support group meeting can lead you to design
  services specifically for your area or tribe.
• FOOD

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Support Groups cont.

• Caregiver Honor Day
• A nice meal with a speaker
• Certificates of Honor for each caregiver
• Day care for the elders or children
• Door prizes
• Coupon books for assistance with tasks

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Dont forget the Grandparents

• Training can include
• How to make playdough
• Understanding MySpace.com
• The Choking Game

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Respite Care

• Caregivers need a break
• Makes them better caregivers
• Helps them manage stress
• Gives them time to care for themselves

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In-home Respite

• Provides care for the elder in the home where
  they live
• Pay caregivers to provide the care on a
  temporary, intermittent basis so the primary
  unpaid, informal caregiver gets a break.

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Out-of-Home Respite

• Negotiate a special daily rate for a local
  skilled nursing facility to allow coverage for
  the elder if a caregiver needs an extended time
  away.
• Senior Center activities
• Adult Day Center if available in your community

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Supplemental Services

• These are services to complement the care
  provided by caregivers (limited basis)
• Translate and replicate existing materials to
  make more culturally appropriate (training
  materials)
• Lending closet for items such as canes, walkers,
  wheelchairs.

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COORDINATION WITH SERVICE PROVIDERS

• Each Tribal organization shall coordinate the
  activities of other community agencies and
  voluntary organizations providing the types of
  services described in the Native American
  Caregiver Support Program.

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QUALITY STANDARDS AND ACCOUNTABILITY

• The Tribe shall establish standards and
  mechanisms designed to assure the quality of
  services provided.

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QUALITY STANDARDS AND ACCOUNTABILITY

• The Tribe shall collect data, maintain records,
  and submit reports in order to enable the
  Assistant Secretary to monitor Tribal program
  administration and compliance, and to evaluate
  and compare the effectiveness of the Tribal
  programs.

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MAINTENANCE OF EFFORT

• Funds provided shall supplement, and not
  supplant, Federal, State, Tribal, or local funds
  expended by a Tribe to provide these services.

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Questions when you go home?

• Please feel free to contact me
• Meg Graves
• Aging Service Program Specialist
• 202-357-3502 Margaret.Graves_at_aoa.hhs.gov