United States Health Information Knowledgebase (USHIK) Metadata Registry Project

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United States Health Information Knowledgebase
(USHIK)Metadata Registry Project

• Glenn M. Sperle
• Health Care Financing Administration
• 410 786-4610
• 25 May 2000
• Health Level Seven

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Purpose of Briefing

• Provide Status of Metadata Registry Project
• United States Health Information Knowledge
• Review
• Goal
• Todays Situation
• Approach
• Metadata Registry Overview
• Some Examples
• Point of Contact

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Metadata Registry Project Goal

• Build, populate, demonstrate, and make available
  for general use a metadata registry to assist in
  cataloging and harmonizing data elements across
  multi-organizations.
• Utilize selected Health Insurance Portability and
  Accountability Act (HIPAA) data elements for
  demonstration.

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Todays Situation (i)

• HCFA and DoD have developed the USHIK to
  demonstrate the use of a metadata registry that
• Focuses on Health Insurance Portability and
  Accountability Act (HIPAA) data.
• Contains data definitions from X12, HL7, and
  NCPDP.
• Functions based on ISO/IEC 11179 metadata
  standard
• Utilizes the Australian National Health
  Information Model (NHIM) high level information
  model to facilitate grouping of data definitions.
• USHIK is available for review athttp//hmrha.hir
  s.osd.mil/registry/

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Todays Situation (ii)

• HCFA has offered to support operation of the
  USHIK by Health Informatics Standards Board
  (HISB) for one year in order for HISB and
  Standards Development Organizations to utilize
  and evaluate metadata registry benefits.

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Todays Situation (iii)

• HISB and seven SDOs have accepted HCFAs offer to
  utilize the USHIK metadata registry to evaluate
  metadata registry capabilities
• Accredited Standards Committee - Healthcare
  (X12N)
• American Dental Association (ADA)
• American Society for Testing and Materials
  Committee E31 on Healthcare Informatics (ASTM
  E31)
• Health Industry Business Communications Council
  (HIBCC)
• Health Level (HL7)
• Medical Device Communications Industry Group
  (IEEE 1073)
• National Council for Prescription Drug Programs
  (NCPDP)

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Todays Situation (iv)

• Five additional organizations are interested in
  providing input or observing
• Center for Disease Control (CDC)
• Department of Defense, Health Affairs (DoD HA)
• National Committee on Vital and Health Statistics
  (NCVHS)
• Government Computer-Based Patient Record (G-CPR -
  Joint Department of Defense, Health Affairs (DoD
  HA), Department of Veteran Affairs (VA), and
  Indian Health Service (IHS) Project)
• Health Care Financing Administration, End Stage
  Renal Disease Program (HCFA ESRD)

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Approach

• Two phase approach
• Initial startup to provide access to current SDO
  data dictionary content and basic metadata
  registry operations
• Load As-Is information
• Minimize impact on SDO
• Map data elements to Australian National Health
  Information Model (NHIM)
• Establish procedures for achieving metadata
  registry content consistency
• Incorporating into SDO operations
• Versioning of data elements
• Required metadata and quality metrics
• Enhance capabilities of metadata registry

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Metadata Registry Overview
Methods of Finding Data Elements
References to Authoritative Sources

• A metadata registry is a place to keep facts
  about characteristics of data that are necessary
  to clearly describe, inventory, analyze, and
  classify data.
• A metadata registry supports data sharing with
  cross-system and cross-organization descriptions
  of common units of data.
• A metadata registry assists users of shared data
  to have a common understanding of a unit of
  datas meaning, representation, and
  identification.

NCPDP (National Council for Prescription Drug
Program)
Data Elements
ABCDEFGH..
Data Element
Initiatives
Identifying and Definitional Attributes
Data Element ID 07-329-4837.00000692.v1
Name Gender Code
Context X12 Data
Dictionary Definition
Code indicating the sex of the individual
Status Received as of
01/19/1999 Example
Synonyms/Keywords
Comment Data Collection Methods Relational
and Representational Attributes
Data Type ID Representational Form
Representational Layout
Minimum Size 1 Maximum Size 1
Unit Of Measure
Precision Minimum Range
Maximum Range Data Domain
Permissible value Domain Meaning Name
Domain Meaning

Definition Text A
Not Provided B
Not Applicable F
Female M Male
N Non-sexed
U Unknown X
Unsexable Related Data
References Object Relationship
Related Item Type
Gender Code is composite part of X12 Data
Dictionary Standards Alternate Names and
Contexts Name
Context Gender Code X12 Data
Dictionary 1068 X12 Data
Element Number
X12 (American Standards Committee)
Health Insurance Portability and Accountability
Act...
Transaction Set -Data Element
-Composite Data Element
Data Collections
Person_Sex Gender Sex_Category Code ...
Birth Date Hair Color Eye Color Sex ...
HCFA Long Term Care BRFSS
HL7 (Health Level Seven)
Reference Information Model -Subject Area
-Class -Attributes
Data Agreements
What data elements are used?
Where are data elements defined?
X12 NCVHS Core Data NCPDP
NHIM (Australian National Health Information
Model )
Organizations
Model -Model Subtype -Information Model
Subtype -Data Element -Data
Concept -Composite Data Element
-Derived Data Element
CDC AHCPR NCVHS
Codes can be downloaded for use in applications.
Data elements are described in common format.
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Data elements are described in common format. (i)
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Data elements are described in common format. (ii)
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Data elements are described in common format.
(iii)
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High Level Information Model Assists in Grouping
Data Elements
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Data Elements are Linked to Model Views
Model Views
Data Elements
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Data Elements Linked by Different Organizations
Appear Together
X12 Data Element (0060-07-329-4837 Registration
Authority)
NCPDP Data Element (0060-02-166-0014 Registration
Authority)
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Comparison Matrix Aids in Harmonizing Data
Elements
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Data Element Usage Shows Linkages Between Data
Elements
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Future

• HISB will manage the release of the new USHIK
• HCFA will utilize an internalized version of
  USHIK for managing End Stage Renal Disease and
  Peer Review Program metadata

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Point of Contacts and Example Metadata Registry
Sites

• Health Care Financing Administration
• Bob Mayes
• Director, Information Systems Group
• Office of Clinical Standards and Quality
• Health Care Financing Administration
• 7500 Security Blvd., Bldg S3-02-01
• Baltimore, MD 21244-1850
• 410.786.6872 / 410.786.8532 Fax
• rmayes_at_hcfa.gov
• Department of Defense - Health Affairs
• Marco Johnson
• Chief, Operational Architecture
• Information Management
• Information Management, Technology
  Reengineering
• TRICARE Management Activity
• Office of Assistant Secretary of Defense -
  Health Affairs
• 5111 Leesburg Pike, Suite 810
• Falls Church, VA 22041-3206
• 703.681.5611 / 703.681.8845 Fax

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USHIK - HL7 Information Model