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NATIONAL POPULATION BASED- CANCER REGISTRY-

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NATIONAL POPULATION BASED- CANCER REGISTRY- Dr. G.Z. Mutuma Principal Research Officer, Head, Non-Communicable Diseases Research Programme, Kenya Medical Research ... – PowerPoint PPT presentation

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Title: NATIONAL POPULATION BASED- CANCER REGISTRY-


1
NATIONAL POPULATION BASED- CANCER REGISTRY-
  • Dr. G.Z. Mutuma
  • Principal Research Officer,
  • Head, Non-Communicable Diseases Research
    Programme,
  • Kenya Medical Research Institute,
  • Nairobi, Kenya.

2
Pathology Oncology Research Unit (PORU)
  • Non-Communicable Diseases Research Programme.
    (NCD)
  • 1. Registries
  • Cancer registry - Since 2001
  • Other NCD registries -Not yet
  • 2. NCD Research- Cancer research
  • Cervix, Burkitts Lymphoma, Oesophagus, Liver,
    NSC, Breast.
  • 3. DIAGNOSTIC-Histology, cytology and
    Immunohistochemistry.

3
Pathology Oncology Research Unit (PORU)
  • COLLABORATORS.
  • 1. MOH
  • 2. WHO
  • 3. NCI- US
  • 4. UICC
  • 5. IARC and IACR
  • 6. INCTR
  • 7. OTHER ORGANIZATIONS-

4
Nairobi Cancer Registry POPULATION.
  • Population based Cancer registry An important
    tool for cancer Research, control, prevention and
    treatment
  • Nairobi Cancer Registry covers a population of 4
    Million.
  • Nairobi city and its Adjacent divisions.

5
NAIROBI CANCER REGISTRY- MAP.
6
Nairobi Cancer Registry - Background
  • Nairobi Cancer Registry is a population-based
    registry that was established in the year 2001 at
    the Kenya Medical Research Institute (KEMRI),
    Nairobi.
  • The initial three years was funded by National
    Cancer Institute (NCI) of USA

7
Population-based cancer registry
  • A population-based registry records all new cases
    in a defined population with emphasis on
    epidemiological research, and evaluation of
    health services for prevention, diagnosis and
    treatment of the disease.
  • In Kenya
  • Nairobi Cancer Registry KEMRI
  • Eldoret Cancer Registry - MTRH

8
The goals of population-based registries.
  • Research
  • Cancer prevention
  • Early detection
  • Determination of cancer rates and trends
  • Patterns of care and outcomes
  • Evaluation of control efforts

9
Nairobi Cancer Registry. Roles.
  • Provide data on
  • Statistics
  • Incidence rates
  • Age Standardized Rates
  • Mortality rates
  • Treatment strategies
  • Public health initiatives

10
Quality control
  • To assure that every cancer patient has been
    reported
  • To avoid over-counting and under-counting cases
  • To monitor multiple primaries
  • To document completeness of the registry

11
What to collect
  • Eligible cases
  • Newly diagnosed returns
  • Tissue and clinical diagnoses
  • Treated and untreated
  • Current status

12
Sources of Data.
  • Hospitals hospital-based cancer registries
  • Cancer centers / Hospices
  • Pathology labs. Imaging centers
  • Physician offices - Private clinics (chemotherapy
    and radiotherapy
  • Death certificates
  • Public health sources screening programmes

13
Hospital sources
  • In-patient records
  • Out-patient records
  • Histopathology labs
  • Radiology units
  • Hematology labs
  • Private physicians attached to the hospital
  • Surgery
  • Autopsy reports

14
Pathology department
  • Tissue histology
  • Biopsies, excisions
  • Cells cytology
  • Pap smears, ascites, pleural fluid, sputum
  • Bone marrow hematology
  • Autopsy

15
Medical records department
  • Admission form/Patient registration form
  • Discharge summaries
  • Disease index cards ICD books
  • Reports
  • Pathology
  • Imaging
  • Operations
  • Consultation
  • Treatments Chemotherapy, Radiotherapy
  • patient appointment schedules

16
NCR relation with IACR IARC
  • IARC supported the registry trough training of
    registrars both locally and abroad. (4 cancer
    registrars have been trained in Lyon and
    South-Africa)
  • One fellowship offered to the supervisor through
    IACR to train in Thames Cancer Registry , UK
  • Registrars have benefited through Annual
    conferences by presenting abstracts on various
    topics.

17
Most Common Cancers as Registered by Nairobi
Cancer Registry - KEMRI
18
  • In the Nairobi population the 16 most common
    cancer sites among males are prostate,
    oesophagus, stomach, liver, larynx, pancreas,
    trachea, bronchus and lung, rectum, mouth, colon,
    Non-Hodgkin lymphoma, Multiple Myeloma, Brain,
    nervous, nasopharynx, bladder and bone. They
    account for 69.1 of incident male cancer cases.

19
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20
  In the Nairobi population the 20 most common
cancer sites among females are Breast, Cervix,
Uteri, Stomach, Oesophagus, Colon, Ovary, Liver,
Corpus Uteri, Bone, Trachea, Bronchus, Lung,
Pancreas, Uterus unspecified, Multiple Myeloma,
Rectum, Non-Hodgkin lymphoma, Mouth, Nasopharynx,
Larynx, Brain, Nervous system and Bladder. They
account for 78.1 of incident females cancer
cases.
21
POINTS TO NOTE
  • 1. Lung cancer becoming more common.
  • 2. Stomach cancer the 3rd common in adults

22
LUNG CANCER ? MORE COMMON Nairobi Cancer Registry
KEMRI-
Lung Cancer is not among the top ten cancers in
Kenya
23
Lung cancer in Europe
Lung cancer is the most common cancer in Europe
and other developed countries and Oesophagus is
the least common yet the most frequent cancer in
Kenya
24
Childhood cancers as reported to Nairobi Cancer
Registry
25
Future Plans
  • Establishment of a National Cancer Registry
  • The government is interested in the National
    statistics to show burden of cancer in the whole
    country
  • With some support Nairobi Cancer Registry is well
    place to set up a National Cancer Registry. i.e.
    we have trained personnel, equipment and
    established good relation with hospitals.
  • Initial coordination funding from WHO 2007

26
ON-GOING REGIONAL REGISTRIES
  • 1. RIFT VALLEY- ALREADY GOING ON (MRTH)
  • 2. WESTERN KENYA- KISUMU- Kisumu cancer registry
    has so far been set up and there is ongoing case
    abstraction and registration
  • 3. CENTRAL REGION NYERI COUNTY
  • 4. COASTAL REGION- MOMBASA

27
Future Plans
  • 1. COASTAL REGION-
  • MOMBASA COUNTY
  • 2. EASTERN
  • EMBU COUNTY
  • MACHAKOS COUNTY
  • 3. RIFT VALLEY
  • NAKURU COUNTY
  • BOMET COUNTY

28
Eradication of NCDs
29
Healthy living Healthy eating
30
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31
Cancer Registrars Training August 2011, KEMRI
32
Thank you for your attention!
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