Title: NATIONAL POPULATION BASED- CANCER REGISTRY-
1NATIONAL POPULATION BASED- CANCER REGISTRY-
- Dr. G.Z. Mutuma
- Principal Research Officer,
- Head, Non-Communicable Diseases Research
Programme, - Kenya Medical Research Institute,
- Nairobi, Kenya.
2Pathology Oncology Research Unit (PORU)
- Non-Communicable Diseases Research Programme.
(NCD) - 1. Registries
- Cancer registry - Since 2001
- Other NCD registries -Not yet
- 2. NCD Research- Cancer research
- Cervix, Burkitts Lymphoma, Oesophagus, Liver,
NSC, Breast. - 3. DIAGNOSTIC-Histology, cytology and
Immunohistochemistry.
3Pathology Oncology Research Unit (PORU)
- COLLABORATORS.
- 1. MOH
- 2. WHO
- 3. NCI- US
- 4. UICC
- 5. IARC and IACR
- 6. INCTR
- 7. OTHER ORGANIZATIONS-
4Nairobi Cancer Registry POPULATION.
- Population based Cancer registry An important
tool for cancer Research, control, prevention and
treatment - Nairobi Cancer Registry covers a population of 4
Million. - Nairobi city and its Adjacent divisions.
5NAIROBI CANCER REGISTRY- MAP.
6Nairobi Cancer Registry - Background
- Nairobi Cancer Registry is a population-based
registry that was established in the year 2001 at
the Kenya Medical Research Institute (KEMRI),
Nairobi. - The initial three years was funded by National
Cancer Institute (NCI) of USA
7Population-based cancer registry
- A population-based registry records all new cases
in a defined population with emphasis on
epidemiological research, and evaluation of
health services for prevention, diagnosis and
treatment of the disease. - In Kenya
- Nairobi Cancer Registry KEMRI
- Eldoret Cancer Registry - MTRH
8The goals of population-based registries.
- Research
- Cancer prevention
- Early detection
- Determination of cancer rates and trends
- Patterns of care and outcomes
- Evaluation of control efforts
9Nairobi Cancer Registry. Roles.
- Provide data on
- Statistics
- Incidence rates
- Age Standardized Rates
- Mortality rates
- Treatment strategies
- Public health initiatives
10Quality control
- To assure that every cancer patient has been
reported - To avoid over-counting and under-counting cases
- To monitor multiple primaries
- To document completeness of the registry
11What to collect
- Eligible cases
- Newly diagnosed returns
- Tissue and clinical diagnoses
- Treated and untreated
- Current status
12Sources of Data.
- Hospitals hospital-based cancer registries
- Cancer centers / Hospices
- Pathology labs. Imaging centers
- Physician offices - Private clinics (chemotherapy
and radiotherapy - Death certificates
- Public health sources screening programmes
13Hospital sources
- In-patient records
- Out-patient records
- Histopathology labs
- Radiology units
- Hematology labs
- Private physicians attached to the hospital
- Surgery
- Autopsy reports
14Pathology department
- Tissue histology
- Biopsies, excisions
- Cells cytology
- Pap smears, ascites, pleural fluid, sputum
- Bone marrow hematology
- Autopsy
15Medical records department
- Admission form/Patient registration form
- Discharge summaries
- Disease index cards ICD books
- Reports
- Pathology
- Imaging
- Operations
- Consultation
- Treatments Chemotherapy, Radiotherapy
- patient appointment schedules
16NCR relation with IACR IARC
- IARC supported the registry trough training of
registrars both locally and abroad. (4 cancer
registrars have been trained in Lyon and
South-Africa) - One fellowship offered to the supervisor through
IACR to train in Thames Cancer Registry , UK - Registrars have benefited through Annual
conferences by presenting abstracts on various
topics.
17Most Common Cancers as Registered by Nairobi
Cancer Registry - KEMRI
18- In the Nairobi population the 16 most common
cancer sites among males are prostate,
oesophagus, stomach, liver, larynx, pancreas,
trachea, bronchus and lung, rectum, mouth, colon,
Non-Hodgkin lymphoma, Multiple Myeloma, Brain,
nervous, nasopharynx, bladder and bone. They
account for 69.1 of incident male cancer cases.
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20 In the Nairobi population the 20 most common
cancer sites among females are Breast, Cervix,
Uteri, Stomach, Oesophagus, Colon, Ovary, Liver,
Corpus Uteri, Bone, Trachea, Bronchus, Lung,
Pancreas, Uterus unspecified, Multiple Myeloma,
Rectum, Non-Hodgkin lymphoma, Mouth, Nasopharynx,
Larynx, Brain, Nervous system and Bladder. They
account for 78.1 of incident females cancer
cases.
21POINTS TO NOTE
- 1. Lung cancer becoming more common.
- 2. Stomach cancer the 3rd common in adults
22LUNG CANCER ? MORE COMMON Nairobi Cancer Registry
KEMRI-
Lung Cancer is not among the top ten cancers in
Kenya
23Lung cancer in Europe
Lung cancer is the most common cancer in Europe
and other developed countries and Oesophagus is
the least common yet the most frequent cancer in
Kenya
24Childhood cancers as reported to Nairobi Cancer
Registry
25Future Plans
- Establishment of a National Cancer Registry
- The government is interested in the National
statistics to show burden of cancer in the whole
country - With some support Nairobi Cancer Registry is well
place to set up a National Cancer Registry. i.e.
we have trained personnel, equipment and
established good relation with hospitals. - Initial coordination funding from WHO 2007
26ON-GOING REGIONAL REGISTRIES
- 1. RIFT VALLEY- ALREADY GOING ON (MRTH)
- 2. WESTERN KENYA- KISUMU- Kisumu cancer registry
has so far been set up and there is ongoing case
abstraction and registration - 3. CENTRAL REGION NYERI COUNTY
- 4. COASTAL REGION- MOMBASA
27Future Plans
- 1. COASTAL REGION-
- MOMBASA COUNTY
- 2. EASTERN
- EMBU COUNTY
- MACHAKOS COUNTY
- 3. RIFT VALLEY
- NAKURU COUNTY
- BOMET COUNTY
28Eradication of NCDs
29Healthy living Healthy eating
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31Cancer Registrars Training August 2011, KEMRI
32Thank you for your attention!