Selena Blake - Programme Manager Teenage and Young Adults Cancer Services South West Specialised Commissioning Group

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Selena Blake - Programme ManagerTeenage and
Young Adults Cancer ServicesSouth West
Specialised Commissioning Group

• Improving Outcomes Guidance (IOG) in Cancer and
  the Younger Person

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Today

• Background
• The IOG and the Younger Person
• What has happened so far
• Next Steps

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Background

• Epidemiology
• Impact late effects and survival
• Experiences
• Challenges

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Improving Outcomes Guidance (1)

• NICE CYPIOG August 2005
• An IOG defined by age and not tumour type
• Opportunity to not only improve clinical
  outcomes, but also the experience of young people
  as patients AND their families

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Improving Outcomes Guidance (2)

• An appropriate balance of service provision and
  resource allocation
• Safe and effective services as locally as
  possible, NOT local services as safely as
  possible
• Clear organisational structures
• Identified PTCs providing range of sustainable
  services with defined staffing

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Improving Outcomes Guidance (3)

• Shared care with defined agreed responsibility
• Care delivered by Multidisciplinary Teams (MDTs)
• Skilled, professional key workers identified to
  coordinate care provide information assess
  needs
• Young people under 19yrs in age-appropriate
  facilities, with those 19yrs and over to have
  unhindered access

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Improving Outcomes Guidance (4)

• All young people must have access to
  tumour-specific expertise
• All young people with cancer to be offered entry
  to clinical trials, treatment and care via agreed
  protocols and pathways
• Registration of cancer in 15 24yr olds
• Full implementation by 2010/2011

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What has happened so far? (1)

• Baseline assessment in January 2007 showed-
  variation in patients being treated at PTCs-
  inequalities in access to shared care-
  inequalities in access to IOG recommended
  services- TYA MDTs not generally established-
  transitional arrangements weak- workforce gaps

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What has happened so far? (2)

• 8 x Programme Managers for 2yrs (March 2008)
• Advisory Board gt SCGs and Cancer Networks
• Workload data for the SW SCG area produced
• Core principles for commissioners working with
  providers regarding development of- Services-
  PTCs- TYA MDTs- Shared Care Arrangements- Age
  Range- Place of Care

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Next Steps (1)?

• National co-ordination, local development- TYA
  centres with age appropriate facilities- TYA
  Shared Care facilities- TYA MDT- Supportive and
  palliative care for TYAs- TYA Workforce
• National Framework to inform Services PTCs MDT
  and Shared Care
• Cancer network young peoples working groups-
  gap analysis- care pathways / shared care
  arrangements

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Next Steps (2)?

• Regional strategic working group advisory group
  to SW SCG
• Stakeholder event - 16th June 2008 (flyer)
• Develop and submit Implementation Summary 30th
  September 2008 to NCAT
• Develop Project Plan for implementation by 2011

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Summary (1)

• Clear need and remit for separating TYA services
  as distinct from paediatric and adult
• Dedicated implementation resource
• Framework for development
• Opportunity to improve outcomes

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Summary (2)

• Philosophy of (individualised) patient care
• Physical environment
• Clinical practice / expertise - planning
• Resourcing
• Workforce
• Any questions?
• sblake_at_nhs.net or 07770702028