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Aims of the study

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Title: Aims of the study


1
12 18 October 2013Beijing, China
Poster Number WHO/CTS to insert
Authors C.Arnould (Belgium), C.Barral (France),
E.Bouffioulx (Belgium), P.Castelein (Belgium),
D.Chiriacescu (Romania), A.Cote (US)
Aims of the study
- Development of ICF- and CRPD-based guidance
templates, discussed in focus groups with
disabled persons and their representative
organisations in 7 countries (India, Nepal,
Philippines, Romania, Rwanda, Tunisia and
Uganda), and final versions tested in India and
the Philippines.
  • Associated CRPD articles (12, 15, 19, 20, 24,
    25, 26, 27, 30). Example of question linked to
    CRPD art.20 Does the assessment procedure take
    into account the needs of the person in terms of
    mobility and the necessary supports?
  • Guidance template 2 Sectorial
  • assessment of social participation. This template
    focuses on assessment mechanisms for the
    allocation of specific types of benefit intended
    to improve a given domain of social participation
    (such as access to employment, to education, to
  • housing ...). As in template 1, a series of
    questions referring to the CRDP allows the user
    to identify adjustments and recommendations to be
    made.
  • Guidance template 3
  • Assessment by benefit meant to identify (1) the
    concerned population, (2) existing benefits and
    (3) to describe the steps of the assessment
    process.
  • Guidance template 4
  • Estimated impact of benefit on participation of
    disabled persons, optional for users interested
    in analyzing further the impact of allocated
    benefits on the participation of a given group of
    persons, the quality of the whole process of
    assessment and amendments to be recommended.
  •  
  • Eligibility criteria and access procedures to
    disability benefits (indemnities and support
    services), therefore to public resources, are at
    the core of disability policies. Developing
    disability assessment mechanisms, in line with
    the principles of the UN Convention on the Rights
    of Persons with Disabilities (CRPD) and allowing
    equal access to services and benefits, compliant
    themselves to the CRPD is a complex process,
    facing which a majority of stakeholders feel in
    dire need of support, particularly in low-income
    countries. A study supported by FIRAH was
    carried out in 2011-2012 by a research team of
    disability studies scientists, occupational
    therapist and disability policies analysts from
    Belgium, France, Romania and the US. The aims of
    the study were
  • - to identify the main issues countries face in
    designing or reforming their disability policy in
    light of the CRPD
  • to develop a guiding tool usable by
  • all stakeholders (public authorities, disabled
    persons and their representative organisations
    and professionals) (1) to collect information on
    existing disability assessment mechanisms and
    benefits allocation procedures in high-, middle-
    or low- income countries (2) to analyze to which
    extent these assessment and eligibility
    mechanisms are effective leverages for
    participation and social justice consistent with
    CRPD requirements.
  • http//www.firah.org/index.php

Results
  • Development of 4 guidance templates intended as a
    progressive training for stakeholders (1) to
    collect countries appropriate information on
    disability identification and assessment
    mechanisms, (2) to analyze them in regard with
    CRPD requirements.
  • Guidance template 1Processes
  • of disability assessment and
  • eligibility for the status of disabled person
    (disability card type). It comprises 22 opened
    questions divided into 6 sections (1.Legal frame
    2.Access to assessment process 3.Assessment
    procedure 4.Decision process 5.Centralization
    and processing of information 6.Implementation
    of assessment process). In order to train the
    user to refer to the CRPD and to lead him to
    examine whether the answer to a question complies
    with the CRPD, each question is linked to one or
    several articles of the CRPD turned into
    questions.
  • Ex. Has your country a legal definition of
    disability? If Yes, which is it? Associated CRPD
    question Do you consider that your countrys
    definition reflects that in CRPD Art.1 Persons
    with disabilities include those who have
    long-term physical, mental, intellectual or
    sensory impairments which in interaction with
    various barriers may hinder their full and
    effective participation in society on an equal
    basis with others.
  • Other ex. What type of assessment is used to
    establish a person is disabled?
  • - Assessment of impairments as defined in ICF?
    (Body Functions 1st level listed)
  • - Assessment of activity limitations as defined
    in ICF (i.e. capacity)
  • - Assessment of participation restrictions as
    defined in ICF (i.e.performance in environment)
    (AP domains 1st level listed)
  • - Assessment of environmental factors as defined
    in ICF? (Environmental domains listed)

Title
Conclusion
Conclusion
This methodological tool has proved efficient to
sensitize stakeholders to the change of paradigm
promoted by CRPD and to the reforms of national
policies necessary for a full and effective
participation and inclusion of disabled persons.
The tool is usable by national disability
stakeholders (whether disabled persons and their
organisations, public authorities or
professionals) in high-, middle- and low-income
countries. It raised major interest in middle-
and low-income countries who either do not have
formal disability policies or need to reform
their policy according to the CRPD. But it needs
to be circulated and used! The final report is
available in French. A 10p. summary and the
guidance templates are available in French and
English. Catherine.barral_at_ehesp.fr Reference
Mécanismes dévaluation du handicap quels
enjeux pour lélaboration des politiques sociales
aujourdhui, à la lumière de la Convention des
Nations Unies relative aux droits des personnes
handicapées ? Rapport final. Nov.2012, 232 p.
Methodology
  • A literature review focused (1) on
  • disability definitions, legislations and
    components of disability (impairment, activity,
    participation) included in assessment procedures
    in 36 countries of Asia and Pacific Ocean region
    and 30 European countries (2) on disability
    definitions in disability surveys or censuses
    that included disability questions in 192
    countries.
  • The literature review is presented in 2 forms
    text and templates.
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