Working Plan of US-China Bilateral cooperation on biomedical data sharing

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Working Plan of US-China Bilateral
cooperation on biomedical data sharing
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Mode of cooperation

• State to State-funding Support
• 2. Institute to Institute
• -Laboratory cooperation)
• 3. Researchers to
  Researchers
• -Project
  research

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Task 1 Set up a working group of biomedical
data sharing
Specialized team for biomedical scientific data
sharing includes (1)Standardization staff
(2)Computerized automation staff
(3)Information management staff (3)Data
sharing application staff (4)Data sharing
research staff
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Task 2 Establish Standards and Regulations for
Biomedical Data Sharing

• To ensure an effective international biomedical
  data exchange and sharing, we should resolve a
  series of issues such as data classification,
  information release, data exchange, and data
  security, etc.
• Therefore, we propose to organize experts from
  interested countries to study international data
  sharing standards, national and regional
  standards, discipline and engineering standards,
  to establish international standards, rules and
  regulations for biomedical data sharing.

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Standard Specification Construction
Standard about Data
Formulate Standard Specification of biomedical
data sharing
Metadata Data element Data mode Classification
and coding

• Study the international standard of Scientific
  Data Sharing
• 2. Study and establish the special standard for
  biomedical data sharing
• 3. Designing and development of standard software

Standard about Service
Data discovery Data visit Data expression Data
operation
Standard about Data sharing service
Management standards Standard consistency
test Data sharing service
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Task3 Needs assessment

• It is important to perform systemic needs
  assessment on biomedical data sharing. Specific
  data sharing areas should include government
  health care decision making, health care service,
  scientific research and medical education ,
  healthcare industries and public health.
• Biomedical data resource allocation planning
  should consider specific needs from developed
  countries and developing countries, from urban
  areas and rural areas.

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Task3 Needs assessment

• This will enable the biomedical data sharing
  project more specifically to meet different needs
  from different professions and different interest
  groups worldwide. This can also help to raise
  overall level of biomedical science and
  technology research, disease prevention,
  diagnosis and treatment, and the entire human
  beings health status.
• Through extensive global effort, we can
  significantly narrow the gaps in healthcare and
  biomedical information services between developed
  and developing countries, and between urban and
  rural areas worldwide.

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Task4 Resource allocation
In the meantime, we should survey global
biomedical data resources understand various
data resources distribution, storage and current
sharing status in each subject area, in each
discipline, in each recognized data organization
and corresponding data ownership, to prepare well
for the initiation work of international
biomedical data integration.
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Task4 Resource allocation
Based on the current status and urgent needs for
global biomedical data resources, we will start
global data sharing process step by step,
piece-by-piece, and area-by-area to integrate,
process, and create a series of usable database
products to provide data sharing and information
service for each country worldwide to achieve
quick technology transfer from existing research
results for daily applications in basic medical
research, clinical diagnosis, prevention and
treatment , healthcare industry, and overall
human health in the world.
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Task5 Establish Management and Service System
on International Biomedical Data
Sharing

• We propose that each country set up a special
  fund for national biomedical data resources
  integration, databases buildup, nodes
  construction, localization of the international
  biomedical data, and provide data sharing
  services for government entities, medical
  professions, healthcare organizations, and
  ordinary persons who have biomedical data needs.
• We will build a professional data sharing expert
  team in biology, medicine, computer and
  information sciences worldwide. All of us will
  actively participate in international biomedical
  data integration, processing and sharing service,
  as well as providing data resources with regional
  characteristics.

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Task5 Establish Management and Service System
on International Biomedical Data
Sharing

• Respecting intellectual property rights is a
  fundamental principle in managing data sharing
  activities. We will manage data sharing
  activities according to appropriate
  classifications, which will enable the
  maximization of authoritative data sharing
  globally, will provide excellent, economic and
  convenient services for all users globally.
• Finally, we will attract all sources of
  international funds to support biomedical data
  sharing, including business enterprise,
  insurances industry, different kinds of
  foundations, charity organizations, etc. We will
  invite all of them to participate in the joint
  efforts to construct a comprehensive, convenient
  data sharing platform for international
  biomedical data sharing to enable all of the
  citizen worldwide to access and enjoy the massive
  treasures of biomedical data resources to create
  a healthy and harmonious global community.

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Action Plan

• Develop norms and standards in the field of
  medical health
• Carry out surveys on China-US cooperation project
  and works for collecting and submitting data
  resources
• Translate of the existing data into English to
  facilitate the international sharing
• Translate the international resource into Chinese
  to improve utilization rates within China.
• Setup international projects
• Carry out thematic service

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Roadmap of International Cooperation
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Suggestions

• Increase Participants from universities,
  institutions and governments
• Establish and start teleconference system on
  medical data sharing (each month)
• Collect and submit scientific data about projects
  and their output, such as reports, articles,
  patents.
• Needs analysis for global medical and health
  scientific data sharing services
• Train new researchers in IT, medical and health
  who will continue to contribute in the future to
  the development of next generation sharing
  platform

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Thanks