Facing%20Dementia%20Together

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Facing Dementia Together

• Post-Diagnostic Pilot in East Renfrewshire and
  Renfrewshire

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Aim of project

• To support, enable and empower people with early
  stage dementia and their families/supporters to
  take control of their own lives and to connect
  their hopes, dreams and aspirations, with the
  supports they need, in order to have the life
  they want now and in the future.

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Background to the project

• Changing Lives report of the 21st century social
  work review, Scottish Executive, 2006
• National guidance on self-directed support,
  Scottish Government, 2007
• Widespread lack of post-diagnostic support
• Personalisation an agreed understanding,
  Changing Lives Service Development Group, 2007

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Referral criteria

• Diagnosis of early stage dementia in last six
  months
• All ages
• All types of dementia
• Renfrewshire/East Renfrewshire
• PWD wants post-diagnostic support

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Community
Self Directed Support
choice
Person Centred Planning
Information
Signposting
Support
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Monitoring evaluation

• Dementia Services Development Centre (DSDC),
  Stirling University
• Interview sample (n20) and comparative group
  (n20)
• Pre/post interviews
• Interviews with key stakeholders and staff
• Recommendations for continuation strategy

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Intended outcomes

• Better informed
• Skills to manage challenges of living with
  dementia
• Lead full and active lives
• Legal financial arrangements in place
• In control of support now and in future
• Increased confidence, self-esteem, reduced
  feelings of isolation, improved mental well-being

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Key challenges

• Limited financial resources lack of
  systems/structures to support SDS
• Understanding acceptance of diagnosis and its
  impact
• Planning ahead
• Natural supports already eroding
• Resistance to help
• Additional support needs
• PWD needs Vs carer needs

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Ideal post-diagnostic support

• Opportunities for follow up
• One key contact
• Responsive to differing needs of PWD and carers
  at different points in time
• Timely accessible information
• Advise on practical matters
• Opportunities for appropriate peer support
• Access to counselling

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Contact

• Tracy Gilmour
• Post-Diagnostic Practice Manager
• Alzheimer Scotland _at_ Undercover
• 56 Kelburn Street
• Barrhead
• G78 1LR
• Phone [phone]
• Email tgilmour_at_alzscot.org