Development of a new self-report instrument on participation and environment

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Development of a new self-report instrument on
participation and environment

• Danielle Cheeseman

• With Ros Madden Professor Anita Bundy

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Outline

• 1) Review of literature
• 2) Development of YIPE
• 3) Study overview, results and future
  recommendations

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1) Review of literature

• Self-report increasingly advocated1,2
• ICF provides a framework for the development of
  self-report instruments
• ICF acknowledges the environment as a key
  contributor to participation3

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Review of literature
ABSENCE OF INSTRUMENTS THAT ARE
Generic (vs. condition specific)
Measure participation-environment relationship
Self-report
DEVELOPMENT OF YIPE
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2) Development of YIPE

• YIPE Your Ideas About Participation and
  Environment
• Generic, self-report instrument
• Enables a person to record their own assessment
  of overall functioning
• Developed from the Australian national data
  standards4
• Includes items from all activities and
  participation and environmental factors ICF
  chapters
• Questions start with satisfaction with
  participation and move to related environmental
  factors

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Overview of study

• Qualitative study
• 10 people from disability organisations
• Aim examine the evidence for the content
  validity of the YIPE, including meaningfulness,
  acceptability and usefulness
• 2 rounds of interviewing
• YIPE revised and converted to computer format

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3) Study results

• Benefits of the YIPE

• Empower service users
• Develop person-centred goals
• Useful being split into two related areas on
  participation and environment
• Holistic approach
• Assist with communication between health
  professionals
• Content and format well accepted by participants
• Useful assessment tool for preparation, during
  therapy, evaluation
• Importance of self-report

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Quotes

• Well I thought that because it was self directed
  that it was very respectful of me and I liked
  that
• I liked the fact that it was very open language
  and very non-judgmental. . . It's quite
  empowering in a way
• A more full, rounded appreciation of a person's
  daily life
• To really concentrate on what you really want to
  do. Otherwise you go in then they'll hit you with
  a questionnaire like this and off the cuff you're
  going to have to answer them. That could be you
  for the next 5 years, because that's what you
  said you wanted. But if you've got something that
  you can have a look at and prompt yourself to
  what you really want to do, yeah that'd be good.

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Future research

• Psychometric properties of the YIPE
• Increasing sample size and diversity (people with
  cognitive impairments)
• Obtaining the professionals view
• Trialling the YIPE at different stages in the
  therapy process
• Trialling accessible formats of the YIPE (e.g.,
  vision impairments)

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Summary

• Lack of existing instruments that are
  self-report, generic and measure participation
  and its relationship to the environment
• This has led to the development of a new
  self-report instrument, YIPE
• Findings support the meaningfulness,
  acceptability and usefulness of the YIPE and its
  potential for promoting person-centred care and
  the empowerment of service users.

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References

• 1. MacDonald C. Self-assessment models, practice
  and tools within disability support services
  Internet. New Zealand Ministry of Health
  2010. Available from http//www.moh.govt.nz/moh.n
  sf/Files/disability/file/dss-self-assessment-mode
  ls-practice-tools.pdf Accessed 2011 Aug 10
• 2. Griffiths P, Harris R, Ullman R. Self
  assessment of health and social care needs by
  older people A multi-method systematic review of
  practices, accuracy, effectiveness and experience
  Internet. London National Co-ordinating Centre
  for NHS Service Delivery and Organisation RD
  (NCCSDO) 2005. Available from
  http//www.sdo.nihr.ac.uk/files/project/30-final-r
  eport.pdf Accessed 2011 Aug 11
• 3. World Health Organization. International
  classification of functioning, disability, and
  health ICF. Geneva World Health Organization
  2001.
• 4. National Community Services Data Committee.
  National community services data
  dictionaryInternet. Version five. Cat. no. HWI
  102. Canberra Australian Institute of Health and
  Welfare. 2008. Available from http//www.aihw.gov
  .au/publications/hwi/ncsddv5/ncsddv5.pdf Accessed
  2011 Aug 26