CAB Steering Group Feedback

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CAB Steering Group Feedback

• Mark McPherson

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What, why and who

• What A representative group of people from
  within the CAB with an interest in the future of
  this group
• Why To increase the number of people involved in
  preparing this meeting, reducing work for some
  and adding difference perspectives
• Who At the moment we are Ben Cromarty, Robert
  James, Carmen Tarrades, Brian West.also with us
  in spirit were Badru Male and Fiona Pettitt

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What did we do?

• Looked at what the CAB has done to date
• Discussed its strengths
• Looked for opportunities
• Planned this meeting

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What do we want to do today

• Feedback what we did
• Get ideas for future events
• Get ideas about the future role
• Get ideas about how the group should be run

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Aims of the UK CAB

• To provide a specialist treatment training
  programme
• 3 speakers and a network sessions
• Speakers include researchers and companies as
  well as group members
• To strengthen the network of treatment workers
  and advocates
• Discussing issues and advances
• Community representation (eg BHIVA guidelines)

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What has the CAB been up to?

• Established in 2002
• This is the 15th meeting
• Past meetings have included Trail Design
  Resistance and Salvage Therapy Pregnancy,
  Fertility and Sperm Washing Access to Services
  for Refugees and Asylum Seekers Statistics
  Immunology and Children
• They have been delivered in the style of meetings
  and training events
• We have an active web based discussions group

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How do we compare?

• ECAB - more focused on drug trial design and
  linkage to the pharmaceutical industry
• French and German CABs - more activist based in a
  traditional sense involved with demonstrations
  etc.

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Strengths

• Diverse and Representative
• Delivers accessible information - without
  oversimplifying it.
• Provides contact nationally (often where
  treatment maybe sub-optimal)
• Affords community involvement in other policy
  forums

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Opportunities

• Increase involvement in trials
• Seek greater representation (pro-actively seeking
  key players to attend)
• Create clearer policy lines and actions based on
  e-mail discussion
• Be pro-active in the development of patient
  involvement across all Strategic Health Authority
  Regions
• Take a view and lobby on issues regarding
  standard of care delivery as well as treatment
  efficacy

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What we will do next?

• Have another steering group meeting after this
  one to plan the next CAB
• Plan how to take forward your feedback
• Look at how the next steering group should be
  formed

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Key Questions

• Have you ideas for future events?
• Have you ideas about the future role?
• Have you ideas about how the group should be run?