Mainstreaming Disability Data Collection and Reporting:

1
Mainstreaming Disability Data Collection and
Reporting

• Transitioning from data collection to data
  analysis and data presentation
• Jennifer H Madans/Mitchell Loeb
• National Center for Health Statistics, USA and
• Washington Group on Disability Statistics

2
WG Data Collection Tools

• Short set on functioning adopted in 2006
• measures difficulty functioning in 6 universal,
  basic activities
• Extended set on functioning for adults adopted
  2010
• WG/UNICEF Module on Child Functioning adopted in
  2016
• WG/UNICEF Module on Inclusive Education in
  testing
• WG/ILO Disability module for inclusion on labor
  force surveys in testing
• Module on Mental Health under development
• Modules on environment participation under
  development

3
The Washington Group Short Set

• has been used in censuses or surveys in over 78
  countries
• has been promoted by international aid programs,
  (DFID/UK and DFAT/Australia), as the means to
  collect disability data in all programs and
  projects,
• has been introduced as the means for collecting
  disability data by the UN Statistical Division
  (UNSD) and the UN Economic Commission for Europe
  for the 2020 round of censuses.

4
Workshops and Expert Consultations
Nairobi, Kenya 06/2005 Mumbai, India 09/2012
Bishkek, Kyrgyz Republic 12/2006 Belmonpan, Belize 01/2013
Sarajevo, Bosnia Herzegovina 02/2008 Amman, Jordan 05/2013
Bangkok, Thailand 04/2008 Podgorica, Montenegro 07/2013
Ohrid, Macedonia 11/2008 Apia, Samoa 06/2014
Dhaka, Bangladesh 08/2009 Hammamet, Tunisia 02/2015
Muscat, Oman 10/2010 04/2013 Geneva, Switzerland 07/2015
Damascus, Syria 12/2010 NY, New York 06/2016
Sharjah, UAE 05/2011 Nadi, Fiji 07/2016
Bogotá, Colombia 07/2012 08/2013 Westchester, NY 10/2016
in collaboration with UNICEF
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Planned workshops

• UNSD regional stock-taking workshops
• UNICEF regional workshops on the measurement of
  disability
• WG regional implementation workshops
• Pacific (Fiji) 2016
• Middle East early 2017
• Caribbean spring 2017
• Asia or Africa fall 2017
• Open meeting place and date to be determined

6
Selected joint activities

• Handicap International initiatives in the Andean
  region, east Africa, in emergency response
  situations and training (development of
  e-learning modules)
• US AID development of a disability module to
  include the WG Short Set in the Demographic and
  Health Surveys (DHS)
• UNICEF deployment of the Module on Child
  Functioning in the Multiple Indicator Cluster
  Surveys (MICS)

7
Selected joint activities

• ITU participation at the 4th Meeting of the
  Expert Group on ICT Household Indicators 7th
  Meeting of the ITU Expert Group on
  Telecommunication/ICT Indicators
• Global Action on Disability (GLAD) Network to
  provide support and coordination in enhancing the
  inclusion of persons with disabilities in
  international development and humanitarian
  action.

8
Volume on the history and accomplishments of the
WG
International Measurement of Disability
Purpose, Method and Application The Work of the
Washington Group B. M. Altman (Editor)
Springer (Publisher) Publication June, 2016
9
Disaggregation requirements

• Need a straightforward and simple way to identify
  persons with disabilities the WG questions
  identify those at greater risk than the general
  population for limitations in participation.
• Need indicator/outcome data (education,
  employment, income, ?health care access) from
  data collections (census/surveys) that also
  include the above disability identifier.

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Disaggregation in US NHIS data
NHIS 2013 18-64 years of age Weighted Disability status WG Short set Cut-off is at least a lot of difficulty in at least 1 domain Disability status WG Short set Cut-off is at least a lot of difficulty in at least 1 domain
Without disability With Disability
Employment Status Last WeekWorking 73.4 29.1
Current every day smoker 14.5 27.8
Covered by health insurance? (Yes) 79.5 81.0
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Reporting data on disability during the
transitions to new data collection methods

• Currently available data have been collected
  using different approaches and different data
  collection tools and are, therefore, not
  comparable cross-nationally
• Reporting of estimates that are not comparable
  reduces confidence in the data
• Should we only report comparable data or find a
  way to clearly report data that are not
  comparable?

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Option for reporting disaggregated data that
maximizes comparability and transparency
Table 1 Results from Censuses/Surveys Table 1 Results from Censuses/Surveys Table 1 Results from Censuses/Surveys Table 1 Results from Censuses/Surveys Table 1 Results from Censuses/Surveys Disaggregation variable Employment Status working Disaggregation variable Employment Status working
Determination of disability of questions Response options Cut-off in bold Country Year With disability Without disability 
Type of Disability/Impairment Type of Disability/Impairment Type of Disability/Impairment Type of Disability/Impairment Type of Disability/Impairment Type of Disability/Impairment Type of Disability/Impairment
4 Yes/No Morocco 2004    
5 Yes/No Cambodia 2008    
  2 Yes/No Hungary 2011    
Activity limitation Activity limitation Activity limitation Activity limitation Activity limitation Activity limitation Activity limitation
3 Yes/No Panama 2010    
5 Yes/No Malawi 2008    
9 No difficulty Some difficulty A lot of difficulty Completely unable Poland 2009    
Washington Group (modified) Washington Group (modified) Washington Group (modified) Washington Group (modified) Washington Group (modified) Washington Group (modified) Washington Group (modified)
6 Yes/No Philippines 2010    
7 Yes/No Mexico 2010    
Washington Group (as intended) Washington Group (as intended) Washington Group (as intended) Washington Group (as intended) Washington Group (as intended) Washington Group (as intended) Washington Group (as intended)
6 No difficulty Yes, some difficulty Yes, a lot of difficulty Cannot do it at all Turkey 2011    
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For more information about the WG visit our new
websitehttp//www.washingtongroup-disability.com
/QuestionsWG_Secretariat_at_cdc.gov