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Introducing "CancerStories

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Title: The Role of the Psychooncologist Subject: Notes & Presentation Author: Alex Mitchell Keywords: Psychiatry, Oncology Description: 20 Slides Last modified by – PowerPoint PPT presentation

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Title: Introducing "CancerStories


1
Introducing "CancerStories An Innovative Video
Diary Programme Providing Peer Support Online
Alex J Mitchell www.twitter.com/_alexjmitchell Co
nsultant in Psycho-oncology and Hon
SnR University Hospitals Leicester
2
We are currently looking for Evaluators (who
help rate) Partners (who help
distribute) Co-developers (who help expand) To
help us develop and improve cancerstories
3
What is Ideal Treatment?
  • Effective
  • Acceptable
  • Easily accessible (available)
  • Proven (evidence based)
  • Value for money

4
Ideal Treatment
  • Conventional
  • Psychosocial Rx.
  • Effective Often
  • Acceptable a little (40)
  • Easily accessible (available) No
  • Proven (evidence based) mostly
  • Value for money probably

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6
1000 Adv Cancer Patients in Denmark (Johnsen,
2013)
Johnsen Do advanced cancer patients in Denmark
receive the help they need? A nationally
representative survey of the need related to 12
frequent symptoms/problems Psychooncology. 2012
7
Is it time for a Treatment Revolution?
70 with distress do not receive timely
psychosocial treatment 60 do not want a
classical psychosocial intervention Provision of
services is patchy Community support often
unavailable
8
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11
Cancer Stories
power of online guided peer support
12
Overview of CancerStories!
13
CancerStories is a collection of true life
accounts of how real people coped with cancer
Hugh, Prostate Ca
14
CancerStories is about the persons own
account, what is meaningful to them,
how they coped
Virginia, Lung Ca
15
All patients have kindly given their consent to
record their account for the benefit of future
patients
Sue, Breast Ca
16
Patients are interviewed in an informal but
professional style and asked to give an
honest but informative account about their
cancer journey
Tom, Osteosarcoma
17
Accounts are between 30- 60mins, enough time to
tell others what is really important
Louisa, Breast Ca
18
Patients can share their own accounts with
family and friends before deciding to
share with the wider community
John, Prostate Ca
19
Each account is evaluated by a panel of
clinicians and also by other patients
Rupen, Lymphoma
20
Dissemination of CancerStories!
21
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23
Evaluation of CancerStories!
24
Evidence
  • Clinicians
  • Patients
  • Trial

25
Would CS be useful in your clinic?
Never
Very Often
Sometimes
5
10
0
8
26
How would you rate CS overall?
Poor
Outstanding
Average
5
10
0
9
27
Improvements to CancerStories
28
Improvements to CancerStories
Pain Fatigue Distress Depression Anxiety Weight/ea
ting Sleeping Families Work Caregivers Communicati
on Complementary rx
We are multiple developing 5 minute themes
29
Thanks to the patients of CancerStories!
Want to help? Get in touch Coping.with.cancer.uk_at_g
mail.com
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