Title: Antoni Montserrat, Eurostat E3May 20031
1- Disability Trends and social participation in the
European Union - Eurostat
- Unit E-3 Education, Health and Culture
- Luxembourg
2Eurostat Statistical Office of the European Union
- The European Statistical System (ESS) all the
government bodies which, at the various levels -
regional, national and Community - are
responsible for drawing up, processing and
disseminating the statistical information needed
for the economic and social life of the
Community. - The ESS is being developed according to the
principles of subsidiarity, partnership, transfer
of competence and consultation. - Tools The Statistical Programme Committee (SPC),
the various committees, working groups and task
forces organised by Eurostat Steering
Committee on Statistical Information (CDIS)
European Advisory Committee on Statistical
Information in the Economic and Social Spheres
(CEIES) - Council Regulation on Community Statistics (EC No
322/97 of 17 February 1997) was prepared with a
view to defining the rights and duties in the
sphere of Community statistics. This is also
known as the Community Statistical Law.
3Sources for disability data
- You cannot compare what is not comparable
- To compare and to analyse national data,
unavoidable steps - To inventoriate national sources (e.g. Eurostats
database of European Health Interview and Health
Examination Surveys (2001) and OECD inventory) - To harmonise data and metada
- To create methods of conversion
(post-harmonisation) when possible - To use European surveys (or modules) when
possible -
4Sources for disability data at EU and EEA level
- (1) Analysis of data on disability from national
health surveys in the EU (The HIS 18 items
project) - (2) The ECHP (European Community Household Panel)
- (3) The Labour Force Survey
- (4) The Eurobarometer
- (5) Administrative registers related to the
social protection schemes
5(1) Analysis of data on disability from national
health surveys in the EU
- Many EU countries perform regular health
interview surveys that contain indicators of
disability. In many instances, the questions
measuring these indicators are reasonably
similar, but data and results from these surveys
do not seem comparable without some form of
post-harmonization. - The following three disability indicators were
examined Self-perceived health, Long-standing
illness/chronic conditions, Long-standing
activity limitations. While not all are
indicators of disability on the strict sense, for
methodological reasons it is important to include
other health-related indicators. In order to
evaluate the comparability of disability
indicators, it is necessary to first determine
the dimensionality of the data, i.e. the
psychometric properties of self-reported items.
6(1) Analysis of data on disability from national
health surveys in the EU
- Response Conversion (RC) was developed within the
framework of the Health Monitoring Program (HMP)
of the European Commission, and its introduction
as a routine tool is currently being considered.
Conversion techniques are rather new and have
great potential for overcoming problems in
incomparability of outcomes of data based on
different classifications and/or scalings
(questions) many times reflecting cultural
differences. Response conversion (RC) is a novel
statistical technique that assists in comparing
data in several circumstances - 1. items on the same topic having different
formulations - 2. new items replacing old ones, thereby causing
a trend gap - 3. items with identical formulations but subject
to cultural response biases.
7(1) Analysis of data on disability from national
health surveys in the EU
8(2) The ECHP (European Community Household Panel)
- The ECHP is a longitudinal, multi-subject survey
covering many aspects of daily life, particularly
employment and income, but also demographic
characteristics, the environment, education and
health (i) simultaneous coverage of numerous
dimensions, (ii) a standardised methodology
producing comparable information for the Member
States of the European Union, and (iii) a
longitudinal or "panel" design - The ECHP sample covers some 60 000 households
comprising 130 000 adults aged 16 or over. - Period 1994-2002. The ECHP contains several
questions on health, including questions on
restrictions on everyday activities caused by a
health problem and difficulties in daily life.
9(2) The ECHP (European Community Household Panel)
- The reference questions are
- Q158 Do you have any chronic physical or mental
health problem, illness or disability? - Q159 Are you hampered in your daily activities
by this chronic physical or mental health
problem, illness or disability? Yes, severely /
Yes, to some extent / No
10(3) The Labour Force Survey
- The Labour Force Survey (LFS) was established
under Council Regulation 3711/91/EEC, of 16
December 1991. Since 1995 it has covered 15
Member States and 700 000 private households. The
concepts and definitions have been
internationally agreed. The degree of
comparability among Member States is considerably
higher than that of any other set of statistics
on un/employment. - A LFS is an inquiry directed to households,
designed to obtain information on the labour
market and related issues by means of personal
interviews. As it would clearly involve
considerable expense to include all households
(as in population censuses) labour force surveys
are usually confined to a sample of households,
the actual size of which depends primarily on the
level of detail required in the survey estimates.
11(3) The Labour Force Survey
- Disability variable construction on current LFS
- variable working status,which has three outcomes
(inactive, employed, and unemployed). - Inactive due to own illness or disability was
based on the Eurostat variable seeking employment
during previous four weeks. - If the respondent answered that he/she was not
seeking work due to own illness or disability,
the person was defined as disabled. Two
additional response categories include seeking
employment and not seeking employment due to
other reasons.
12(3) The Labour Force Survey
- Specification of the 2002 LFS ad hoc moduleon
employment of disabled people - The ongoing review of the International
Classification of Impairments, Disabilities and
Handicaps (ICIDH2) defines disability as activity
limitations in performing daily tasks, which
include working, and such activities may be
limited in their nature, duration and quality. In
this context the module on disability focuses on
restriction of activities rather than functional
limitations.
13(3) The Labour Force Survey
- Type of health problem or disability (Code main
problem) - 1. Problems with arms or hands (which includes
arthritis or rheumatism). - 2. Problems with legs or feet (which includes
arthritis or rheumatism) - 3. Problems with back or neck (which includes
arthritis or rheumatism). - 4 Difficulty in seeing (with glasses or contact
lenses if worn). - 5. Difficulties in hearing (with hearing aids or
grommets, if used. - 6. Speech impediment.
- 7. Skin conditions, including severe
disfigurement, allergies. - 8. Chest or breathing problems, includes asthma
and bronchitis. - 9. Heart, blood pressure or circulation problems.
- 10. Stomach, liver, kidney or digestive problems.
- 11. Diabetes.
- 12. Epilepsy (include fits)
- 13. Mental, nervous or emotional problems
- 14 Other progressive illnesses (which include
cancers NOS, MS, HIV, Parkinsons disease)
14(No Transcript)
15(4) The Eurobarometer Survey
- Twice a year the European Commission conducts the
Eurobarometer survey in order to gather
information on the attitudes of the population
towards EU and its policy. - Each year additional questions about specific
subjects are appended to the questionnaire. - A two- stage sampling method is used. In the
first stage a random selection of sampling points
within each region is made in such a way that
urban and rural areas are represented
proportionally. This selection results in 1 350
sampling points. In the second stage interviews
are distributed in this sampling points - Because quota sampling dominated, non-response
figures are not available. - People who are rarely at home are less
represented in the sample but the interview
sample can be considered as representative for
the category of average citizens who are
accessible at home and who agree to be
interviewed.
16(4) The Eurobarometer Survey
- 2 waves/year, Winter 2003 is wave 59
- Sample 1 000 per 15 MS, (D2 000, L600, UK1
300) EU16 000 - ages gt15
- 95 confidence limits (estimates)
- N 1000 250 16000
- 50 3.1 6.2 0.8
- 40 or 60 3.0 6.0 0.8
- 30 or 70 2.7 5.4 0.7
- 20 or 80 2.5 5.0 0.6
- 10 or 90 1.9 3.8 0.5
- 3 or 97 1.0 2.0 0.3
17(5) Administrative registers related to the
social protection schemes
- Social protection encompasses all interventions
from public or private bodies intended to relieve
households and individuals of the burden of a
defined set of risks or needs, provided that
there is neither a simultaneous reciprocal nor
an individual arrangement involved. - The data on social protection expenditure and
receipts for Member states of the EU are
presented by Eurostat according to the European
system of integrated social protection statistics
(ESSPROS). - This harmonised system provides a means to
analyse and to compare the relevant financial
flows. - Expenditure on social protection schemes social
benefits, administration costs, transfers to
other schemes and other expenditure. - Social benefits consist of transfers, in cash or
in kind, by social protection schemes, to
households or individuals to relieve them of the
burden of risks or needs. - Social benefits are classified by function (such
as the disability function),
18(5) Administrative registers related to the
social protection schemes
- Disability function in ESSPROS is defined as
- Income maintenance and support in cash or kind
(except health care) in connection of the
inability of physically or mentally disabled
people to engage in economic and social activity
19(5) Administrative registers related to the
social protection schemes
20(5) Administrative registers related to the
social protection schemes
- Benefits in kind (disability)
- Accommodation provision of lodging and possibly
board to disabled people in appropriate
establishments. - Assistance in carrying out daily tasks practical
help provided to disabled people to assist them
with daily tasks. Home help is included in this
category, as well as the payment of an allowance
to the person who looks after the disabled
person. - Rehabilitation provision of specific goods and
services (other than medical care) and vocational
training to further the occupational and social
rehabilitation of disabled people. These services
may be provided in specialised institutions.
Goods and services may be provided by an
employer, but if they are mainly to service the
production process of the enterprise, they should
not be included. Medical rehabilitation - such as
physiotherapy - is included in the
Sickness/health care function. - Other benefits in kind miscellaneous services
and goods provided to disabled people to enable
them to participate in leisure and cultural
activities, or to travel and/or to participate in
community life, including reduced prices,
tariffs, fares, and so on granted to disabled
people expressly for social protection reasons.
21Disability Trends Percentage of the population
reporting disability in EU (source ECHP 1999)
22Percentage of the population reporting severe and
moderate disability in 14 EU countries, age group
16 - 64, 1999
23Percentage of the population reporting severe and
moderate disability in 14 EU countries, age group
16 - 64, 1999 - Men
24Percentage of the population reporting severe and
moderate disability in 14 EU countries, age group
16 - 64, 1999 - Women
25Age specific percentages of reporting disability,
all levels combined, in the 14 EU countries, age
group 16 - 64, 1999
26Age structure of the populations reporting
severe, moderate and no disability, EU-14, 1999
27Probability of having achieved the third level of
education or less than the second level of
education as highest level for the population
with severe, moderate and no disability, ages 16
- 64, EU-14,1999
28Distribution of the population with severe,
moderate and no disability according to activity
status, age groups 16 - 64 and 25 - 59, EU-14,
1999
29Relative probability of being in work for those
with moderate or no disability compared to those
with a severe disability (base 1), by sex, age
groups 16 - 64 and 25 - 59, EU-14, 1999
30Percentage in work and inactive of the
populations with severe, moderate and no
disability, by age , EU-14, 1999
31Main reason for not seeking work for those
inactive among the populations with severe,
moderate and no disability, EU-14, age 16 - 64,
1999
32Percentage of persons who work less than 15
hours per week, between 15 and 30 hours per week,
and more than 30 hours per week (when working) in
the populations with severe, moderate and no
disability, by sex, EU-14, age 16 - 64, 1999
33Distribution of the populations with severe,
moderate and no disability (and in work)
according to sectors of activity, age 16 - 64,
EU-14, 1999
34Source of income of the populations with severe,
moderate and no disability at working age (16 -
64 years), EU-14, 1999
35Percentage of those receiving sickness or
disability benefits among the population groups
with severe, moderate and no disability at
working age (16 - 64 years), by country
(confidential information in Germany), 1999
36Percentage of those satisfied with their main
activity among the population groups with severe,
moderate and no disability, age 16 - 64, EU-14,
1999
37Own perception of health in the populations with
severe, moderate and no disability, EU-14, 1999
38The Labour Force Survey
39The Labour Force Survey
40Eurobarometer survey Persons suffering chronic
ilness, 2002
41Eurobarometer survey Income related incidence of
chronic ilness
42Eurobarometer survey limitations in daily life,
2002
43The Eurobarometer 54.2 survey, asked participants
about their attitudes towards disability in 2001
- Close to six Europeans out of ten know someone,
in close or more distant circles, who is affected
by a long lasting illness, disability or
invalidity. More than 5 of EU citizens consider
themselves as a disabled person. - 76 of EU15 respondents think that the access
for blind people to basic public equipment and
events is difficult. - 73 believe that it is too difficult for
intellectually disabled people, 71 for the
physically disabled, and 54 for deaf people.
However 57 of respondents consider that the
access to public spaces for people with
disabilities has been improving in the course of
the last 10 years. - 66 of EU15 respondents consider that local
authorities are the ones truly responsible for
improving access to public spaces for people with
disabilities. 55 think that it is the
government, 30 employers companies and 28
voluntary or charitable organisations. The
European Union comes in 5th position with 16. - 97 of EU15 respondents think that something
should be done to ensure a better integration of
people with disabilities into society. 93
express the desire to dedicate more money to the
removal of physical barriers that complicate the
life of people with disabilities.
44The Eurobarometer 54.2 survey, asked
participants about their attitudes towards
disability in 2001 Percentage knowing somebody
with a a long lasting illness, disability or
invalidity
45The Eurobarometer 54.2 survey, asked
participants about their attitudes towards
disability in 2001 access to public spaces
Average (1 'not at all difficult', 2 'not very
difficult', 3 'fairly difficult', 4 'very
difficult')
46Attitudes of Europeans towards disability
knowledge of Europeans regarding disabilities,
EU-15, 2001
47ESPROSS Expenditure (social protection) in
disability functions (Euro per inhabitant, 1995
constant prices), 2000
48An international effort to improve quality on
disability statistics
- United Nations Washington City Group on
Disability Statistics - (www.cdc.gov/nchs/citygroup.htm)
- As a result of the United Nations International
Seminar on Measurement of Disability (New York,
June 2001) it was recognized that statistical and
methodological work is needed at an international
level in order to facilitate comparison of
disability data crossnationally. For this reason
the UN Statistics Division authorized the
formation of a City Group. - Next Meeting of the Washington City Group in
Europe in the fall of 2003, in recognition of the
European Year of People with Disabilities. - This meeting has the following objectives
49An international effort to improve quality on
disability statistics
- to complete the matrix linking various purposes
of disability measurement with question
characteristics evaluation of measures currently
in use and test results - to explore and discuss the sets of measures
related to the general measures with special
attention for activity (limitations) vs.
participation (restrictions) and environmental
factors (ICF terms and concepts) - to discuss the methodological areas like special
populations (e.g. mental health problems) and use
of administrative data (alone or in conjunction
with census/survey data). - European Disability Measurement (EDM) project
(www.tno.nl)
50Thank youkæra þökk!
- Eurostat
- http//europa.eu.int/comm/eurostat/