Public Health Data Standards: Partner Perspectives

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Public Health Data Standards Partner Perspectives

• National Association of Health Data Organizations
• Denise Love
• March 17, 2004

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NAHDOs Standards Perspective

• Public health is broader than communicable
  disease reporting and epidemiology
• The source of public healths data is the private
  sector
• Technological and political barriers require
  innovative solutions
• The Public Health Data Standards Consortium is
  unique---composed of organizations representing
  diverse niches of expertise

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NAHDO and Standards

• NAHDO is actively engaged in health care data
  standards activities
• State health care data systems are based on UB-92
  or the UHDDS plus local fields
• State health care data needs are evolving
• e.g. nosocomial infections, race/ethnicity
• Pharmacy, patient safety, and outpatient data
  initiatives
• Balancing reporting burden with benefits
• Reasonable and appropriate reporting requirements
• Industry gets something in return or buys into
  the public good

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UB-92-based Reporting Plus Fields added
by States and Tracked by NAHDO
Data elements in red/bold are sought by National
Purchasers for Quality
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NAHDOs Standards Activities Support our Base
Constituencies

• AHRQ/HCUP National Data Standards Project
  (listserv, technical assistance)
• NCHS/CDC Education materials for Health Data
  Reporting Guide and E-codes
• AHRQ and CDC funding for NAHDOs National
  Standards Consultant to attend NUBC, X12N, HL7
• Consulting with Consumer-Purchaser Disclosure
  Group to expand UB-04 to support quality-based
  purchasing
• National testimony on state positions
• Training Workshops teleconferences and in-person
  funded by CDC, AHRQ/BRIC, membership funds

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NAHDOs National Standards Consultant
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How the Consortium Fits with NAHDOs Standards
Initiatives

• NAHDO seeks Consortium support for its members
  health care data agenda
• NAHDO is a founding member of Public Health Data
  Standards Consortium
• The Consortium has the power
• To address cross-cutting standards issues
• To combine voices around critical data needs
• Examples
• Unique patient identifier
• Independent assessment of the PHIN and NHII

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The Challenge

• Identifying the business model and its niche vis
  a vis other associations
• Remaining flexible to rapidly respond to evolving
  issues
• Anticipating the future proactive vs. reactive