EUROPA UOMO The European Prostate Cancer Patients Coalition

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EUROPA UOMO The European Prostate
Cancer Patients Coalition
L. Denis Monaco, October 6,2006
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Europa Uomo Who?

• Coalition of 18 National/Regional Prostate Cancer
  Patient Organisations.
• Legal, non government (NGO).
• Membership Legal registration
• Patient support activities
• Agree manifesto
• OCA, 2006

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Manifesto (I)

• 1. To find ways and means to promote quality of
  life for prostate cancer patients and their
  families.
• 2. To promote the dissemination and exchange of
  evidence-based information on prostate cancer.
• To promote prostate awareness and appropriate
  diagnosis and prognosis.
• Keywords QoL, Evidence-based, Awareness
• OCA 2006

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Manifesto (II)

• 4. To emphasise the need for appropriate early
  detection.
• 5. To campaign for provision of and access to
  optimum treatment.
• 6. To ensure quality supportive care
• throughout and after treatment.
• To promote multiprofessional quality care and
  appropriate medical infrastructure.
• Keywords Early detection, optimal treatment,
• quality multiprofessional care
• OCA, 2006

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Manifesto (III)

• 8. To acknowledge good clinical practice and
  promote its development.
• 9. To ensure that all men fully understand any
  proposed treatment options, including entry into
  clinical trials and their right to a second
  opinion.
• To promote the advancement of prostate cancer
  research.
• Keywords Good clinical practice, clinical
  trials,
• prostate cancer research
• OCA, 2006

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HOLISTIC MEANSOptimal Medical Treatment

• We need information, education.
• Multiprofessional expertise and patience
  required.
• Patient Centered Care
• We need psychological, emotional, social support
  / contact required.

OCA, 2006
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The Lost Patient
Contradictory information (doctor, media, friends)
A lot of experts
Statistics Outcomes not comparable
?
Unflexible guidelines Evidence Based Oncology
Loss of personality in the process
OCA, 2005
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Doctor/Patient Partnership

• Expectations One shop info stop
• Clear choice and control
• Time to decide
• Outcomes and QoL
• Access to clinical trials
• Contact multiprofessional team
• Results Informed, involved patient
• Prostate passport
• Patient satisfaction
• Patient defined QoL
• Discipline and political support
• Overall progress medical care

OCA, 2006
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Europa Uomo Partnerships

• European School of Oncology 2004
• International Consultation Urological
  Diseases 2004
• European Coalition Cancer Patients 2004
• European Association of Urology 2005
• International Prostate Health Council 2005
• European Society Medical Oncologists 2006
• International Union Against Cancer 2006
• Global Prostate Health Coalition 2006

OCA, 2006
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Our immediate request

• Support/create patient organisations
• Early diagnosis vs. overtreatment
• Carefull choice of primary treatment based on
  available prognostic factors
• Prevention metastatic disease
• Sustained hope of HRPC treatment

OCA, 2006
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• The survival of the Hippocratic oath and patient
  respect in the complexity of medical technology
  and multiprofessional care remain an integral
  part of our civilization and medical progress.

OCA, 2006
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Europa Uomo Secretariat OCALange Gasthuisstraat
35-372000 Antwerp BELGIUMTel.
32.3.223.53.54Fax. [phone]E-mail
louis.denis_at_skynet.beWeb www.cancerworld.org/eur
opauomo