Chronic Disease Prevention and Management in Miawpukek First Nation

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Chronic Disease Prevention and Management in
Miawpukek First Nation

• Needs Assessment for Information Management and
  Analysis System
• Theresa OKeefe, Director, Conne River Health and
  Social Services
• Susan Hollett, President, Hollett and Sons Inc.
• Joanne Hussey, Research Consultant, Hollett and
  Sons Inc.

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ACKNOWLEDGEMENTS

• Funding for project provided by Chronic Disease
  Prevention Division, First Nations Inuit Health
  Branch, Health Canada
• Contributions to content review
• staff of Health Information Analysis E-Health
  Solutions of First Nations Inuit Health Branch of
  Health Canada Atlantic
• Health Information Network Branch of
  Newfoundland Labrador Centre for Health
  Information (NLCHI)
• CRHSS Staff

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Purpose of Project

• The purpose of this project was to complete a
  Needs Assessment of the information collected
  analysed for Chronic Diseases in Conne River
• It represents the first phase in establishing a
  Health Information System HIS for Conne River
• The overall development of a HIS has been divided
  into two phases
• Phase One Needs Assessment plan
• Phase Two Implementation strategy work plan
• This presentation deals with Phase One as well as
  providing recommendations for Phase two

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Presentation Overview
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Miawpukek First NationConne River, Newfoundland
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Miawpukek First Nation Conne River
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Miawpukek First Nation Conne River
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Profile of Conne RiverPopulation870 on-reserve
1900 off-reserve
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Economic and Social Conditions
Social conditions are good to very good,
housing is adequate, roads are paved well
maintained, school, daycare, youth center, band
administration, ambulance fire fighting
services, church employment is high based on a
work for welfare program for 2004 personal
income per capita for province was 20,600 in
Conne River it was 12,300
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Education status in Conne River based on 2001
Census
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Chronic Diseases according to Public Health
Agency of Canada (PAC) for NL
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Organization ChartConne River Health and Social
Services
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Community Satisfaction

• Band members satisfaction with selected CRHSS
  programs

• Non-band members satisfaction with selected CRHSS
  programs

These survey results come from a program
evaluation completed in 2006. Low levels of
satisfaction reveal a lack of awareness of
certain programming as opposed to lack of
satisfaction. Overall, high satisfaction level
with programs.
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Objectives and Methodology
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Current Information Management and Reporting
Structure Three Areas
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Technical

• Majority of information is in paper form stored
  in multiple filing systems time consuming to
  retrieve
• Some electronic reports are fed directly into
  provincial or federal government systems but are
  not reported back to the community there is a
  lack of two way sharing
• Daily computer use is the norm with program staff
  as seen in chart below

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Behaviour of Individuals

• Staff reported a low level of satisfaction with
  current system for collecting information (57
  surveyed not satisfied) many reports, duplicate
  reporting, filling out forms based on volume

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Organizational Context Internal
Reporting Practices

• Solid lines - sharing
• Broken lines partial sharing
• Loss of data collected

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Organizational Context External
Reporting Practices
Solid line sharing Broken line partial
sharing Loss of information No feedback
loops
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Organizational ContextGoal of Integrated
Information Management Flow
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Building the Foundation for a HIS Involves
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Causal links between Risk Factors
Chronic Diseases
The prevalence of these behaviours is a
powerful indicator of the risk a population
faces for developing Chronic diseases
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Potential Impact of
Health Promotion Strategies Chronic
Diseases
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Needs Assessment Findings
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Recommendation 1 Develop and Secure funding
for a Health Information System for CRHSS
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Recommendation 2 Encourage ongoing community
support
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Recommendation 3 Improve information sharing
relationships
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Recommendation 4 Designate Responsibility for
HIS
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Recommendation 5 Develop individual staff
training plans
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Recommendation 6 Revise job descriptions to
reflect responsibilities for data analysis and
information use
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Recommendation 7 Develop standards for data
collection, analysis and reporting
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Recommendation 8 Develop standards for
information use
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Recommendation 9 Establish Chronic Disease
Indicators
Common Risk Factors
Indicators
The majority of this information is being
recorded by CRHSS, plus some historical data may
be available if manual analysis is done with
the data
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Recommendation 10 Establish baselines
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Recommendation 11 Update CRHSS Community
Health Plan to include HIS
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Recommendation 12 Develop Appropriate Privacy
Confidentiality Measures
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Recommendation 13 Pursue development of a
Health Technology Plan for CRHSS
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