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Psychological Correlates of Perceived Stigma in a NonClinical Sample

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Title: Psychological Correlates of Perceived Stigma in a NonClinical Sample


1
Psychological Correlates of Perceived Stigma in a
Non-Clinical Sample
  • Maeve Proctor
  • Roger Woodward
  • University of Ulster
  • presenting author eveamp_at_gmail.com

2
Abstract
  • Research over the past number of decades
    indicates that individuals with mental health
    difficulties are likely to encounter
    discrimination and stigma in their lives.
    Modified labelling theory suggests that
    expectations of rejection may work to generate
    negative outcomes for these individuals. It has
    been noted that in this way stigma can act as a
    barrier to recovery and rehabilitation. Through
    the use of a postal questionnaire this study
    aimed to explore the psychological consequences
    for individuals who experience stigma.
    Ninety-four volunteers from the general public
    completed a battery of questionnaires. Results
    indicate that perceived experiences of stigma and
    discrimination were related to higher levels of
    shame, lower levels of positive mood and poor
    self-esteem. Expectations of rejection were found
    to mediate the relationship between stigma and
    psychological outcomes in some cases. The
    clinical implications for those working with
    individuals experiencing stigma and directions
    for future research are also discussed.

3
What is Stigma?
  • Stigma is
  • A social construction that defines people in
    terms of a distinguishing characteristic or mark
    and devalues them as a consequence.
  • Dinos et al. (2004) p176

4
Stigma and Mental Health
  • In a study by Crisp et al. (2000) participants
    agreed that individuals with mental health
    difficulties were dangerous, unpredictable, hard
    to talk to, have only themselves to blame, and
    could pull themselves together if they wanted to.

5
Community Integration
  • Kelly and McKenna (1997) argue that there is a
    real danger that seclusion within institutions
    will be eliminated only to be replaced with a
    different form of seclusion within the community.
  • Prince and Prince (2002) point out that even
    when individuals do manage to participate
    sufficiently to experience physical and social
    integration, they often have difficulties in
    achieving psychological integration due to their
    perceptions of victimisation and stigmatisation.

6
Expectations of Rejection
  • Modified labelling theory (Link 1989) proposes
    that negative outcomes for those with mental
    health problems are the result of a process
    consisting of several steps.
  • Firstly, the individual concerned develops an
    internalised model of societal beliefs of what it
    means to be mentally unwell. This involves
    beliefs about the devaluation of and
    discrimination against the mentally ill.
  • If the individual then receives a label of mental
    illness themselves, these internalised beliefs
    become personally relevant. It now matters if the
    individual believed that society would devalue or
    reject persons with mental health problems.
  • The individual will then respond to the
    experience of being labelled. This may involve a
    range of reactions such as withdrawal, secrecy
    and educating others. Outcomes arise as a result
    of beliefs as well as reactions. These outcomes
    may include social isolation or poor self-esteem.

7
Outcomes of Stigma
  • Self-Esteem Studies show conflicting results-
    self-estem may be damaged (Nese-Todd et al. 2001)
    or relatively protected (Crocker et al. 1993) by
    the experience of stigma
  • Anxiety Stigma has been related to higher levels
    of anxiety (Gilman et al. 2001). The anxiety of
    disclosure appears to be particularly pertinent
    for those with mental health problems (?sbring
    and Närvänen 2002)

8
Outcomes of Stigma continued..
  • Mood Low mood has often been associated with the
    experience of stigma e.g. Lee et al. (2005) have
    found that over half of respondents reported
    feelings of worthlessness due to the stigma of
    their psychotic illness and almost 44 had
    considered suicide.
  • Shame Dinos et al. (2004) found that individuals
    with mental illnesses were likely to feel guilt
    and embarrassment as a result of stigmatising
    experiences.

9
Method
  • This study was carried out by means of a postal
    questionnaire. Notices were placed in a variety
    of community settings asking for participants.
    These settings including third-level colleges and
    universities in the Dublin region, a variety of
    support groups, community health centres, gyms,
    libraries and online community websites.

10
Participants
  • One hundred and thirty one questionnaires were
    sent to volunteers who expressed a desire to
    participate in the study. Ninety-four
    participants (72) completed and returned
    questionnaires between October 2006 and January
    2007.

11
Outcome Measures Used
  • Harveys Stigma Scale
  • The Schedule of Racist Events
  • Devaluation-Discrimination Scale
  • Penn State Worry Questionnaire
  • Positive and Negative Affect Schedule
  • The Experience of Shame Scale
  • Rosenberg Self-Esteem Scale
  • Brief COPE
  • Personal Details Form

12
Results and Discussion
  • Participants who experienced Discrimination
    52.7
  • Participants who had experienced discrimination
    who felt stigmatised as a result 46.9
  • Most common reason for feeling stigmatised A
    combination of two or more reasons!
  • Reasons cited for experiencing stigma sexuality,
    academic ability, job status, financial status,
    unemployment, religious beliefs, smoking, age,
    political beliefs, gender, race, family
    background, mental health, physical health, and
    disability.

13
Stigma and Outcome Variables
  • Stigma was found to have significant
    relationships with poor self-esteem, low levels
    of positive mood, and high levels of shame.
  • Crocker and Major (2003) suggested that
    individuals who felt personally responsible for
    the stigma they experienced were more likely to
    experience low self-esteem. Although individuals
    in this study were readily able to identify the
    factors behind the discrimination they had
    experienced e.g. appearance, it is possible that
    they felt a sense of personal responsibility for
    these issues. This would be likely to lead the
    individual to feel less worthy of positive
    outcomes, thus impacting negatively on their
    self-esteem.

14
Stigma and Outcome Variables Continued..
  • Negative mood was not shown to be related to
    stigma. Therefore, the results of this study
    cannot be said to support the previous literature
    in the area, which shows a link between low mood
    and stigma.
  • The significant findings in relation to positive
    mood, but not with regard to negative mood, in
    this study may indicate a lessened capacity for
    positive emotion for those who are stigmatised.
    This may occur even in the absence of mood
    difficulties. The findings of the study are still
    of concern as positive mood has been shown to
    play a role in mental health, particularly in
    terms of recovery (MacLeod and Moore 2000).
    Folkman and Moskowitz (2000) suggest that
    positive emotions may play a functional role
    during stress and may aid coping. Thus, the fact
    that stigma appears to be related to lower levels
    of positive mood is of note.

15
Stigma and Outcome Variables Continued..
  • It would appear that those individuals who feel
    they do not live up to societal expectations are
    likely to experience shame (Miller and Mason
    2005). This would appear to tie-in with
    suggestions posed in relation to self-esteem,
    i.e. attributions of personal deservingness
    bringing about higher levels of shame

16
Stigma and Outcome Variables Continued..
  • Much of the literature looking at anxiety in this
    area has focused on issues that may be specific
    to particular types of stigma e.g. disclosure
    about ones stigmatising condition. It is
    possible that the more anxiety-provoking aspects
    of stigma were not prominent in this study.

17
Other findings
  • The results in terms of discrimination follow a
    similar pattern to those obtained in relation to
    stigma
  • Rejection was found to mediate the relationship
    between stigma and the outcome variables of
    anxiety, shame and positive mood.

18
Possible Clinical Implications
  • In this study stigma and discrimination were
    found to be linked to poor self-esteem, lower
    positive mood and higher levels of shame. These
    difficulties are likely to impact on an
    individuals lifestyle and social functioning.
    The difficulties outlined here may be even more
    pronounced within a mental health population.

19
Possible Clinical Implications Continued..
  • We can see that issues such as self-esteem, shame
    and mood should therefore be addressed within
    populations who experience stigma when offering
    them health services.
  • Poor self-esteem, high levels of shame and
    lowered positive mood may also serve to compound
    already existing psychological difficulties. This
    may need to be teased out and addressed
    separately if necessary.
  • Given that shame and embarrassment can persist
    despite effective treatment of the illness that
    causes them (Miller and Mason 2005) it is of
    particular importance that this issue be
    addressed separately.

20
Possible Clinical Implications Continued..
  • Given that discrimination was associated with
    similar outcomes to those obtained in relation to
    stigma we need to be mindful of similar issues
    when working with individuals who have
    experienced discrimination. Individuals who find
    discriminatory experiences more stressful and
    those who perceive that their lives would be more
    different if it were not for the discrimination
    are more likely to experience shame and to have
    higher levels of stigmatisation and higher
    expectations of rejection. These factors can
    therefore be used clinically as a potential
    marker of greater difficulties in these areas.

21
Possible Clinical Implications Continued..
  • Some of the difficulties outlined here have been
    seen to be barriers to treatment. Shame, poor
    self-esteem and the preception of stigma itself
    have been highlighted as significant obstacles
    to initiating and maintaining treatment (Ehrim
    2001, Wahl 1999, Sirey et al. 2001 ).
  • Given that this is the case it is important for
    services to address these issues with their
    clients and patients from the outset of their
    involvement.
  • It would also appear that there is a need for
    less traditional forms of service that may serve
    to cater for individuals who find it difficult to
    engage with more conventional services. Assertive
    outreach is an example of the types of service
    option that has been found to cater for patients
    who find it difficult to engage (Meaden,
    Nithsdale, Rose, Smith, and Jones 2004).

22
PossibleClinical Implications Continued..
  • This study has highlighted the role that
    expectations of rejection may play in
    perpetuating the difficulties caused by
    experiences of stigma and discrimination. This is
    an issue that needs to be addressed within the
    wider community.
  • Previous programmes attempting this task have
    shown benefits within target groups (Gaebel and
    Baumann 2003) but further work is needed to
    generalise these gains to the wider community.
  • For the individual who has already experienced
    these difficulties and developed these
    expectations, we need to offer them strategies to
    manage these challenges and assistance in dealing
    with the problems they bring about.

23
References
  • Dinos, S, Stevens, S, Serfaty, M, Weich, S. and
    King, M. (2004) Stigma the feelings and
    experiences of 46 people with mental illness.
    British Journal of Psychiatry. 184, 176-181
  • Crisp, AH, Gelder, MG, Rix, S, Meltzer, HI. and
    Rowlands, OJ. (2000) Stigmatisation of people
    with mental illnesses. British Journal of
    Psychiatry. 177, 4-7
  • Kelly, LS. and McKenna, HP. (1997) Victimisation
    of people with enduring mental illness in the
    community. Journal of Psychiatric and Mental
    Health Nursing. 4, 185-191
  • Prince, PN. and Prince, CR. (2002) Perceived
    stigma and community integration among clients of
    assertive community treatment. Psychiatric
    Rehabilitation Journal. 25(4), 323-331
  • Link, BG. (1987) Understanding labelling effects
    in the area of mental disorders An assessment of
    the effects of expectations of rejection.
    American Sociological Review. 52, 96-112
  • Crocker, J, Cornwell, B. and Major, B. (1993) The
    stigma of overweight Affective consequences of
    attributional ambiguity. Journal of Personality
    and Social Psychology. 64(1), 60-70
  • Gilman, SE, Cochran, SD, Mays, VM, Hughes, M,
    Ostrow, S. and Kessler, RC. (2001) Risks of
    psychiatric disorders among individuals reporting
    same-sex sexual partners in the National
    Comorbidity Survey. American Journal of Public
    Health. 91, 933- 939
  • ?sbring, P. and Närvänen, A-L. (2002) Womens
    experiences of stigma in relation to chronic
    fatigue syndrome and fibromyalgia. Qualitative
    Health Research. 12(2), 148-160

24
References
  • Lee, S, Lee, MTY, Chiu, MYL. and Kleinman, A.
    (2005) Experience of social stigma by people with
    schizophrenia in Hong Kong. British Journal of
    Psychiatry. 186,
  • 153-157
  • MacLeod, AK. And Moore, R. (2000) Positive
    thinking revisited Positive cognitions,
    well-being and mental health. Clinical Psychology
    and Psychotherapy. 7, 1-10
  • MacLeod, AK. And Moore, R. (2000) Positive
    thinking revisited Positive cognitions,
    well-being and mental health. Clinical Psychology
    and Psychotherapy. 7, 1-10
  • Miller, R. and Mason, SE. (2005) Shame and guilt
    in first-episode schizophrenia and
    schizoaffective disorders. Journal of
    contemporary psychotherapy. 35(2), 211- 221
  • Ehrmin, JT. (2001) Unresolved feelings of guilt
    and shame in the maternal role with
    substance-dependant African-American women.
    Journal of Nursing Scholarship. 33(1), 47-52
  • Wahl, OF. (1999) Mental Health Consumers
    Experience of Stigma. Schizophrenia Bulletin.
    25(3) 467-478
  • Sirey, JA, Bruce, ML, Alexopolous, GS, Friedman,
    SJ. and Meyers, BS. (2001) Perceived stigma and
    patient-related severity of illness as predictors
    of antidepressant drug adherence. Psychiatric
    Services. 52(12), 1615- 1620
  • Meaden, A, Nithsdale, V, Rose, C, Smith, J, and
    Jones, C. (2004) Is engagement associated with
    outcome in assertive outreach? Journal of Mental
    Health. 13(4), 415-424
  • Gaebel, W. and Baumann, AE. Interventions to
    reduce the stigma associated with severe mental
    illness Experiences from the open the doors
    programme in Germany. The Canadian Journal of
    Psychiatry. 48(10), 657-662
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