Last Updated 180405

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Lung Cancer Data Project LUCADA Network
Progress / User Experiences
Simon Pearce Network Information Analyst

• (Last Updated 18/04/05)

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Merseyside Cheshire Cancer Network Network
Role (I)
Network Primary ContactSimon Pearce MCCN
Data Analyst

• Coordinating role, dealing with queries and
  communications concerning the audit across
  network,
• Presentation of analysis / progress to Lung
  Clinical Network Group CNG,
• Leading Implementation and facilitated the User
  Certification form for MCCN Open Exeter
  Lucada Access.

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Merseyside Cheshire Cancer Network Network
Role (II)
Network Participation Unisoft LCMS
SoftwareLung Cancer Management System Unisoft
Lucada Extract Module
25/08/04 Phase 2 September 2004 - Unisoft
released a Lucada Extract Module for LCMS V6.
October 2004 - 7 Trusts within MCCN have
extract module added to their LCMS. 2 Trusts
will generate the upload file from Integrated
PAS Systems.
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Merseyside Cheshire Cancer NetworkNetwork Role
(III) a

• Acute Trusts-
• University Hospital Aintree
• The Countess of Chester
• North Cheshire (Halton Warrington)
• Royal Liverpool University Hospital
• Southport Ormskirk
• St Helens Knowsley
• Wirral
• Tertiary Centres-
• Cardiothoracic Centre - CTC
• Clatterbridge Centre for Oncology - CCO

Unisoft Users with Lucada Extract Module - (CSV
upload). Contribute by other means. (CSV file
created from other sources).
Submitted patients to audit. Denotes willing
to take part ASAP
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How Did We Get Here?
Merseyside Cheshire Cancer NetworkNetwork Role
(III) b

• The Clinical Network Group CNG for Lung Cancer
  was formed in October 1999 and selected Unisoft
  as their common supplier,
• RCP Dataset has routinely been collected since
  April 2000 for local audits and reported
  centrally to Network Analyst since October 2000,
• LUCADA Dataset subset of RCP CORE Dataset

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Merseyside Cheshire Cancer NetworkNetwork Role
(IV)

• Supported central funding for Unisoft software,
• Communicated aims clearly through several layers
  of management to people of varying status across
  the Network,
• Analysed team structure / Job Descriptions
  inline with MDT setup,
• to Coordinate workload, (NCASP Projects, CWT,
  Local Audit etc).
• Process mapped patient pathways to understand
  data flows,(locally over multiple sites).
• Encouraged our users to use CSV upload, instead
  of manual entry,
• Developed an interactive CD-Rom Resource
  pack.

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Merseyside Cheshire Cancer NetworkNetwork Role
(V) a
Resource Pack
Read Slide 8, if video doesnt play
8
Merseyside Cheshire Cancer NetworkNetwork Role
(V) b

• Lucada Dataset,
• RCP Dataset (Local Audit),
• Data Dictionaries,Help Files,
• Internet Links,
• Collection Strategies / Stages
• NICE Guidelines,
• Contact Names across MCCN

CD-ROM - Resource Pack
TNM, Co-morbidity
The Pack also contains other tumour specialities
-
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Merseyside Cheshire Cancer Network Trust Role
Good Practice / Experience (I)
Lung Cancer Audit Assistant /(LCAA) / MDT
Co-Ordinator, hands on role, working on a
day-to day basis for the audit, Structure /
Responsibilities Vary / Overlap across the
MCCN, Reviewed by Agenda For Change.
Local Primary Contacts
General Data Structure
Cancer ServicesManager
Network Primary Contact
Clinical Lead
Data Manager
CWT DataLucadaLocal Audits
LCAA
LCAA
LCAA
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Merseyside Cheshire Cancer Network Trust Role
Good Practice / Experience (II)

• Identify cases for discussion and obtain case
  notes for MDT Meeting,
• Identify patients newly diagnosed with Lung
  Cancer. Through various sources - Outpatient
  clinics, wards, CNS
• Patient Identification achieved through
  pathology
• Link in palliative care to pick up referrals
  (Administered in Acute Trust)
• Reports of all positive histologies are sent out
  every month to CNS and MDT Co-Ordinator, Close
  links with Lung CNS MDT Co-Ordinator, (Data
  Validation)
• Radiology early warning System (Suspicious
  x-ray).

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Merseyside Cheshire Cancer Network Trust Role
Good Practice / Experience (III)
Unisoft LCMS - Lucada Extract Module.
Red New Fields Unique to Lucada ltgt currently
in LCMS. Blue Filtered from RCP Core
Datasetwithin LCMS. Flagged for exportOnce
a sub-set of Core Data has been entered.
Source Unisoft Medical System
(81 Lucada Items), 17 dont appear in the
fundamental LCMS DB
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Merseyside Cheshire Cancer Network Trust Role
Good Practice / Experience (IV)
Incorporate the data collection and entry
functions with other data management
functions Collection to support local Audits /
LUCADA Cancer Waiting Times etc
Patient Tracking Form Data Validation - St
Helens Knowsley
We already have substantial data collection
procedures in place for our existing LCMS
database, therefore the information is readily
available for us to use for the LUCADA project
MCCR Cancer Registry Denominator Validation
Incidence is Inline with RCP Dataset
Collected Locally
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Some perceptions of national dataset projects
problems. . .
There are far too many datasets They need to
merge into one for collection purposes
Occasionally experiencing technical difficulties
accessing DB.
No Support for small screen resolutions 800 x 600
No default values for NA fields i.e. 99/99/9999
Weve never been asked to consider
implementation!
IE V6 is required, we currently use v5
Our Caldicott Guardian has been slow to sign User
Certification Form
Extra workload demand on Users to Supply Uploads