Patient and Public Involvement

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NIHR CLAHRC for Northwest London

• Patient and Public Involvement
• Rhetoric and Practice
• 13th October 2009
• Rachel Matthews, Programme Lead for PPI

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Setting The Scene

• Pause for reflection
• Review PPI milestones
• Consider impact of policy and legislation
• Practice points

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Reflection

• Why is PPI important?
• How has PPI developed?
• How important is PPI to
• You?
• Your team?
• Your CLAHRC?

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Fit for purpose?

• Strengthen the accountability of healthcare
  providers (Section 242, NHS Act 2006)
• We know from our experience that engaging
  patients and members of the public leads to
  research that is more relevant to peoples needs
  and concerns, more reliable and more likely to be
  put into practice. (DH, Best Research for Best
  Health , 2006)
• Improve the quality of health services (A First
  Class Service, DH, 1998)

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Milestones

• 2009 Mid Staffordshire Review
• 2008 High Quality Care for All (Darzi)
• 2008 Section 242 NHS Act (2006)
• 2007 World Class Commissioning Competency Three
• 2001 Health and Social Care Act (Section 11)
• 1999 Kennedy Report (Bristol Royal Infirmary)

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How?
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Its the law........
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Involvement Experience
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Public opinion - Quality of Dialogue?

• Parliamentary Health Committee (06/07)
• ..PPI has a key role in improving confidence in
  the NHS and social care
• ..public trust has to be earned and is easily
  broken..

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Strengthen the legislation
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Competencies

• Skills for CLAHRCs ?
• Listening
• Communication
• Public relations
• Enquiry response
• Event management
• Feedback evaluation
• Website management
• Survey Management
• Reports formats
• Presentation
• Influencing

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Healthcare Commission Review

• Listening, Learning, Working Together? (2009)
• Lessons for CLAHRC
• Local Circumstances your community
• Communitys ability to engage
• Organisational capacity to engage respond

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Déjà vu

• It appears to me that the services were designed
  around clinical and organisational needs rather
  than patients.
• Dr David Colin Thome.

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PPE Vision

• WCC Competency Three
• Average score for PCTs is 1.6
• Rank 1-4
• Only 9 PCTs scored 3
• QIPP
• Emphasis on productivity and innovation
• Role played by service users

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Patient and Public Involvement Cascade
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Evidence How we can contribute
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What our delegates tell us

• Positive staff receptiveness
• Varying levels of patient involvement
• Today - Evaluation forms your opinion?

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What worries you about PPI?
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What helps you get involved?
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What are the barriers to being involved?
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Skills and Tools For PPI

• NWL PPI Leads Network
• Test Experience Based Design
• Build capacity and capability
• Develop an evaluation framework

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Patient Public Input

• Being involved Patient advisers
• Shared ideas for our next community engagement
  event
• NWL LINks to contribute to the selection of Round
  2 projects
• Pilot learning programme for patient community
  representatives

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PPI The Final Frontier