A Mutual NHS through Effective Public Involvement

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A Mutual NHSthroughEffective Public Involvement

• Chest Heart and Stroke Scotland
• Nicola Cotter

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Patient Focus Public Involvement

• The Scottish Governments vision for the NHS
• a new ethos for health in Scotland that sees
  the Scottish people and the staff of the NHS as
  partners, or co-owners, in the NHS. I want us to
  move to a more mutual NHS where partners have
  real involvement, representation and a voice that
  is heard
• Nicola Sturgeon, Better
  Health Better Care 2007

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Barriers to Patient Focus Public Involvement?

We want to involve patients/carers but its too
expensive
What we discuss is confidential so we cant
invite them to our meetings
Patients harp on about their own individual
stories too much!
Patients and carers dont understand the
constraints we work under
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Benefits to staff and the NHS

• Restoration
• of public
• confidence

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Benefits for patients

• Better outcomes of treatment and care.
• We have seen an improvement in the services we
  have been involved with.

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Benefits to staff and the NHS

• Contribution
• to problem resolution
• Patients can highlight what is not working.

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Benefits for patients

• More accessible, sensitive and responsive health
  services.
• There is more understanding between us now

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MCN PPG The Fife Story

• 40 core members (130 in total) started with 4!
• 3 patient conferences in 2008
• Links with 3 Heart Clubs in Fife
• Work in partnership with CHSS
• Have a work programme developed by members

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Examples of Work
Activity Leaflets
Conferences
Emergency Health Card
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• Voices Scotland
• Support Session
• understand the structure of the NHS in Scotland
• find out which NHS bodies are looking for their
  involvement and views
• discover how to effectively communicate with
  health professionals
• share ideas and experiences in a relaxed
  environment
• produce a case for change to present your ideas
  to health professionals
• learn to improve services for the next patient
• develop the skills to become a patient or carer
  representative - planning, monitoring and
  improving health services
• Information on Voices Scotland from
  nicola.cotter_at_chss.org.uk

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Hearty Voices Scotland Achievements

• Approx 200 patients/carers received training
  across Scotland
• All mainland Health Boards (and Orkney) delivered
  or planned
• Supports, and in some areas established, Managed
  Clinical Network (MCN) patient/carer involvement
  groups across Scotland
• Steering Group made up mostly of patients
• National Conference attended by over 160
  patients, carers and health professionals
• Scottish Health Council and Scottish Government
  endorsement
• REAL patient/carer issues being addressed by MCNs

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Voices Scotland Development

• Chest Voices currently being developed by
  Nicola Cotter
• Consulting with respiratory stakeholders MCNs,
  Pulmonary Rehab
• Pilots completed in Lothian, Lanarkshire, Glasgow
  Highland
• Potential National Day to be offered
• In association with British Lung Foundation
• Affiliated Groups
• Supporting Chest, Heart Stroke groups to have
  their voices heard

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• Voices Scotland Feedback
• Chest Voices really increased my confidence to
  get involved and gave me some valuable tips about
  how to positively influence the local health
  professionals
• Lothian
  Patient February 2009
• Our experience of patient reps had not been
  particularly positive however after going through
  the Hearty Voices session, the patients seemed to
  have an increased understanding of the
  constraints the NHS sometimes has to work under
• 
  Lanarkshire Health Professional 2008

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The patient needs to be at the heart of the
services.