Overview of Childhood Cancer Registry

1
Childhood Cancer Registry
History
Goals
How we went about it
What we have now
Where we are heading
2
CHILDHOOD CANCER REGISTRY
History
Established late 1997 POG(S) CCF KKH NUH
3
CHILDHOOD CANCER REGISTRY
Goals
To focus epidemiological inquiry on children
diagnosed with cancer at age 14 below To
evaluate treatment efficacy and patient survival
To serve as a platform for a varied spectrum of
local research among the medical and academic
community
4
CHILDHOOD CANCER REGISTRY
How we went about it - Data Collection
NUH Ward 47 Cancer Centre
PCRS
SCR
KKH Ward 76 Histology Lab
5
CHILDHOOD CANCER REGISTRY
How we went about it - Data Dissemination
Data Query - Access Data Cleaning - Excel Data
Analysis - SPSS Presentation - Word/Excel/SPSS
6
CHILDHOOD CANCER REGISTRY
What we have now - 5 Years data
Cases notified to CCR 1997 1998 1999 2000 2001
NUH Citizens 16 23 21 Non-citizens 16 25
22 KKH Citizens 47 49 39 55 Non-citizens
14 6 6 11 Total 93 103 88 - - Registry
notifications for NUH in 2000 were interrupted
when the NUH RA left the post. The recently
arrived NUH RA is currently working on this
lapse. In process.
7
CHILDHOOD CANCER REGISTRY
What we have now - Summary statistics
8
CHILDHOOD CANCER REGISTRY
What we have now - Incomplete coverage
No. of cases not notified to CCR (Citizens / PR,
age 14 below) 1998
1999 KKH 9 2 NUH 3 8 SGH 7 5 TTSH 2
3 PP 3 1 Total 24 19
9
CHILDHOOD CANCER REGISTRY
Where we are heading
Registry Website Expand coverage Improve
data quality - Ca notification Easy Convenient
- Data dissemination Data linkages (eg. Birth
Defect Registry)