Task Force on Cancer Prevention, Early Detection and Treatment in New Jersey

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Task Force on Cancer Prevention, Early
Detection and Treatment in New Jersey

• EVALUATION COMMITTEE

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The Evaluation Committees Web Site Is Located
At

• www.umdnj.edu/evalcweb/

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Caveat/Disclaimer

• This document reflects a "work in progress."
• It is meant ONLY as a general guide and overview
  to some of the many dynamically evolving
  implementation issues related to the CCCP.
• This particular set of "slides" includes issues
  related to the Task Force Workgroups and
  interactions with OCCP etc, and the
• new County Evaluators for the CCCP for which
  the 25 NJ CEED programs are receiving NJDHSS
  funding related to the CCCP objectives.

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Evaluation CommitteeChair Stanley H. Weiss,
M.D.weiss_at_umdnj.edu

• The evaluation committee is part of the Task
  Force on Cancer Prevention, Early Detection and
  Treatment in New Jersey
• This committee will provide some overall guidance
  to the CE/CCCP and Workgroups
• Evaluators and Workgroups will report to the OCCP
  and Peg Knight, who will
• Synthesize their reports and
• Relay them to Dr. Weiss and to the Task Force for
  further assessment

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Evaluation Committee Will Also

• Consolidate input from evaluation activities both
  within NJDHSS and external sources, including the
  county evaluators for the CCCP (CE/CCCP)
• Seek input from the re-formulated Task Force
  Workgroups
• Provide feedback to the Task Force

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So, Where Does Everyone Fit in?
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Administrative Matrix for CCCP Who Reports to
Who?
Task Force on Cancer Prevention, Early Detection
and Treatment in NJ Chair A. Baskies
Office of the Governor
NJLINCS Local Health Officers
NJDHSS
Cancer Registry
OCCP Exec. Director Peg Knight
Evaluation Committee Chair S. Weiss
State NJ CEED Office
CINJ Comprehensive Cancer Center
25 CEED CE/CCCP
Workgroups responsible for each cancer/area (8)
and key over-arching issues
Battelle Centers for Public Health Research and
Evaluation
American Cancer Society
NCI/CDC
UMDNJ-SPH Training S. Weiss (PI) M. Sass (Co-PI)
UMDNJ-NJMS Evaluation S. Weiss (PI)
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Collaboration and Data Exchange Matrix for CCCP
Dotted Line Interaction/Collaboration between
two entities Arrow Direction of Data Flow
Task Force on Cancer Prevention, Early Detection
and Treatment in NJ Chair A. Baskies
Office of the Governor
NJDHSS
Cancer Registry
OCCP Exec. Director Peg Knight
Evaluation Committee Chair S. Weiss
NJLINCS Local Health Officers
State NJ CEED Office
CINJ Comprehensive Cancer Center
25 CEED CE/CCCP
Workgroups responsible for each cancer/area
(8) and key over-arching issues
American Cancer Society
Battelle
NCI/CDC
UMDNJ-NJMS Evaluation S. Weiss (PI)
UMDNJ-SPH Training S. Weiss (PI) M. Sass (Co-PI)
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TASKS for the Workgroups

• Need to review CCCP and the deadlines set forth
  in the plan.
• Are those deadlines realistic today?
• Will they need to be adjusted?
• How will they be adjusted?
•  
• 2. Look at their section of plan critically and
  what has been completed and what has not?

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Workgroup Tasks (Cont)

• 3. Workgroups will also need to start working
  with County Evaluators (CEs) for the CCCP to
  identify cancer resources throughout the state
  for their specific cancer site. Information on
  how to contact each Workgroup will be provided to
  CEs.
• 4. Make contacts with other Workgroups in areas
  relevant to their cancer site. Note The
  overarching Work Group has been formally split
  into its constituents Access and Resources,
  Advocacy, Palliation, Nutrition and Physical
  Activity, and Childhood Cancer.

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Workgroup Tasks (Cont)

• Review the administrative and collaboration
  matrixes and realize their role going forward.
• Provide OCCP and Task Force with updates

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Tracking Progress in the Workgroups

• Battelle Centers for Public Health Research is
  working on developing an electronic tracking
  system that each Workgroup is to use under the
  direction of the Workgroup chair or appointee.
• A draft version is explained in the attached Word
  document, it should be used with appropriate
  goal/objective/strategy, names and numbers
  replacing those in the draft.
• These should be modified by each Workgroup so as
  to create one form for EACH strategy. To modify,
  simply make a copy and type in the
  goal/objective/strategy from the CCCP.

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Tracking Progress in the Workgroups

• You should use these immediately for gathering
  data.
• If and when more sophisticated electronic
  versions to capture this information are
  developed, these will be provided to the
  Workgroups.
• On a bi-monthly or quarterly basis, the OCCP
  requests that each Workgroup provide an update.
• First updates desired by OCCP during June 2003.
• See example.

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Electronic Tracking System

• Date Form Completed AUTOMATED
• Work Group CHILDHOOD CANCER
• Submitted By FIRST NAME LAST NAME
• Goal CC-1 To improve care for adolescents and
  young adults.
• Objective CC-1.1 To educate healthcare
  providers about the availability of existing
  clinical research protocols and the referral of
  young adults up to the age of 21 to pediatric
  oncology centers.
• Strategy CC-1.1.1 Conduct a pilot study to
  validate the existing research and assess any
  difference in cancer survival based on treatment
  regime between adult treatment centers and
  pediatric treatment centers.
• Funding
• Amount Source Comments
• i.e. 25,000 Wonderful Granting Agency's
  Name Grant application award announcement
  March2003
• i.e. 30,000 Another Wonderful Granting
  Agency On hold for FY 2003
• Targets
• Target Date Status Date month/year of
  anticipated or actual completion
• 2003
• 2004
• Principal Change Agents Last Contact
  Date Name
• i.e. American Cancer Society

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Battelle

• NJ CCCP Database Fields v2 draft of Monday, April
  21, 2003
• Fields for Progress Reporting on Specific
  Strategies for Each Workgroup

 
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Battelle

• NJ CCCP Database Fields v2 draft of Monday, April
  21, 2003
• Fields for Progress Reporting on Specific
  Strategies for Each Workgroup

 
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Additional Project By Battelle

• Battelle is also developing indexing/cross-indexin
  g of the CCCP according to key parameters
• Enable tracking by Workgroups of NJ activities
  with respect to the CCCP, by linkage to the above
  CCCP database system

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Battelle

• NJ CCCP Database Fields v2 draft of Monday, April
  21, 2003
• Key Parameters

 
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Battelle

• NJ CCCP Database Fields v2 draft of Monday, April
  21, 2003
• Key Parameters

 
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Battelle

• NJ CCCP Database Fields v2 draft of Monday, April
  21, 2003
• Key Parameters

 
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Battelle

• NJ CCCP Database Fields v2 draft of Monday, April
  21, 2003
• Key Parameters

 
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Who are some of the various agencies and groups
aiding the CCCP efforts?

• Office of Cancer Control and Prevention
• Cancer Registry
• NJ Cancer Education and Early Detection (CEED)
  Programs
• Training of NJ CEED CE/CCCP UMDNJ-SPH
• Technical Assistance to NJDHSS/Task Force, and
  External Evaluation UMDNJ-NJMS

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The Original Planned Fiscal 2003 New 3.25M
Allocation Was to Support

• NJDHSS
• 1. Office of Cancer Control and Prevention -
  Office of the CCCP Executive Director
• Peg Knight, RN, MEd
• 2 new staff positions On HOLD

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The Original Planned Fiscal 2003 New 3.25M
Allocation Was to Support

• NJDHSS
• 2. Cancer Registry - Office of Cancer
  Epidemiology
• Betsy A. Kohler, MPH, CTR
• 2-3 new staff positions On HOLD

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The Original Planned Fiscal 2003 New 3.25M
Allocation Was to Support

• NJDHSS
• 3. NJ Cancer Education and Early Detection
  (CEED) Programs
• 25 new positions at each program (programs in all
  21 NJ counties with 4 counties having 2 programs)
• Administered by Doreleena Sammons-Posey, SM and
  Anna Ruth Thies, RN, MA
• 1 new central State staff position in fiscal 2003
  On HOLD

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The Original Planned Fiscal 2003 New 3.25M
Allocation Was to Support

• NJDHSS
• 3. CEED Programs continued
• 57,100 to each program in Fiscal 2003
• 52,100 for a staff/consultant position for
  Capacity/Needs Assessment and Evaluation as the
  County Evaluators for the CCCP (CE/CCCP)
• 5,000 for support resources - computer equipment

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The Original Planned Fiscal 2003 New 3.25M
Allocation Was to Support

• NJDHSS
• 3. CEED Programs continued

• On March 5, the above mentioned 57,100 in funds
  received an extension for use beyond JUNE 30th -
  to permit use through SEPTEMBER 30th.
• As of April 1, 2003, this has CHANGED and the
  extension will be through DECEMBER 31st,
  providing a more adequate time frame to
  accomplish the goals.

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The Original Planned Fiscal 2003 New 3.25M
Allocation Was to Support

• NJDHSS
• 4. Training of NJ CEED CE/CCCP County
  Evaluators for the CCCP Fiscal 2003 MOA with
  UMDNJ-SPH
• 4 day-long programs in preparation, for training
  in basic skills and applying standardized
  methodology (1st day of training set for May
  14th)
• Drs. Marcia Sass co-PI
• and Stanley H. Weiss PI

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The Original Planned Fiscal 2003 New 3.25M
Allocation Was to Support

• NJDHSS
• 5. Technical Assistance to NJDHSS/Task Force,
  and External Evaluation
• MOA with UMDNJ-NJMS
• Stanley H. Weiss, MD PI
• Susan Collini, MPH
• William Halperin, MD
• Judith B. Klotz,  MS, DrPH after May 1st
• Funding after June 30, 2003 ON HOLD

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The Original Planned Fiscal 2003 New 3.25M
Allocation Was to Support

• 5. Technical Assistance to NJDHSS/Task Force,
  and External Evaluation
• Review assessment/evaluation plans and
  implementation of other States identified by CDC
  as exemplary models
• Assess instruments and systems for data
  collection and systemization by NJDHSS and its
  contractors
• Public health/epidemiologic assessment of the
  Comprehensive Cancer Control Plan (CCCP)

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Additional Funding by the State in Cancer Research

• Cancer Institute of New Jersey
• William N. Hait, MD, PhD
• NCI-Comprehensive Cancer Center, with NCI
  mandates related to the community
• Added allocations of 20M Fiscal 2003, 18M
  Fiscal 2004
• Including for development of a system to foster
  communication about treatment programs
• RFAs issued March 2003

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Non-state Funding Sources

• CDC
• National Breast and Cervical Cancer Early
  Detection Program (NBCCEDP) operates in all 50
  states, D.C., 6 US territories, 12 Am
  Indian/Alaskan Native organizations
• Federal funding -- established 1990
• ? stability of NJ CEED programs
• American Cancer Society (ACS)
• Plans to share with OCCP (and the CE/CCCP)
  results of regional ACS C/NA
• ACS is adopting the NJ CCCP in its own forward
  planning, which is important in terms of
  long-term goals

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Implementation Is Moving Forward An Update
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New County Evaluators for the CCCP (CE/CCCP)

• As part of the Implementation Process of the
  CCCP, the new CE/CCCP will be hired by each CEED
  program to conduct a Capacity and Needs
  Assessment (C/NA) and evaluation of all aspects
  concerning cancer prevention, detection and
  treatment in their county.
• These County Evaluators will either be
  consultants or employees.

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New County Evaluators for the CCCP (CE/CCCP) Key
Responsibilities

• Investigates cancer needs and capacity
  assessments in their County
• Describes impediments to best cancer prevention
  practices in their County
• Describes the system for early detection and
  prompt therapy of cancers in their County
• Develops guidelines to implement a comprehensive
  cancer C/NA and a work plan to implement the
  capacity and needs guidelines
• Works with OCCP and the Cancer Registry to
  identify communities and populations where cancer
  burden is highest

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Purpose of Capacity Needs Assessment

• To provide the best approach to implementing the
  CCCP
• To help keep the implementation process on target
• To provide both baseline and (over time)
  follow-up information for evaluation purposes

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Collaboration

• Information will be gathered by the County
  Evaluators through collaboration with multiple
  sources, such as
• American Cancer Society - already conducting
  their own C/NA State Cancer Registry
• Task Force Workgroups
• Local and county health officers
• Battelle Centers for Public Health Research and
  Evaluation
• CDC and NCIs Cancer Information Service and
  Partnership Program

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CCCP, ACS CEED Priority Areas
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CCCP Priority Area Over-Arching Issues

• Access and resources
• Advocacy
• Palliation
• Nutrition and physical activity
• Childhood cancer

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CCCP Priority Area Emerging Trends

• Access to clinical trials
• Cancer survivorship
• Complementary/alternative medicine
• Infection and cancer
• EBV
• HIV
• H. pylori
• HPV
• HBV vaccine, HCV

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CCCP Priority Area Short-Term Issues
Historic geographic issues i.e. bladder cancer
- What has been happening? Cluster Busters
Drs. Dan Wartenberg and Eddy Bresnitz, and
Betsy Kohler CCCP Priority Area Long-Term
Issues Emerging Cancers - i.e. HCC, especially
issue of HCV
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Long Term Issues
Sequential, prioritized analysis from an
epidemiologic standpoint, of relative efficacy
and cost-benefit (including BOTH direct and
indirect effects) of extant primary, secondary,
and tertiary prevention efforts for each cancer
type, with comparison to actual effort and
expended, to assist policy makers in resource
allocation.
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ACSs 6 New Jersey Regions
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The Comprehensive Cancer Control Plan on the
Web..

• Copies are available via the Internet at the
  Office of Cancer Control and Prevention Program's
  Website
• http//www.state.nj.us/health/ccp/ccc_plan.htm

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Additional Resources Researchers Dataset From
the NJ Cancer Registry http//www.state.nj.us/hea
lth/cancer/webroll.htm

• An individual-level dataset is available from the
  New Jersey State Cancer Registry without
  identifiers, which includes data from 1991-1998
• A Public Use Agreement must be signed
• File is available in both ASCII and ACCESS '97
  formats
• Accompanied by a file containing populations
  counts appropriate for calculating rates

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Additional Resources NJDHHS Website

• Resources can be explored on the
• New Jersey Department of Health and Senior
  Services Website
• Related Cancer Links
• http//www.state.nj.us/health/cancer/links.htm