NACC Update

1
NACC Update

• ADC Directors Meeting
• October 2003

2
New NACC Faculty

• Thomas Koepsell, MD, MPH
• New Co-Director in competitive renewal
• Too many credentials to list
• Annette Fitzpatrick, PhD
• Asst. Professor, Epidemiology
• Previously with CHS and GEM studies
• Years of coordinating center experience

3
Cumulative totals, additions and active subjects
in MDS
4
Clinical Dementia status of 2003 MDS Subjects
5
Neuropathology data

• Add cases as ready No Data Call
• Edits of past cases
• Web browser data entry
• other means of input
• Database frozen twice/yr for reports
• Director certified data
• Current data viewable on web
• Neuropathology leads the way..

6
NACC Collaborative Projects

• New Award D. Tsuang, MD
• Clinical, pathologic and genetic characteristics
  of DLB
• Thirteen NACC projects funded to date
• Productivity increasing
• Nine papers
• Fifteen abstracts
• Thank you!

7
NACC and Clinical Data Expansion

• Implement the Uniform Data Set
• Data base structure
• Web-based and other I/O
• Submit as needed no data calls
• Prospective visits only
• Longitudinal follow-up
• Seamless integration
• NP data
• MDS

8
Continuous Consultation Coverage

• Methodologic statistical consultation
• Database management
• Secondary analysis from database
• ADC investigators encouraged
• NACC initiation or support function
• Web-site improvements
• Training video capabilities

9
NACC Competing Continuation Seems like only
yesterday

• Due November 1
• Continuing Improvements
• Support
• Data access
• UDS standardized, accumulated, longitudinal
  data
• Increased investigator opportunity through data
  sharing