Research Knowledge Transfer Day

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• Research Knowledge Transfer Day
• Bodelwyddan Castle 17.09.09
• Professor Tim Maughan
• Clinical Director
• CRC Cymru Coordinating Centre

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Developing a Research Culture in health and
social care in Wales

• Why?
• A research active service is a quality service
  identifies effective interventions, avoids waste
• For patients and service users improves
  outcomes, widens options
• Recruitment retention attracts high quality
  staff critical thinking, leadership, CPD
• Needs to be recognised as a quality standard
• The NHS Operating Framework in England aims to
  double recruitment to trials
• Designed to Tackle Cancer includes a research
  activity measure (10 recruitment)

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WORDWales Office for Research and Development in
Health and Social care

• Project funding for health and social care
  research increased.
• Between 2005-7 7million worth of grants were
  awarded to 63 projects.
•  Policy for clinical academic careers with
  funding in place for the first two years (WCAT).
• to provide training for 10 posts per annum
•  Working to reduce bureaucracy, complexity and
  delays associated with RD review.
• Primary care in place secondary care coming

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NISCHR

• Uplift in RD funding to enable engagement at UK
  level (Office for the Strategic Coordination of
  Health Research, OSCHR)
• 3.3m 08/09 5.6m 09/10 9.5m 10/11
• Brings Wales RD budget nearer to English levels
  of investment
• Opens the door to all National Institute of
  Health Research (NIHR) competitive funding
  streams
• Fulfils One Wales commitment to a National
  Institute for Heath Research in Wales

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NISCHR will

• Work with the research community to
• Improve collaboration and engagement
• Establish working groups to address issues
• Advise WORD on strategic and policy matters
• Create a Faculty (for health researchers) and a
  Centre of Excellence (for social care
  researchers)
• Fund the research activity
• Administer WORDs funding initiatives
• Extend current programmes and create new
  programmes

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NISCHR Registered Research Groups

• active collaborations of researchers and service
  professionals with a research portfolio of
  people focused projects
• generate research proposals in areas of topical
  significance and opportunity and win grant
  funding
• generate a growing research portfolio of
  high-quality, people-focused research
• engage and collaborate with UK-wide groups
• 29 applications submitted 2 step process
• October decisions on RRG status January decision
  on funding level

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NISCHR Research Network

• Unites CRC Cymru Co-ordinating Centre and the
  Wales Cancer Trials Network.
• maintains the research portfolio
• continues to recruit and deploy a Research
  Network for health, social care and cancer to
  support portfolio studies
• training programme
• network of patients, carers and service-users

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Barriers to developing a Research Culture

• Professionals time and attitude
• NHS contract and workload make research
  increasing difficult
• Social care lacks a tradition of research base
• NISCHR needs to resource investigator faculty
  time to be active in research
• Treatment costs
• RD moves resources between sectors cost centres
  need to enable flexibility
• Excess treatment costs of innovative techniques
  must be accessible in the evaluation phase
  saves money later

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Developing a Research Culture

• Making results relevant and accessible
• to NHS social care managers and policy makers
• To the whole service
• To patients and the public
• Ensure implementation
• Through NICE guidance
• Through appropriate training
• Asking the next question...

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Building basic science strengths

• Highly competitive world
• To be internationally competitive needs ongoing
  investment
• Only world class groups or institutions will
  attract major inward investment
• Therefore can only support a few international
  quality research areas
• Universities developing capacity and working
  together

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NHS support

• In England Revolution
• Culyer funds withdrawn.
• Comprehensive research network established.
• Multiple new funding streams for AHSCs, BMRCs,
  BMRUs, CLAHRCs, CLRN, FS etc
• In Wales Evolution
• improvements in reporting
• high levels of activity noted across Trusts
• joint working developed between WORD and NHS RD
  departments.
• WORD Task and finish group for service support
  costs

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Overcoming obstacles

• NHS support
• Pharmacy, Radiology, Physics, other support
  services
• An example of support costs for one type of
  clinical trial (band 7 radiographer / physics
  support)

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Involving People

• When asked, patients are keen to be involved in
  clinical trials but most are not asked
• Could we be more proactive?
• You may be eligible to join a clinical trial. If
  you are interested, please ask your doctor.
• Involving People
• Research studies involving patients, carers and
  service users are likely to ask more patient
  centred questions, to be more successful in
  funding application and ethics review, and be
  more readily applicable

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Facing the Challenges for Health and Social Care
Research in Wales

• Significant challenges remain
• NISCHR will provide
• Increased funding
• Access to UK wide funding streams
• A new organisation to address issues
• CRC Cymru has built the foundation
• Continuing initiative and evolutionary change is
  necessary to take the next steps forward

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Research Showcases

• Research Knowledge Transfer DayBodelwyddan
  Castle 17.09.09