Health Information Outreach in CommunityBased Organizations

1
Health Information Outreach inCommunity-Based
Organizations

• Maxine L. Rockoff
• New York Academy of Medicine
• Welch Library
• Johns Hopkins University
• April 16, 2004

2
(No Transcript)
3
(No Transcript)
4
New York Academy of Medicine

• Jeremiah A. Barondess, M.D., President
• Alan R. Fleischman, M.D., Senior Vice President
  for Medical and Academic Affairs
• Patricia J. Volland, M.S.W., M.B.A., Senior Vice
  President for Finance and Administration
• Center for Urban Epidemiologic Studies, David
  Vlahov, Ph.D., Director
• Division of Health and Science Policy, Bradford
  H. Gray, Ph.D., Director
• Division of Information Management, Maxine L.
  Rockoff, Ph.D., Director
• Division of Public Health, Roz D. Lasker, M.D.,
  Director
• Office of Development and Communications,
  Lorraine A. LaHuta, M.A., Director
• Office of School Health Programs, Leslie Goldman,
  M.A., Director
• Office of Special Populations, Ruth Finkelstein,
  Sc.D., Director
• Office of Health Disparities, Charles K. Francis,
  M.D.
• Office of Policy Development, David M. Keepnews,
  R.N., J.D., Ph.D.

5
Jeremiah A. Barondess, M.D., President, is
Professor Emeritus of Clinical Medicine at the
Cornell University Medical College, President
Emeritus of the American College of Physicians,
and a Past President of Alpha Omega Alpha, the
American Osler Society and the American Clinical
and Climatological Association. He is a member
of the Board of Trustees of the Johns Hopkins
University, a member of the Institute of Medicine
of the National Academy of Sciences, and a Fellow
of the American Academy of Arts and Sciences.
6
Center for Urban Epidemiologic Studies
David Vlahov, Ph.D.
David Vlahov, Ph.D., Director of CUES, is Adjunct
Professor of Public Health at the Joseph L.
Mailman School of Public Health at Columbia
University, and Adjunct Professor of
Epidemiology at the Johns Hopkins Bloomberg
School of Public Health. He is a member of
several advisory committees to the Institute of
Medicine, the National Institutes of Health and
the Centers for Disease Control and Prevention.
He is also the Editor-in-Chief of the Journal of
Urban Health Bulletin of The New York Academy of
Medicine.
7
Center for Urban Epidemiologic StudiesRecent
Projects

• Urban Center for Applied Research in Public
  Health
• Infectious Diseases related to Intravenous Drug
  Use
• HIV/AIDS
• Hepatitis C
• Prevention of HIV
• Treatment in Late Stage HIV
• Expanded Syringe Access Program NYS Evaluation

8
Center for Urban Epidemiologic StudiesRecent
Projects (cont.)

• September 11 Studies
• Psychological Impact Acute and Long-term
• Mental Health Needs New Yorkers
• Web-Based Interventions Following Terror
• Asthma Treatment and Symptom Prevention Programs
• Head Start Centers
• Schools
• Adolescents

9
Division of Health Science PolicyRecent
Projects

• Healthcare Systems
• Future of Non-Profit Healthcare
• Ownership and Organizational Performance in
  Health Care
• Healthcare Financing and Delivery
• New York Forum for Child Health
• InsuranceBarriers to enrollment and
  recertification
• Policies and practices in Medicaid
• Healthcare Quality
• New York State Quality Improvement Program
• September 11 Studies
• NYC Teachers Post 9/11
• Regional Pediatrician Impact and Education

10
Division of Public HealthRecent Projects

• Center for the Advancement of Collaborative
  Strategies in Health
• Engaging the Community in Terrorism Preparedness
  Planning

11
Office of School Health ProgramsRecent Projects

• Professional Development for Coordinated School
  Health Programs
• Asthma Education Program for NYC Schools
• Skin Health Education Program
• Cardiovascular Disease Prevention
• Joint with Division of Information Management
• Junior Fellows Program
• Online Health Education Curriculum Resource
  Center new NLM funding

12
Office of Special PopulationsRecent Projects

• Treatment Adherence in HIV/AIDS
• HIV Prevention Planning
• Co-Morbid Disease and Substance Use
• Immigrant Communities and HIV
• Development of a Coalition of HIV Care Providers

13
Division of Information Management

• Serve
• NYAM Divisions and Offices
• Public
• Public Health Community
• History of Medicine Scholars
• Innovate!

14

• Manage the Academy's Library and information
  infrastructure and develop innovative methods for
  organizing and making accessible information
  related to health for a wide range of patrons.

15

• Serve NYAM Divisions, Public, Public Health
  Community
• Innovate
• Consumer Health Outreach
• Shift collecting toward Public Health,
  Epidemiology, Social Sciences
• Adapt clinical librarian role to serve NYAMs
  Divisions/Offices
• Develop e-resources
• Disseminate successful models through RML

16

• Maintain extensive reference collection in the
  history of the health sciences, as well as in the
  history of books and printing. Provide research
  services to History of Medicine scholars.
• Innovate
• Outreach to Divisions
• Enhance access to treasured resources

17

• Provide medical information services to health
  professionals and the public via 800 libraries
  in Region
• Innovate
• Develop and manage National Online Training
  Center and Clearinghouse
• Participate in development of outreach
  initiatives
• Disseminate successful models

18

• Provide medical information services to health
  professionals and the public via 800 libraries
  in Region
• Innovate
• Develop and manage National Online Training
  Center and Clearinghouse
• Participate in development of outreach
  initiatives
• Disseminate successful models
• Recruiting for new RML Associate Director

19

• Provide reliable and cost-effective computing and
  telecommunications services throughout NYAM
• Innovate
• Develop innovative applications of IT in
  creating, managing and disseminating health
  information products and services, e.g.
• High-speed remote access
• Web-based products (e.g., www.noah-health.org and
  www.harlemresourceguide.org)
• Teleconferencing
• Distance learning

20

• Innovate
• Digitize special collections
• Enhance access to digital assets -- texts,
  images, and artifacts in the Librarys
  collections
• Apply digital library technologies to medical
  information resource-discovery, and to research
  in the History of Medicine
• Demonstrate that the integration of current and
  historical public health information can enhance
  effective health communication

21
Division of Information Management

• Vision

Information will be available everywhere to
anyone who has an Internet connection.
Librarians will organize and then help their
patrons obtain the information their patrons
need.
22
Division of Information ManagementStrategic Plan

• Mission
• Serve the information needs of NYAM Divisions,
  Departments, and Centers
• Innovate in health information dissemination to
  the public, and the public health and
• health policy communities
• Enhance scholarship in the history of medicine

23
Division of Information ManagementStrategic Plan

• Mission
• Serve the information needs of NYAM Divisions,
  Departments, and Centers
• Innovate in health information dissemination to
  the public, and the public health and
• health policy communities
• Enhance scholarship in the history of medicine

24
Increasing Inner-City Access to Health
Information NYAM/Columbia DBMI Collaboration

• Add health information outreach component to
  existing social service programs in
  community-based organizations
• Utilize existing community technology centers
  (CTCs)

25
(No Transcript)
26
DBMI Research Team

• Dave Kaufman
• Sue Bakken
• Mureen Allen
• Jenia Pevzner

27
Increasing Inner-City Access to Health
Information NYAM/Columbia DBMI Collaboration

• Add health information outreach component to
  existing social service programs in
  community-based organizations
• Develop a bilingual train-the-trainer health
  information outreach program

28
Increasing Inner-City Access to Health
Information NYAM/DBMI Collaboration

• Add health information outreach component to
  existing social service programs in
  community-based organizations
• Develop a bilingual train-the-trainer health
  information outreach program
• Create a web site and listservs to support
  program

29
Increasing Inner-City Access to Health
Information NYAM/Columbia DBMI Collaboration

• Develop a bilingual train-the-trainer health
  information outreach program
• Create a web site and listservs to support
  program
• Characterize patterns of health-information- seek
  ing behavior
• Qualitative and Cognitive Analyses

30
Pilot Train-the-Trainer Class in August at NYAM

• (Video clip unavailable for web posting)

31
Pilot Train-the-User Class in September at NYAM
(Video clip unavailable for web posting)
32
More Train-the-User Classes by Popular Demand
in the CTC
(Video clip unavailable for web posting)
33
(No Transcript)
34
Qualitative Research to Assess Attitudes and
Self-Perceived Capabilities

• Focus group following three training sessions
• Questions
• What were the useful aspects of the training
  sessions?
• What areas should be improved?
• What aspects of the training sessions did you not
  like?
• Where have you obtained health information in the
  past?
• What sources of health information do you think
  are reliable?
• How do you know if a website is reliable?
• Do you have any general comments about using a
  computer to obtain information?
• What needs do you have that the classes didn't
  meet?

35
Cognitive Research to Assess Competencies

• Interviews before and after classes
• Videotape to assess ability to
• Articulate an information need
• Access appropriate information resources
• Differentiate categories of health information
• Comprehend health information
• Draw appropriate inferences
• Use the health information to inform
  decision-making

36
Results of Pilot Train-the-User Classes

• Focus Group Summary
• Opinions overall enthusiastic and positive
• Appreciated instructor (The instructor was
  fantastic!)
• Participants felt they had learned how to find
  quality health information on the Internet
• No aspects of the classes they didnt like
• Analysis of audio tapes revealed problems
• Difference between key words and URL

37
Results of Pilot Train-the-User Classes

• Cognitive Analysis Summary
• Disparate Internet competencies, e.g., ability to
  use scroll bar
• Participants enthusiastic and engaged
• Difficulty grasping basic concept of a search
  engine and how the Internet works
• Portals (e.g., MedlinePlus and NOAH) more easily
  apprehended than search engines

38
Results of Pilot Train-the-User Classes

• Formative analysis for iterative improvement of
  classes
• Cognitive analysis and qualitative analysis
  Triangulate

39
Research Questions

• Patient/Consumer Health Information
• Usability and accessibility of health information
  
• Impact
• Cost-effectiveness of train-the-trainer
  approach
• Consumer/patient information-seeking behavior
• Doctor/Patient Relationship
• SES differences
• Impact of Internet
• Impact of new kinds of information (e.g.,
  genomics, quality of care indicators)

40
Contact Maxine L. Rockoff (212)
822-7373 MRockoff_at_nyam.org