LIFE MANAGEMENT WITH IPF

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LIFE MANAGEMENT WITH IPF

• I have IPF, NOW WHAT?

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Physical Emotional Health

• Being a Personal Health Advocate.

• Managing Stress, Anxiety, and Depression.

• Diet and Nutrition.

• Energy Conservation.AND exercise?

• Support Systems.

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Be Your Own Personal Health Advocate

• Ask questions.

• Seek Options, do research, be proactive.

• Find a physician familiar with IPF.

• Know your insurance system.

• Prepare realistically but keep HOPE.

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What do I need to know about my Insurance?

• Find out how the system works and how your
  primary care doctor
• works with it.

• Find out if your Primary Care Doctor has to
  approve everything or
• if your specialist can order/request tests.

• Find out if you have co-pays, for what, for how
  much.

• Find out who you contact for different
  information and what their
• number is (take write down names).

• Do as much leg work as you can for your
  doctors office to make it
• less time consuming for them and thus faster
  for you!

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Managing Stress, Anxiety, and Depression

• Recognize the need to go through the grieving
• process

• Lifestyle changes.

• Sleepimportant to mind and body

• The role of humor

• When to seek medication

• Positive Mental Attitude!
• (The hardest one)

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Kubler-Ross Stages of Grief

• Denial

• Anger

• Bargaining

• Depression

• Acceptance

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Lifestyle Changes

• Incorporate Relaxation.

• Learn to manage your panic.

• If you havent alreadySTOP SMOKING!!!

• Take your medications as directed.

• Be diligent about your follow-up care.

• What else are you doing thats
• unhealthy or unwise?

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Sleep

• More than 60 of people have trouble sleeping.

• Depression can be linked to lack of sleep.

• Sleep is needed to rejuvenate the system.

• What to do?

• Rule out sleep disorders with your physician.

• Maintain a routine.

• Take naps.

• Occasional medicine as a last resort.

• Make it a priority.

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• Laughter produces beneficial physiological
  results. It exercises the lungs and stimulates
  the circulatory system. Hearty laughter causes
  full action of the diaphragmThe whole
  cardiovascular system benefits from robust
  laughter because the deep respiration that
  accompanies it increases the oxygen
• in the blood.
• The Laughter Prescription by
• Dr. Laurence J. Peter

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Medication for Anxiety/Depression

• Use when stress, anxiety and depression
• become unbearable.

• Use if having suicidal thoughts
• (also seek other professional help).

• Use under physicians supervision.

• Advocate changing if it does not
• seem to be working.

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POSITIVE MENTAL ATTITUDE

• I CAN

• I WILL

• ITS POSSIBLE

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The Role of Diet and Nutrition

• What DOES your body need?

• Smaller, more frequent meals.

• Less Weight Less breathing effort.

• Gastroesophageal Reflux in IPF.

• Balance.

• Supplementsyes or no?

• Know body effects.

• Consult with physician.

• Consult with pharmacist.

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Energy ConservationAND Exercise?

• Listen to your body BUT

• Activities of Daily Living.

• Exercise.

• Oxygen?

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Support Systems

• Seek family and friends
• (use but not abuse).

• Seek others who share
• your disease.

• Seek professional help if
• needed.

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PRESCRIPTIONS FOR EMOTIONAL HEALTH from The
Laughter Prescription by Dr. Laurence J. Peter

• Deal with one problem at a time do one
• thing at a time.

• Do the best you can and then dont worry
• about it.

• Be assertive express your feelings
• honestly.

• Treat others with the respect you wish
• for yourself.

• Be aware of your own needs rather than
• those inspired by others.

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PRESCRIPTIONS FOR EMOTIONAL HEALTH from
The Laughter Prescription by Dr. Laurence J.
Peter

• Do not view your life as closed in, but realize
• there are always alternatives.

• Choose to be well and happy.

• Remove yourself from your problems.

• Adopt the comic perspective so you can see
• your problems objectively and laugh at them.

• Live in the present.

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I am only one, but still I am one. I cannot do
everything, but still I can do something and
because I cannot do everything, I will notrefuse
to do the something that I can do. --Edward
Everett