Title: Breast Cancer Surveillance Consortium (BCSC): sponsored by the National Cancer Institute Cancer Screening Surveillance in Clinical Practice
1Breast Cancer Surveillance Consortium (BCSC)
sponsored by the National Cancer Institute
Cancer Screening Surveillance in Clinical
Practice
Tracy Onega, PhD Director, NH Mammography
Network, Assistant Professor of Community
Family Medicine Dartmouth Medical School the
Norris Cotton Cancer Center
2Flashback to pre-BCSC..
- Circa early-mid 1990s.
- No understanding of screening mammography
process or quality - MQSA passed to ensure standardized delivery of
quality mammography services - NCI responded to legislative mandate by
establishing surveillance system to provide
reliable and comprehensive performance data
3Breast Cancer Screening Process
Patient Factors
Screening Examinations
Diagnostic Evaluations
Intermediate Outcome
Long-term Outcome
Treatment
Surveillance Systems for Routine Clinical
Practice
4Screening Registries Should Be..
- Integral to clinical care processes
- Population based / part of consortia
- Interdisciplinary
- Longitudinal
- Informing and Improving
- Patients lives
- Provider care
- Evidence-based guidelines
- Tailored screening approaches
- Research
5The CornerstoneInfrastructure Common Data
Elements
GHRI
Reporting
Data Management / Warehouse
SFMR
SCC Consolidated Data
CMR
Map
NHMN
Data Analysis
VBCSS
6Registry Data Collection Methods
Pathology Reports (abstracted)
Womens Questionnaire (filled out at time of
mammogram)
State Cancer Registry
Radiologist/ Rad Tech Form (filled out at time
of mammogram)
Vital Status (DHHS)
Radiologist Info
Facility Info
Registry Database
7Cancer Care Continuum BCSC Resources
8Foundation for Infrastructure
Women
Facilities
Providers
9Fostering Participation
- Voluntary registries how to develop maintain
buy-in?
MQSA, quality measures, benchmarking
Facilities Clinicians Patients
Performance feedback Relationships
Disseminating findings, Electronic data
capture, Rad tech support
10Data Collection Innovations
- Software for clinical data collection
- Tablet PCs
- Integration with electronic health records
- Continuous breast density
- Digital image collection
- Standardized data elements for new modalities
- Built-in reporting
11Built-in Reporting
From Geller B.
12Confidentiality Legal Infrastructure
- Federal Certificate of Confidentiality
- strongest protection
- tested in court
- protects providers and patients
13Screening in Cancer Control
Concept Map Showing Priority and Thematic Areas
of Research for the Applied Cancer Screening
Research Branch at NCI
- http//cancercontrol.cancer.gov/acsrb/priorities_f
igures.html
14Expanding the Utility of the BCSC
15Thank You to the National Cancer Institute