Ethnic%20Differences

1
Ethnic Differences
2
Ethnic Differences in Placement
3
Ethnic Differences in Placement

• Caucasian and African American consumers more
  likely to reside outside of the family home than
  consumers from other ethnic groups despite
• No ethnic differences in level of intellectual
  disability
• No ethnic differences in personal living skills
• Caucasians have higher community and
  interpersonal skills than Latino and Asian
  American consumers
• No ethnic differences in severity of maladaptive
  behaviors

Latino Asian American Mixed Ancestry Middle Eastern
Caucasian 4.0x 2.0x 3.33x 8.3x
African American 3.6x Difference not significant Difference not significant 7.7x
4
Ethnic Differences in Placement

• Middle Eastern consumers least likely to reside
  outside of the family home
• Asian and Middle Eastern families tend to keep
  individual with DD in the family home unless they
  require extensive behavioral or medical support
  (i.e., Level 4 CCF or ICF/Skilled Nursing
  Facility)

5
Ethnic Differences in Adherence

• Pre-clinic
• Caucasian consumers take more psychoactive
  medications than Latino consumers
• Post-clinic
• Latino families are more likely to follow clinic
  recommendations than Caucasian families
• (41 vs. 23 adherence)

6
Summary of Ethnic Differences

• No ethnic differences in adaptive or maladaptive
  behaviors
• Caucasian consumers take more psychoactive
  medications than Latino consumers
• Ethnic families more likely to keep child with DD
  in the home unless they require extensive
  behavioral or medical support
• Latino families more likely to follow clinic
  recommendations than Caucasian families

7
Other Collaborations UCI-RCOC

• Down Syndrome Program
• Telemedicine

8
(No Transcript)
9
Early Onset Ab in Down syndrome
Intact Neurons
4 months old anti-Ab1-16 immunostaining in
free-floating formic acid pretreated 50 mm thick
formalin-fixed sections.
10
Plaques and tangles in DS
11
Down Syndrome Program

• Currently funded by NIH to establish a predictive
  model for who is at most risk for dementia in
  Down syndrome

12
Down Syndrome Program

• Future clinical trials need to address health
  disparities in DS and AD
• Telemedicine is the use of health care technology
  when distance separates the doctor and patient

13
(No Transcript)
14
Telemedicine Program UCI2001-PRESENT

• 2100 clinics
• 8400 consults
• California Center for Connected Health
• California Telehealth Network

15
California Telemedicine Network is now accessible
to UCI and other UCs
16
(No Transcript)
17
Telemedicine

• Home monitoring is the next area of focus for
  telemedicine - reduce costs through prevention
  and treatment in the home

18
(No Transcript)
19
Future Directions

• To define cost analysis for RCOC based on our
  interventions
• Costly services
• Additional staffing
• Move to a higher level placement
• Visits to the Emergency Room
• Measure impact on quality of life

20
Special Acknowledgements

• Peter Himber, MD
• Arleen Downing, MD
• Larry Landauer
• UCI Medical Center and Departments of Psychiatry
  and Pediatrics