STAKEHOLDER LAUNCH

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• STAKEHOLDER LAUNCH
• 6TH JULY 2006

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• Introduction to afternoon session
• Chair
• Professor Chris Butler
• Associate Director
• CRC Cymru Co-ordinating Centre

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Thematic Research Networks

• Mental Health Keith Lloyd Swansea
• Learning disabilities David Felce Cardiff
• Dementia and
• neurodegenerative disorders Bob Woods Bangor
• Diabetes David Owens Cardiff
• Epilepsy Mark Rees Swansea
• Children and Young People Catriona
  Williams Children in Wales
• Public health Laurence Moore Cardiff
• Older people and aging Judith Phillips Swansea
• Emergency and
• Unscheduled Treatment Helen Snooks Swansea
• Cancer Tim Maughan Cardiff

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• Thematic Research Network Showcase
• Mental Health Research Network
• Professor Keith Lloyd

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Providing the infrastructure for clinical trials
and other well designed studies that have
implications for people, services and treatment
Diabetes, Dendron, Medicines for children
Cancer
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Challenges and opportunities

• Capacity
• Funding variation between Wales England.
• UK Health Research Analysis.

• Lead roles
• Need for Welsh and UK / international focus.
• England leads in some areas, Wales in others.

• Ways of working
• Structures
• Administrative issues

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Partnership
Wales Collaboration for Mental Health
All Wales, whole life cycle, disease area and
client group involvement
Voluntary sector Awetu HAFAL MIND
NHS Social Care All Wales senior nurse
advisory group Association of directors of social
care Local Health Boards National Public Health
Service for Wales NHS Trusts NHS Trusts chief
executives group Royal College of
Psychiatrists AWARD
University sector Cardiff University N Wales
Dept of psychological Medicine University of
Glamorgan University of Wales Bangor University
of Wales Swansea
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Aims

• To coordinate and facilitate the delivery of
  large-scale research projects that will inform
  policy and practice as it develops
• To broaden the scope and capacity of research in
  mental health, including full involvement of
  service users and carers as well as frontline
  staff
• To help identify mental health research needs
  (particularly in health and social care).
• To develop research capacity through a range of
  initiatives at a local, regional and national
  level.

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Structures
Research Groups

• Provide creative drive for the network.
• Turn research ideas into funded studies suitable
  for adoption onto the network.

• Links to English Research Groups
• Need for Welsh Research groups

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Processes - The portfolio
UKCRN portfolio
UKCRN Topic Clinical RNs
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Outcomes - Achievements so far
Key staff in place www.mhrnc.org Research groups
Funded projects
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• STAKEHOLDER LAUNCH
• 6TH JULY 2006

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• Thematic Research Network Showcase
• Older People and Ageing
• Research Network
• Professor Judith Phillips

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• Thematic Research Network Showcase
• Older People and Ageing
• Research Network
• Professor Judith Phillips

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The Vision for Wales

• Making Wales the place to do research into ageing
  and older people
• Infrastructure
• Collaborative
• Culture
• Evidence-based
• People
• Services tailored to the needs of communities
  and individuals and delivered by research-aware
  practitioners.

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Swansea Social Care/Policy Health Nursing
Wales Office of RD (WORD)
CRCCC
Thematic networks
Bangor Social Policy Social Care
Cardiff Medicine
Older People
Research, policy practice
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Aims of the network

• To improve the well-being of older people by
  increasing research capacity
• Enhance the quality and volume of research
• Improve the integration of policy, practice and
  research
• Facilitate the coordination of research
• Strengthen research collaborations
• Increase the participation of older people in
  research

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Enhance the quality and volume of research

• Identify research priorities and capacity
• Identify sources of funding and supporting
  collaboration across disciplines, sectors and
  institutions to bid for funding
• Build links with the other thematic networks and
  groups

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Integration of policy, practice and research

• Achieve closer working relationships with policy
  and practice
• Organise dissemination, implementation and
  research workshops
• Hold policy research forums and seminars
• Develop models to engage older people

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Collaboration, coordination and participation

• Facilitate collaborative research e.g. bio
  medical engineers, clinicians, policy makers,
  practitioners older people
• Build strong links with other older peoples
  networks e.g. National Partnership Forum for
  Older People and Age Alliance
• Sustain links with professional and service
  networks
• Link with other European and North American
  networks

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Portfolio of research

• Multidisciplinary
• Social care
• Stroke and Frailty (linking with the West
  Midlands stroke network)
• Ageing and its environments (Ageing in rural
  areas deprived communities smart housing)

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CRC Cymru

• RPN
• Coordination and links with other networks
• Social care
• Mixed method research

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• A voice for older people in the research process.
• Evidence based policy practice
• Greater integration of research, practice
  policy.
• The delivery of appropriate, person-centred and
  timely interventions in health and social care.
• A strengthening of research infrastructure
  capacity.

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• STAKEHOLDER LAUNCH
• 6TH JULY 2006

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• Thematic Research Network Showcase
• Public Health Improvement Research Network
• Professor Laurence Moore

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Public Health Improvement Research Network
PHIRN

• Prof. Laurence Moore
• Dr. Simon Murphy
• Sarah MacDonald

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Public Health Improvement

• the network is concerned with interventions and
  policies to improve the health and well-being of
  the public, whether through disease prevention or
  action to change the wider determinants of
  health. PHIR reflects a focus on developing and
  testing interventions, rather than a focus on
  epidemiology or needs assessment
• the scope of interventions to be tested will not
  be restricted to health technology or to the NHS,
  but will include a very broad conception of
  initiatives to improve the health and well-being
  of the public, from simple to complex, small- to
  large-scale, and including policies and
  interventions instigated outside the health and
  social care arena
• that interventions and policies will be developed
  and tested both in terms of their effectiveness
  in reducing health inequalities as well as
  improving population health and well-being.

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Barriers to high quality evidence generation

• Clinical NHS research
• Trial recruitment
• Ethics, regulation and governance
• Infrastructure staff and CRFs
• Public health intervention research
• Scale, expense, complexity of interventions
• Potential for natural experiments, though no
  Culyer money
• Multidisciplinary, multi-sectoral
• Not jut NHS

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SWOT of Public Health Improvement RD activity
structures in Wales

• Strengths world class research with strong
  policy/practice engagement
• Ronan Lyons Injury and Environment
• Ian Russell PHAIME 12
• Jonathan Shepherd Violence and Society
• Laurence Moore Adolescent Health
• Gareth Williams Social Determinants,
  Communities, Action Research
• NPHS, WAG HPD

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• Weaknesses
• Limited dialogue between or within research,
  policy and practice communities, no structures
• Little investment in high quality primary
  research
• Opportunities to rigorously evaluate innovations
  in services not taken
• Pockets of excellence not integrated or well-known

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• Opportunities
• Policy priority
• appetite for evidence
• A lot of innovation in Wales
• Good linkage with key UK research groups
• Strong and supportive national structures
• Increased research funding in this area
• MRC, NPRI, Wellcome, ESRC
• CRC Public Health SPG

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• Threats
• Public Health Research always the Cinderella
• Clinical research rhetoric includes public health
  but marginalised in action plans, resources
• Investments in clinical research, experimental
  medicine, clinical research facilities usually
  exclude public health
• Networks for research consumption may develop,
  but evidence generation may not happen
• Policy and practice timescales dont easily fit
  with research timescales

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AIM

• To increase the quantity and quality of public
  health improvement research in Wales that is
  relevant to policy and practice

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Objectives

• This aim will be achieved by
• increasing the number of natural experiments
  within the roll-out of new initiatives
• developing high quality collaborative research
  proposals for research grant funding
• developing high quality collaborative research
  proposals linked to emerging initiatives, such
  that projects could seek external funding of
  research costs, with intervention costs borne by
  the relevant national or local organization.

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A network of academics, policy makers and
practitioners

• The network will facilitate a continuous process
  of
• identification and exploration of research
  priorities
• identification of teams with academic, policy and
  practitioner representation to take forward
  priority research projects
• exchange of new evidence, policy developments,
  practitioner innovation
• exchange of innovative methodological approaches
• identification of innovations in policy and
  practice at an early stage in planning,
  maximizing the opportunities for natural
  experiments
• development of high quality research project
  protocols
• execution of funded research protocols.

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Wales specific networks

• Emergency and unplanned care
• Epilepsy
• Older people and ageing
• Learning Disabilities
• Public Health Improvement
• Importance not matched by historic funding
• Limited UK research capacity
• Opportunities for national leadership

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• STAKEHOLDER LAUNCH
• 6TH JULY 2006