Launch of the Self Management Strategy for Scotland

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Launch of the Self Management Strategy for
Scotland
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A journey to the self management strategy for
Scotland Susan Douglas-Scott, Chief Executive
Epilepsy Scotland and non Executive Director
LTCAS Angela Donaldson, Director Arthritis Care
Scotland and non Executive Director LTCAS
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The journey begins diagnosis please
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The long and winding road


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Footprints in the sand
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Self Management Strategy for Scotland

• LTCAS asked by Scottish Government to produce
  self management strategy
• Short term task group took forward, consulted
  LTCAS network and final strategy submitted to CMO
  long term conditions steering group Jan 2008

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Before that..

• Gaun Yersel conference November 2006
• Living Well events
• Sub group of the board of LTCAS
• LTCAS members and other stakeholders
• Circulating ideas, feedback, writing and editing

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Key points emerged about self management

• Person-centred - individual in driving seat
• Empowerment - person has control over their own
  life, decision, goals and condition management
• Not about going it alone
• Not an alternative to NHS services/treatments

Self management is not to replace service
provision, but in addition to your
care. Participant at Living Well event
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key stages where people need support emerged

• Diagnosis
• Living for today
• Progression
• Transitions
• End of life

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What people want from self management

• Far better quality of life
• Returns peoples sense of control
• Increases confidence and self esteem
• Better management of condition (reduced symptoms,
  complications, pain, fatigue and depression)
• More effective use of NHS services including
  concordance with medicines
• Reduction in GP visits
• Improvements to other areas of life such as
  family, work, social life

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What it would look like if the strategy works
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What does self management mean?
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Positive feedback what a relief!
The draft strategy feels like someones actually
been inside my head and reflects exactly what
Ive been through at different times and gives
real practical advice and guidance of the kind of
staffing and support required to make life easier
for people living with long term
conditions. Respondent to consultation on draft
Self Management Strategy
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How this feels for us

• Coming together of years of
• Thinking
• Understanding
• Talking (moaning!)
• Campaigning
• Its personal as well as professional and
  another milestone on the journey

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Where to find us

• www.ltcas.org.uk
• Princes House (S5)
• 5 Shandwick Place
• Edinburgh EH2 4RG
• 0845 478 6329

• And from later this
• month
• Venlaw Building
• 349 Bath Street
• Glasgow G2 4AA

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Launch of the Self Management Strategy for
Scotland
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• Table discussions - moving forward
• In implementing the strategy what are
• The risks
• Your hopes
• Your vision for the future

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What next? Audrey Birt Chair of LTCAS
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LTCAS Vision
A Scotland where people with long term conditions
enjoy, not endure, full and positive lives, free
from discrimination and supported by access to
high quality services, information and support.
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About LTCAS

• Alliance of voluntary organisations
• Around 60 members wider network of 200
• Launched May 2006 funded by Scottish Government
• Give independent voice to common issues affecting
  people with long term conditions - main focus is
  policy and campaigning and supporting self
  management
• Invited to develop the strategy for self
  management in Scotland
• People not patients

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Self management supports self efficacy and
empowerment

• Our definition of non-compliance is 2 people
  working toward different goals. Patients often
  become frustrated and dissatisfied if they feel
  that they are being judged and blamed for their
  inability or unwillingness to achieve medical
  goals, or if the physician does not consider
  their goals to be important. Once patients are
  viewed as collaborators who establish their own
  goals, the whole concept of compliance becomes
  irrelevant. When patients work toward their own
  goals, their motivation is intrinsic. Because
  true and lasting motivation comes from within,
  patients are able to make and sustain changes in
  their behaviour using this patient-centred
  approach.
• Bob Anderson et al

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National Policy - current activities in long term
conditions

• Chief Medical Officer (CMO) Long Term
  Conditions Steering Group
• LTC Strategy / action plan
• Living Well with Long Term Conditions
• events/report
• Strategy for self management
• CHP Long Term Conditions Toolkit
• Improvement Programme / Collaborative
• Self Management Secondee

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• What needs to happen to enable the implementation
  of the strategy?
• Embed a culture of the person being the leading
  partner in their own health and well-being
• Establish tools to make it easy to do the right
  thing

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Self Management Strategy for Scotland
Key recommendations
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Make sure services work together
GPs also need training in the use of the support
network, e.g. pharmacists, voluntary sector,
specialist services what is available locally
and nationally.
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LTC voluntary sector - main roles

• Service provision
• Funding for services
• Provision of support (info, advice, support etc)
• Research
• Policy campaigning
• Training practice development

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Benefits of joining LTCAS

• Information bulletins
• Access to large network and support to share
  information
• Opportunities to be involved in national policiy
  making
• Link to your website from LTCAS site
• Be part of a voice for the 2 million people who
  live with long term conditions in Scotland

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National self management steering group for long
Term Conditions

• To consider and advise on all matters related to
  self-management in long term conditions in
  Scotland
• To provide support and advice to component
  projects agreed by the the SMSG to support the
  following
• Embedding culture change
• Agreeing principles of Self Management Agreeing
  scope and content of personal care plan and
  electronic health record
• Improving communication skills of staff and
  people with long term conditions
• End of life care planning
• Reference group for National information and
  support service
• Reference group for quality standard setting
• Reference group for research in self management

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We need to continue to involve people and
communicate developments
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Questions move people along their journey
through life. Answers stop the process of
searching.
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Dreamers of the day?
All men dreambut not equally. Those who dream by
night in the dusty recesses of their minds Awake
to find that it was vanity But the dreamers of
the day are Dangerous men, That they may act
their dreams with Open eyes to make it
possible TE Lawrence