Presentacin de PowerPoint

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Outreach Project Presentation in Istanbul 22
July 2003
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Aims of the Outreach project

• Provide support to emerging BMT programmes and
  centres with limited resources
• Increase the active participation of these
  centres in EBMT/ESH activities
• Encourage international collaboration build
  relationships between centres
• Improve communications and build awareness of
  EBMT/ESH activities on an international level

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Outreach Survey

• Needs assesment to help prioritise activities
• Separate questionnaires prepared for lower
  income (LIC) and high income countries (HIC)
• Sent to 100 LIC and 401 HIC
• Non-members
• Representative of national BMT and haematology
  societies contacted to ensure wider circulation

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World Bank classification
High Andorra Japan Australia
Liechtenstein Austria Luxembourg Belgium Netherlan
ds Canada New Zealand Cyprus Norway Denmark Portug
al Finland Singapore France Slovenia Germany Spain
Greece Sweden Greenland Switzerland Iceland Unite
d Arab Emirates Ireland UK Israel USA Italy
Upper middle Argentina Slovak
Republic Brazil Uruguay Chile Croatia Czech
Republic Estonia Hungary Latvia Lebanon Libya Lith
uania Malaysia Malta Mexico Poland Saudia Arabia
Lower middle Albania Turkey Algeria West Bank
Gaza Belarus Yugoslavia Bosnia
Herzegovina Bulgaria Egypt, Arab Rep. Iran,
Islamic. Rep Iraq Jordan Kazakhstan Macedonia,
FYR Morocco Romania Russian Federation South
Africa Syrian Arab Republic Tunisia
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Survey information
2. Activities

• 1. Level of involvement in EBMT / ESH activities
• 2. Evaluation of Outreach activities
• To assess the type of support that centres in
  lower income countries feel they need and
  identify the main areas where established centres
  with resources could offer support
• 3. Areas where EBMT/ESH could offer assistance
• 4. Twin centre activities

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D. Rating of areas on which EBMT/ESH should focus
their support activities
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Support collaboration between centres

• Lower income centres expressed a strong interest
  in
• Support for participation in clinical trials
• Clinical training (junior medical nurses)
• Technical training in new developments
• Statistical training data management support

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4. Twin centre project

• Previous experience

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Rating of previous experience

• Centres in LIC
• 100 extremely positive

• Centres in HIC
• 52 extremely positive
• 25 satisfactory
• 12 not specified
• 6 unsatisfactory
• 3 too early to say

Interest in becoming a twin centre in future
Yes 77 No 17 Not at moment 3 Depends 3
Yes 91 No 9
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Type of Twin Centre activities most interested in
Lower income countries
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Types of twinning activities centres would like
to be involved in
High income countries
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Commentary
General

• Willingness to actively participate in the
  project
• A distinction can be drawn between experienced
  centres with limited resources and centres that
  are in the process of establishing themselves
• The results suggest that many of the centres
  represented in the survey are more established
  centres
• It would be valuable to get broader input from
  less-established centres

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Activities

• Highest priority for EBMT/ESH activities put on
  grants to attend training courses meetings
• The demand for clinical training can be met by
  HIC, but support for technical training and
  statistical /data management needs to be met in
  other ways
• Support for participation in clinical trials is
  not clearly defined and needs to be discussed
  further
• Distinction can be drawn between activities that
  require external funding and issues that can be
  addressed by the EBMT (improved communication and
  open attitudes)

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Twinning project

• There is strong support for a Twin Centre
  programme
• Twinning is more complicated and further
  analysis is needed to clearly define the
  range of activities, time frames, funding
  requirements, monitoring evaluation
  systems
• There is experience of twin centre projects to
  draw on, both within the EBMT and from other
  societies

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Activities underway

• Next EBMT/ESH Postgraduate Training Course will
  be held in Budapest, Hungary in May 2004
  (unrestricted grant, Pfizer)
• A funding application has been made to the EU to
  fund scholarships for courses for the next 4
  years
• Infectious Diseases WP Training Course, Mainz,
  Germany
• A new edition of the EBMT/ESH Handbook is being
  prepared and will be circulated in May 2004
  (grant, Chugai)
• Collaboration with ESH and EHA on grant
  applications to fund educational activities
• A funding application has been made to the EC to
  support JACIE accreditation including extension
  of network of JACIE national representatives,
  production and distribution of materials, support
  for educational sessions
• Improvements in EBMT information systems

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Next steps

• Seek broader input from less established centres
• Agree initial remit of project
• Define support for participation in clinical
  trials
• Consider the best ways of providing technical
  training and provision of statistical data
  management support
• Seek commitment from Working Parties to support
  the involvement of members from lower income
  countries
• Investigate, document analyse Twin Centre
  projects
• Elaborate and initiate pilot twin centre projects
• Look for more funding (foundations, corporate
  sponors)