Participation, ageing and disability

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Participation, ageing and disability

• Ros Madden Ann Peut

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Outline

• Extent of disability among people of all ages in
  Australia
• Differences in the experience of disability for
  older and younger people
• Care and services
• Participation

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Disability and age 2003
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Aboriginal and Torres Strait Islander people
disability and age
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Older people and disability, 2003

• Higher proportion need assistance from a person
• Experience can be associated with declining
  health
• Average number of health conditions higher
• Average of 4.9 health conditions for older people
  with profound core activity limitation
• Use more aids
• Average 2.6 per person aged 65

More likely for self-care, mobility, medical,
hearing
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Younger people with disabilities

• More people aged under 65 need assistance (than
  65)
• Use equipment (average 1.4-1.7 per person), often
  medical or communication
• Possible implications of earlier ages of onset
• Life opportunities and experience
• Employment and income during life, assets in
  older ages
• Developing other resources family, skills?
• Duration of care provided by families

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Population ageing, disability, and the future

• Population ageing and growth
• Increase in number and proportion of older people
• Disability numbers projected to rise
• Rates of severe disability are not rising
• Informal care
• Ratio of primary carers to people with severe
  disability expected to fall, despite growth in
  carer numbers
• A decline in propensity to become a carer would
  place increased demands on formal care services

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Clients receiving major services, 2003-04
Sources AIHW 2005. Disability Support Services
2003-04 National data on services provided under
the CSTDA. AIHW analysis of DoHA ACCMIS database,
HACC MDS Lincoln Centre analysis of ACAP MDS v1
and v2 DVA unpublished data.
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Informal care provision older people
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Informal care and younger people
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Duration of care (recipients lt65)
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Participation

• For younger people
• A whole-person whole-of-life framework to
  indicate extent of and satisfaction with
  participation.

• For older people
• Participation in daily activities
• Caring responsibilities
• Volunteering

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Need for assistance in daily activitiesolder
people - 2003
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Older people as carers

• Assistance for people with disabilities
• Nearly 454,000 older people provided assistance
  to people with a disability
• 24 of primary carers are aged 65
• Caring for children

Mainly care for partners
Grandparents raising children in 23,000 families
Grandparents provided 58 of informal care to
children aged under 12
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Older people as volunteers, 2002
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Difficulty in life areas 000 people (min. no.
aged under 65)
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Needing assistance in life areas 000 people
(min. no. aged under 65)
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Assistance needs not fully met (min)
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Other areas of participation (people lt 65)

• Social life
• Family and friends the main focus
• Severe disability related to less participation
• Education
• Less likely to have post school qualification
• Trend towards mainstream schooling
• Employment low rates of participation and higher
  unemployment
• More environmental accommodation in schools
  than in workplaces?

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Conclusion

• People are participating!
• Participation
• not just about employment also relationships,
  communication, mobility, community and domestic
  life
• also about families care and its effects
• Disabilities and related needs vary throughout
  the whole of the life course
• Unified data, whole-of-life concept would support
  whole-of-government analysis

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Thank you

• and also thank you to the authors of our
  chapters
• Rose Karmel, Stan Bennett, Rebecca Hogan
• Tim Beard, Xingyan Wen