Breast Cancer Education in Southern Minority Families

1
Breast Cancer Education in Southern Minority
Families

• Maya Angelou Institute
• For the improvement of
• Child and Family Education

2
http//www4.ga.unc.edu/CI/
3
Performance Against Goals

• Goals
• Did it follow the community-based action research
  model?
• Did it measure knowledge of the causes and
  treatment of breast cancer?

• Actual gains
• Quantitative (emphasis on outcome answers to
  Q21-Q66)
• Qualitative (emphasis on process)
• 347 volunteers
• 117 volunteers completed process
• 97 Volunteers completed evaluations

4
Methodology
5
Project Planning How Was the Project Planned?

• Who was responsible for original plans?
• How did that work? Right set of people?
• Media promotion criteria

6
Project Planning People at the table

• 3 focus groups (experts, survivors, support to
  survivors)
• WSSU faculty, staff, and students
• - Spanish version of instrument
• - presentations in 5 classrooms
• - radio station and student newspaper
• Community members
• Hair studio
• NC Cooperative Extension
• Hispanic Community Organizer
• Group Home director
• Womens college alumnae
• Faith community

7
Focus groups, aka, the research team

• Description of campus and community
• 3 undergraduate students
• 1 part-time project coordinator
• Major project elements
• Communication hotlines
• Survey creation
• Recruitment of participants
• Evaluation session
• Presentation

8
Findings
9
Quantitative Results (knowledge)

• Description of the sample/participants
• Demographics
• Test of the hypothesis
• results of the t test
• number correct at Time1

10
Qualitative Results (feelings)

• Did the comfort level increase?
• What is the relationship between comfort
• And knowledge of own breast cancer?
• And sharing with family about own breast cancer?
• And talking with family about breast cancer?

11
What Was Present

• Invitations for integration
• WSSU staff/Shriner
• My Sistahs Keeper
• Million Mamms
• MSI/CCP grant proposal
• Ministers Wives organization

12
What Was Missing

• Our challenges
• Adequate personnel (e.g. Cooperative Extension
  participants)
• Digital divide (email vs. phone)
• Debriefing of the focus groups
• Funding (e.g., for dissemination)
• Results dissemination, particularly to
  participants

13
Conclusions

• Re-visit the goals of the study
• Theory and practice of community-based action
  research

14
Questions Discussion

• Missing elements?
• Degree of effective application of theory and
  practice?
• Results?

15
The participants evaluated the team

• Length of the questionnaire
• A time-consuming process?
• Clarity of questionnaire instructions?
• Understandable questions?

• Describe staff
• Quick feedback?
• Would you advise a friend to participate?

16
Summary

• Model of community based action research and
  methodology of the study
• Findings
• Suggestions

17
You may contact me

• Frankie Denise Powell, Ph.D.
• CB 19360, Maya Angelou Institute
• Winston-Salem State University
• Winston-Salem, NC 27110-0003
• [phone] fax [phone]
• Powellf_at_wssu.edu