Incorporating HRSA Performance Measures into Your Healthy Tomorrows Project

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Incorporating HRSA Performance Measures into Your
Healthy Tomorrows Project

• Performance Measures 07 and 10

Conni Wells Tawara Goode
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Family Participation

• MCHB Performance Measure 07

Conni Wells Florida Institute for Family
Involvement
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• The degree to which MCHB supported programs
  ensure family participation in program and policy
  activities.

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Goal

• To increase family participation in MCHB Programs

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Elements

• Family members participate on advisory committees
  or task forces and are offered training,
  mentoring and reimbursement.
• Financial support (financial grants, technical
  assistance, travel, and child care) is offered
  for parent activities or parent groups.
• Family members participate in the planning,
  implementation and evaluation of the programs
  activities.
• Families members work with their professional
  partners to provide training ( pre-service,
  in-service and professional development) to
  MCH/CSHCN staff and providers.
• Family members are hired as paid staff or
  consultants to the program (a family member is
  hired for his or her expertise as a family
  member).
• Family members of diverse cultures are involved
  in all of the above activities.

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YIKES!
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History

• Over the last decade, policy makers and program
  administrators have emphasized the central role
  of families as advisors and participants in
  policy-making activities
• MCHB is facilitating such partnerships at the
  local, state and national levels
• Family/professional partnerships have been
  incorporated into the MCHB Block Grant
  Application and the MCHB strategic plan

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History, continued

• Finally, a requirement in the Omnibus Budget
  Reconciliation Act of 1989 (OBRA 89), the
  legislative mandate that health programs
  supported by Maternal and Child Health Bureau
  (MCHB) Children with Special Health Care Needs
  (CSHCN) provide and promote family centered,
  community-based, coordinated care.

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Why Now?
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Charging Forward
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Family members participate on advisory committees
or task forces and are offered training,
mentoring and reimbursement.

• Creating and sustaining a Family Advisory
  Committee
• Program specific task forces
• Developing support and mentoring through targeted
  assignment

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Financial support (financial grants, technical
assistance, travel, and child care) is offered
for parent activities or parent groups.

• Creative funding
• Developing consistent policy
• Stipendsdevelopment and justification

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Family members participate in the planning,
implementation and evaluation of the programs
activities.

• Bringing families on board
• Preparing families for their role
• Utilizing family input

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Families members work with their professional
partners to provide training ( pre-service,
in-service and professional development) to
MCH/CSHCN staff and providers.

• Policies and practice
• Creating opportunity
• Linking with family leaders

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Family members are hired as paid staff or
consultants to the program (a family member is
hired for his or her expertise as a family
member).

• Creating practical and critical roles
• Making It Work
• Funding

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Family members of diverse cultures are involved
in all of the above activities.

• Locating families
• Creating opportunity
• Mentoring and support

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Are families satisfied
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A satisfied family may not be an involved
family

• Satisfied families families that are satisfied
  with what they are getting based upon their
  perception of what is available
• Involved families families that are full
  participants in the planning, development, and
  implementation of programs and services

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A Little Help From Your Friends

• Sample survey
• Tools
• Websites

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Engaging Partners

• Contract with a family organization
• Identification, training and support of families
• In-services
• Facilitating family input
• Gathering surveys
• Contracting with family consultants

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Family Organizations

• Family Voices
• http//www.familyvoices.org/states.htm
• Federation of Families for Childrens Mental
  Health
• http//www.ffcmh.org/who_chapters.php
• Family Networking Grantees
• http//www.tacenter.net/statewide/index.cfm
• Family to Family Health Information and Education
  Centers
• http//www.familyvoices.org/F2F.htm

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Final Thoughts
...if we wait for the moment when
everything,absolutely everything is ready, we
shall never begin.Ivan Turgenev