PERSONALIZED MEDICINE:

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PERSONALIZED MEDICINE SOCIAL ETHICAL ISSUES
IN SCREENING FOR GENETIC DISEASE AND
SUSCEPTIBILITY
STATE OF THE ART PLENARY - MAY 2, 2009 315 pm
515 pm BALTIMORE CONVENTION CENTER ROOM 307
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PERSONALIZED MEDICINE SOCIAL ETHICAL ISSUES
IN SCREENING FOR GENETIC DISEASE AND
SUSCEPTIBILITY
Newborn Screening Edward R.B. McCabe, Mattel
Childrens Hospital, UCLA, Los Angeles,
CA Testing for Genetic Susceptibility Alan E.
Guttmacher, National Human Genome Research
Institute, National Institutes of Health,
Bethesda, MD Ethical Issues and
Considerations Jeffrey R. Botkin, University of
Utah, Salt Lake City, UT Moderator Myron
Genel, Yale Child Health Research Center, New
Haven, CT
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RECENT PUBLIC POLICY PLENARY SYMPOSIA
2001 Entreprenurism Conflicts of Interest in
Academic Medicine 2002 Children as Research
Subjects Ethical Regulatory Issues 2003 The
Changing Spectrum of Pediatric Specialty Care
Implications for the Pediatric Generalist
Specialist 2004 The National Children's Study
Framingham for Children-Can We Pull it
Off? 2005 Clinical Trial Registries Challenges
and Opportunities 2006 New Resident Work Hours
and Quality Care - Synergistic or
Antagonistic? 2007 Health Care for Immigrant
Children 2008 Election 2008 A National Agenda
for America's Children and Adolescents
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24 April 2009