Patient and Carer Involvement

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Patient and Carer Involvement

• Guidelines on Involvement

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There are many ways to be involved.

• Therefore there are different expectations and
  requirements from your involvement.

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1) Working with your local teams to give your
personal views and details about your experience

• THIS MAY INCLUDE
• Being interviewed about your experience.
• Filling in a questionnaire about your experience
  or writing down your views.
• Making a complaint about your experience.
• Discussing your experience in a group.

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2) Helping us to think about solutions to issues
you have raised.

• This involves discussing issues in general and
  coming to an agreement with others in the group
  about the best way forward.
• Creative skills are required. You need to be able
  to see the simple side to big problems and share
  ideas that have worked for you.

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Implementation Group - Making sure the solution
ideas turn into action

• Planning skills required.
• Attention to detail required.
• Understanding the realistic constraints and
  politics of the NHS.
• Patience to see the idea turn into a reality.
• Ability to build feedback from a range of people
  into the implementation plan.

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Clinical Groups - giving the patient and carer
perspective to ideas arising from the team

• Speaking on behalf of the patient and carer in
  general.
• Seeing yourself as an equal part of the team-
  i.e. a representative for patients or carers.
• Understanding the realistic constraints and
  politics of the NHS.

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Executive Board - giving the patient and carer
perspective to ideas on the verge of approval

• Reading documentation.
• Keeping up to date with national and local NHS
  initiatives.
• Giving your opinion on proposed plans for service
  development (not personal experience).
• Feeling confident in a formal meeting setting.

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Network Board- being ready to answer questions
about proposals awaiting approval from Chief
Executives

• Being familiar with the proposals awaiting
  approval.
• Answering questions from CEs about the patient
  and carer perspective on the proposals (not
  personal perspective).
• Feeling confident in a formal meeting setting.