NPM

1
Youth have something to say ..are we listening?
BACKGROUND The Maine Title V CSHCN Program was
one of only three states to receive MCHB grant
funding under the Healthy Ready to Work
initiative (Phase I II 1997-2005). According
to the NS-CSHCN, nationally only 6.3 of YSHCN
receive the services they require to make a
successful transition to adulthood (2001). Maine
was the only state with enough information to
reliably report on this measure with 14.9 of
families reporting that their youth receive the
necessary services to transition. There is more
work to do, to ensure that youth have a voice in
their health care decisions and in shaping and
creating health policies.
Title V Youth Advisory Council
NPM 6 Youth with special health care needs
will receive the services
necessary to make transitions
to all aspects of adult life,
including adult health care, work, and
independence

• YEA ME! Youth Educators and Advocators of Maine
• youth and young adults from across the state
• has adopted by-laws and elected officers
• meets six times a year with the CSHN director
• all members have email addresses
• compensated 10 per hour plus expenses
• YOUTHSPEAK Speakers Bureau
• Youth leaders with special health care needs
  share about their strengths and needs to
  employers, providers, educators, policy makers
  and parents.
• Youth-developed information YOUTHSPEAK 2.0 CD
• YEA ME! Presentations
• Maine Legislatures Youth Advisory Council

Recommendations

• 1. CREATE
  Title V
• Youth
• Advisory
• Council
• 2. COMPENSATE Value time and expertise.
• 3. SKILL BUILD Provide opportunities to learn.
• 4. SUPPORT Peer to peer recruitment and
  mentoring.
• 5. CONSIDER Form 13A-youth involvement
  activities.
• 6. PREPARE Engaging youth takes time and
  flexibility.

Youth Involvement

• Maine is also credited with being the first state
  in the nation to have
• a Title V sponsored Youth Advisory Council
• YEA ME! Youth Educators Advocators of Maine
• Youth review the state MCHB Block Grant  
• The YEA ME! advises the CSHN program on
• Policy Development
• CSHN Application youth version
• Care Coordination Tools My Life Map

The Ultimate Outcome Transition to Adulthood !