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(No Transcript)
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 Methodological Preparations for an Irish Post
Census National Disability Survey in 2006

• Paper for Washington Group on Disability
  Statistics5th Meeting Rio de Janeiro,
  September 2005
• Gerry Brady (CSO) and Anne Good (NDA)

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Context

• UN Standard Rules, 1993
• Report of the Commission on the Status of People
  with Disabilities, 1996
• NDA Act, 1999

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The UN Standard Rules on the Equalization of
Opportunities for Persons with Disabilities  

• Rule 13. Information and Research
•   States should, at regular intervals, collect
  gender-specific statistics and other information
  concerning the living conditions of persons with
  disabilities.
• Such data collection could be conducted in
  conjunction with national censuses and household
  surveys
• The data collection should include questions on
  programmes and services and their use.  

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Strategy for Equality 1996

• The Central Statistics Office should
• carry out a survey of the extent of
• disabilities in Ireland, and establish a
• system to ensure that relevant data is
• regularly updated.
• (Commission on the Status of People with
  Disabilities, 19968)

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NDA Act 1999 Research for evidence-based change

• ..to undertake, commission or collaborate in
  research projects
• to assist in the development of statistical
  information appropropriate for planning, delivery
  and monitoring of programmes and services for
  persons with disability

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Review 2002 lack of data on disability in
Republic of Ireland Statistical
Research Mainstream administrative
databases Disability Databases Physical/Sensory
Intellectual National Surveys Census QNHS Propo
sed Irish National Disability Study
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Methodological Preparations

• The NDA Pilot Disability Survey and Consultation
  Exercise, 2002-2004
• Census of Population 2002
• Census of Population 2006
• Post survey micro data linkage to 2006 Census
  file
• NDS 2006 sample
• NDS 2006 questionnaire
• Ethical practice in disability surveys.

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1.      The NDA Pilot Disability Survey and
Consultation Exercise, 2002-2004

• Questionnaires developed and tested (ICF
  framework)
• Consultations conducted with stakeholders
• Pilot process reviewed
• Interviewer guidelines developed
• NDS recommended to government

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• 2. and 3.    
• Census of Population 2002
• Census of Population 2006
• Census 2002
• First time disability questions included in
  census, rate 8.3
• Census 2006
• Disability questions revised and piloted in 2004,
  rate 10.6

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4.      Post survey micro data linkage to 2006
Census file

• Each person recorded in the Census can be
  uniquely identified electronically by a
  combination of four variables
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• County code
• Enumeration area code (EA)
• D number (taken from the Enumerator Record Book
  which is a list of all households within an EA
  including their addresses) and
• Person number on the census form.

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5.      NDS 2006 sample broad issues decided

• Include children and adults of all ages whether
  living in private households or in communal
  establishments. Homeless people will not be
  covered
• 2.   The total sample size will be around 15,000
  persons. This includes around 2,000 persons who
  did not report a disability in the Census 
• 3.      The primary sampling unit will be the
  Electoral Division. These will be selected using
  the disability results from the 2002 Census of
  Population. 
• 4.      The secondary sampling unit will be a
  named person  
• 5.    The data gathered during the 2006 Census
  will be used to stratify and select. A higher
  proportion of younger persons with a disability
  will be included.

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6.      NDS 2006 Questionnaire

• Pilot questionnaires the starting point
• Another broad consultation exercise, emphasis on
  government departments
• Many questions reworded/modified (especially re
  mental health)
• More prominence given to built environment and
  transport
• Major life areas eg education, employment expanded

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7.      Ethical practice in disability surveys.

• Core values to underpin disability research
• Respect for the human rights, dignity, equality
  and diversity
• Advancement of social justice for people with
  disabilities
• Promotion of the well-being of those
  participating, involved in or affected by the
  research process
• Avoidance of harm to those involved in the
  research process or to the wider community
• Facilitation of the participation of people with
  disabilities in research and research
  dissemination
• Maintenance of the highest professional, legal
  and ethical standards and competencies and
• Comprehension and fulfilment of relevant legal
  responsibilities.

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Conclusions

• 1. The work undertaken by the NDA in
  commissioning a pilot disability survey was
  pivotal  
• 2. The Department of Justice, Equality and Law
  Reform provided the next major impetus by
  bringing a Memorandum to Government. 
• 3. The work on disability statistics undertaken
  by the CSO 2002-2005 laid a good foundation for
  deciding practical issues such as sample
  selection and methodology.
• 4. The work of the ICF and the Washington City
  Group has resulted in more international based
  consistency in the definition of disability..
• 5. There remain unresolved issues around
  determining a countrys disability prevalence
  rate.  
• 6. It is hoped to use the PPSN collected in the
  NDS to examine other administrative databases
  from a disability perspective..