Constitution Review WHY

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European Lobbying Overview and Next Steps
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• Ensure that all European Women have Access to
  Accurate Information and Quality Screening,
  Diagnosis and Treatment

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EUROPA DONNA40 MEMBER COUNTRIES
Kazakhstan Luxembourg Malta Moldova Monaco Netherl
ands Norway Poland Portugal Romania Russia Serbia
Montenegro Slovakia Slovenia Spain Sweden Switz
erland Turkey UK Ukraine
Austria Belgium Bulgaria Croatia Cyprus Czech
Rep Denmark Estonia Finland France Georgia Latvia
Lithuania Germany Greece Hungary Iceland
Ireland Israel Italy

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Background

• 1993-1994
• Founding of EUROPA DONNA
• Founder and Hon Life President
• Prof. Umberto Veronesi Founding
• President
• Gloria Freilich
• 1996 Constitution registered in Italy

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European Lobbying Activities 2000-2006

• European Parliament reception
• EPGBC (European Parliamentary Group on Breast
  Cancer since 2001)
• Website www. EPGBC.org
• EPGBC Expert meetings
• on screening,
• on specialist breast units
• Cost of screening and use of structural funds
• Parliament exhibits
• ECN partner, Eur. Commission collaboration,
  guideline working group
• National All Party Groups 3 joint meetings
  facilitate expansion

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EU Related Initiatives 2000-2006

• Development of EPF and EHF ( getting patients
  involved in decisions at Eur. Level)
• Two European Parliament Breast Cancer Resolutions
  2003 and 2006
• Revised European Cancer Code re mammography
  screening
• Collaboration with ECN(now partner) and Eur.
  Commission re advocacy training, guideline
  development
• 4 edition of the EU Guidelines including
  specialist breast unit chapter
• Workshop on guidelines for breast care nursing
• Movement across Europe for certified clinics and
  mammography screening programmes
• Advocacy group formation within other disease
  groups (cervical and colorectal)

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Todays Priorities to Ensure Best Practice

• Implementing the 4th Edition European
  Guidelines for quality assurance in breast cancer
  screening and diagnosis
• Mammography Screening
  guidelines
• Specialist Breast Unit
  guidelines
• Breast Cancer Resolution
  content

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European Lobbying Activities 2007

• EPGBC meeting on EU accreditation system for
  screening and treatment 2 October 2007

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Information Day - 17 October 2007

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EUROPA DONNA STRENGTH

• European advocacy organisation with European
  strategy and goals
• Extensive network of survivors working at
  national level, ED fora
• SIGNIFICANT IMPACT ON EUROPEAN INSTITUTIONS AND
  NATIONAL HEALTH SERVICES

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Implementing the Guidelines

• 2008 focus on using the booklet for
• Lobbying EPGBC, EPF, nationally
• Education EBCC-6, advocacy training, ECN,
  conferences, and other events
• Information mailing,website, media
• Distribution ED Advocates, NGOs, Physicians,
  Parliamentarians,Researchers, Industry, Media

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• The Short Guide follows Guideline book and
  supported by the European Union

Translation and 2nd edition will follow
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• An important tool to
• ensure progress on best practice
• one voice, one strategy, one set of goals and
  now
• One set of guidelines for all