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Title: PowerPointpresentasjon


1
ACTIVITY, ABILITY AND PARTICIPATION ACQUIRED
DEAFBLINDNESS IN ALL STAGES OF LIFE
9.30 9.45 Welcome and Practical
Information   9.45 10.30 Official Opening
Speakers   Ges Roulstone, Chair of ADBN
Truls Grøteig, Representative of
Rehabilitation and
Rare
Disabilities, Directorate of Health Steinar
Sandstad, Director of Statped Vest Geir
Jensen, President of The Norwegian

Association of the Deafblind Kari
Kristine Engan, Vice president of The Norwegian

Association for
Combined Visual and
Hearing Impairment/Deafblind 10.30
11.00 BREAK
7th Seminar of the Acquired Deafblindness Network
of DbI
2
ACTIVITY, ABILITY AND PARTICIPATION ACQUIRED
DEAFBLINDNESS IN ALL STAGES OF LIFE
11.00 12.30 FIRST PLENARY SESSION   Perspectives
on Life with Deafblindness Lena Gøransson, S
  The Experience of being deafblind 1 1 ?
2 Maartje de Kok, NL   Activity, ability and
participation - Interview Chris Farrow Megan
Mann, UK   12.30 14.00 Lunch
7th Seminar of the Acquired Deafblindness Network
of DbI
3
7th Seminar of the Acquired Deafblindness Network
of DbI
Thursday 9. October
14.00 15.00 WORKSHOPS SESSION 1
Chair Else
Marie Jensen, DK Accessibility and full
Participation in Employment Anne Skov Hårdell
and Dorthe Eriksen, DK Chair Arthur Smit,
N The Needs of the Clients, the Answer of the
Organisation Maartje de Kok and Monique Mul,
NL   Chair Bernhard de Vries, NL The Seniori
Programme - Interventions for enabling Deafblind
Elderly People to participate in Peer
Groups Tarja Laitila - Mphande and Kirsi
Karlsson, FIN   Chair Liz Duncan, UK Usher
Parents possible? Emma Boswell, UK   Chair Ges
Roulstone, UK


The
Impact of using ICF as a Tool for early Diagnosis
and Assessment
in Usher syndrome
Kerstin Möller and Claes Möller, S
A
B
C
D
E
15.00 15.30 BREAK
4
7th Seminar of the Acquired Deafblindness Network
of DbI
Thursday 9. October
15.30 16.30 WORKSHOPS SESSION 2 Chair
Arthur Smit, NL Being present Participation
with the Help of Massage - a Personal
Perspective Femke Krijger, NL Chair Liz
Duncan, NL Accessibility and Participation
through a Personal Interpreter Inger Birgitte
Torbjørnsen and Randi Myhren, N  Chair Ges
Roulstone, UK Changes in Professional Practice
following the Diagnosis of Usher syndrome in
younger Children Marylin Kilsby, UK   Chair
Marie Domnique Lussier, F Elderly People with
acquired Deafblindness in the Netherlands The
broad Approach at Kalorama Barbara Weiler,
NL   Chair Else Marie Jensen, D Persons with
Deafblindness, Experiences of Participation on
the Basis of a Life-World Approach Ann-Britt
Johansson, N
F
G
H
I
J
5
ACTIVITY, ABILITY AND PARTICIPATION ACQUIRED
DEAFBLINDNESS IN ALL STAGES OF LIFE
Friday 10. October
9.00 9.15 Practical Information   9.15
10.00 Feedback from Workshops 9. October 10.05
11.00 SECOND PLENARY SESSION   Releasing hidden
Abilities The Impact of Cochlear Implants on
People with acquired Deafblindness Claes Möller,
S   My Cochlear Implant Experience Emma Boswell,
UK   11.00 11.30 BREAK
7th Seminar of the Acquired Deafblindness Network
of DbI
6
ACTIVITY, ABILITY AND PARTICIPATION ACQUIRED
DEAFBLINDNESS IN ALL STAGES OF LIFE
Friday 10. October
11.30 13.00 THIRD PLENARY SESSION   Reports on
latest Research   Usher syndrome Where do we
come from, where are we and where are we going?
Claes Möller, S   Problems and needs of elderly
with a dual sensory impairment and their
caregivers a review. Lieve Roets-Merken,
NL   13.00 14.30 LUNCH
7th Seminar of the Acquired Deafblindness Network
of DbI
7
Friday 10. October
AFTERNOON
FREEDOM OF BERGEN This afternoon you will have
opportunities to discover Bergen City on your
own. For delegates with deafblindness The City
of Bergen offer an unique opportunity To
explore archaeological excavation at Bryggen
Museum.
8
ACTIVITY, ABILITY AND PARTICIPATION ACQUIRED
DEAFBLINDNESS IN ALL STAGES OF LIFE
Saturday 11. October
9.00 9.15 Practical Information   9.15
10.00 FOURTH PLENARY SESSION   Activity, Ability
and Participation Through Employment Vera Dahlin
and Fredrik Häggkvist, S   Experiences as an
Employee Peter Rydberg, DK   10.00
10.05 BREAK
7th Seminar of the Acquired Deafblindness Network
of DbI
9
ACTIVITY, ABILITY AND PARTICIPATION ACQUIRED
DEAFBLINDNESS IN ALL STAGES OF LIFE
Saturday 11. October
10.05 11.00 FIFTH PLENARY SESSION   Capturing
the Environment - Haptic Communication a
different Perspective Åshild Johansen,
N   Receptors and Response - A touching Way to
Communicate. Megan Mann, UK   11.00
11.30 BREAK
7th Seminar of the Acquired Deafblindness Network
of DbI
10
ACTIVITY, ABILITY AND PARTICIPATION ACQUIRED
DEAFBLINDNESS IN ALL STAGES OF LIFE
Saturday 11. October
11.30 12.30 SIXTH PLENARY SESSION   Political
Slot UN Convention Lex Grandia, D President of
The World Federation for the DeafBlind
  Margaret Sandøy Ramberg, N President,
Norwegian Federation of Organizations of Disabled
People (FFO).   12.30 14.00 LUNCH
7th Seminar of the Acquired Deafblindness Network
of DbI
11
7th Seminar of the Acquired Deafblindness Network
of DbI
Saturday 11. October
14.00 15.00 WORKSHOPS SESSION 3 Chair Ges
Roulstone, UK I'm free How Intervenors and
Technology improve Quality of Life Joan Wiebe,
Canada Chair Liz Duncan Are you ever too old
for Intervention? Liz Duncan and Megan Mann,
UK   Chair Bernhard de Vries "Services Viataal
offers to people with Usher syndrome" Sjannie
Spijkers, Peter Brouwers and Ger van Rijn,
NL   Chair Else Marie Jensen, D Meaningful
Employment for People with acquired
Deafblindness Annette Ruud Jørgensen, DK. Chair
Knut Johansen, N
Research into signing in
deaf-blind and deaf People with Ushers syndrome

Sarah Reed, UK
K
L
M
N
O
15.00 15.30 BREAK
12
7th Seminar of the Acquired Deafblindness Network
of DbI
Saturday 11. October
15.30 16.30 WORKSHOPS SESSION 4 Chair
Arthur Smith, NL Being seen and heard - improving
Access through Staff Training Louise de Groodt
and Monique Mul Chair Liz Duncan,
NL Aquired Deafblindness is not one size fits
all Jane Sayer and Bonnie Heath, Canada
Chair Allan Avis, UK Using
Activities and Entertainment to empower and
support older deafblind People Alison
Asafu-Adjaye, UK 
Chair Ges Roulstone, UK A clinical Study of 3
Persons with Usher syndrome 2, at different
Stages of their Lives Marie Domnique Lussier,
F  Chair Gunnilla Rønnblom, N Why physical
Activities are important for Persons with
acquired Deafblindness. Results from Research -
Methodology and Conclusions Berit R. Øie, N
P
Q
R
S
T
13
Saturday 11. October
19.30 Gala Dinner
14
ACTIVITY, ABILITY AND PARTICIPATION ACQUIRED
DEAFBLINDNESS IN ALL STAGES OF LIFE
Sunday 12. October
10.00 10.15 Practical Information   10.15
11.00 Feedback from Workshops 11.
October 11.05 11.35 CLOSING SESSION     12.0
0 13.00 LUNCH
7th Seminar of the Acquired Deafblindness Network
of DbI
15
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